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International Alliance of ALS/MND Associations

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“Day in the Life Of” Suite

A Signature Experience at the Allied Professionals Forum

What does daily life with ALS/MND truly look like, and how can care, technology, and innovation make it better?

The “Day in the Life Of” (DILO) Suite is a signature immersive experience at the Allied Professionals Forum that brings these questions to life in a practical, human way. Designed for healthcare professionals, allied specialists, researchers, people living with ALS/MND, caregivers, and industry partners, it recreates key moments in a typical day and showcases solutions that can support independence, communication, comfort, mobility, and quality of life.

Step Inside Real-World Solutions

As attendees move through the Suite, they experience a hands-on journey through the daily realities of living with ALS/MND and explore tools that can make a meaningful difference at every stage.

Featured technologies and solutions have included:

Eye gaze communication systems
Voice cloning technologies
Mechanical eating aids
Smart-home accessibility tools
Adaptive travel equipment
Mobility and positioning supports
Nutrition and swallowing solutions
Practical tools for caregivers

Throughout the experience, specialists are available for live demonstrations, practical guidance, and one-to-one conversations.

Learning Through Experience

The DILO Suite offers something that traditional sessions cannot: the opportunity to connect clinical knowledge with the realities of everyday life. Participants leave with practical ideas they can apply, new approaches to person-centred care, and firsthand experience with emerging technologies.

For many attendees, the DILO Suite is one of the most memorable parts of the Allied Professionals Forum. Whether you work in clinical care, research, advocacy, caregiving, or product development, the experience offers practical insights that can stay with you long after the Forum ends.

Watch the 2025 Walk-Through

Take a tour of the 2025 DILO Suite and see the experience in action.

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  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Phil Rossall, UK

    Phil Rossall, UK

  • Lombana, Spain

    Lombana, Spain

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • JP

    JP

  • Alex, Argentina

    Alex, Argentina

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Lee Millard, England

    Lee Millard, England

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Bob Simonds, USA

    Bob Simonds, USA

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Frank Taylor, USA

    Frank Taylor, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

Learn more about the March of Faces

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