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International Alliance of ALS/MND Associations

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“Day in the Life Of” Suite

One of the Most Powerful Experiences at the Allied Professionals Forum

What does daily life with ALS/MND truly look like, and how can care, technology, and innovation make it better?

The “Day in the Life Of” (DILO) Suite is a signature immersive experience at the Allied Professionals Forum that brings these questions to life in a practical, human way. Designed for healthcare professionals, allied specialists, researchers, people living with ALS/MND, caregivers, and industry partners, it recreates key moments in a typical day and showcases solutions that can support independence, communication, comfort, mobility, and quality of life.

Step Inside Real-World Solutions

As attendees move through the Suite, they experience a hands-on journey through the daily realities of living with ALS/MND and explore tools that can make a meaningful difference at every stage.

Featured technologies and solutions have included:

  • Eye gaze communication systems
  • Voice cloning technologies
  • Mechanical eating aids
  • Smart-home accessibility tools
  • Adaptive travel equipment
  • Mobility and positioning supports
  • Nutrition and swallowing solutions
  • Practical tools for caregivers

Throughout the experience, specialists are available for live demonstrations, practical guidance, and one-to-one conversations.

Participants consistently value the DILO Suite because it offers something rare: the chance to connect clinical knowledge with everyday life. They leave with practical ideas they can apply immediately, new approaches to patient-centred care, and firsthand experience with emerging technologies.

For many attendees, the DILO Suite has become one of the most memorable parts of the Allied Professionals Forum, offering a type of learning that traditional sessions cannot.

Whether you work in clinical care, research, advocacy, caregiving, or product development, the experience provides insights that stay with you long after the conference ends.

Watch the 2025 Walk-Through

Take a tour of the 2025 DILO Suite in the video below.

 

Primary Sidebar

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Art Eggert, USA

    Art Eggert, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • David Hall, USA

    David Hall, USA

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • John Sweeney, USA

    John Sweeney, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Rob Tison, USA

    Rob Tison, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

Learn more about the March of Faces

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