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International Alliance of ALS/MND Associations

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    • Fundamental Rights for People with ALS/MND and Caregivers
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      • Amylyx – AMX0035
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“Day in the Life Of” Suite

One of the Most Powerful Experiences at the Allied Professionals Forum

What does daily life with ALS/MND truly look like, and how can care, technology, and innovation make it better?

The “Day in the Life Of” (DILO) Suite is a signature immersive experience at the Allied Professionals Forum that brings these questions to life in a practical, human way. Designed for healthcare professionals, allied specialists, researchers, people living with ALS/MND, caregivers, and industry partners, it recreates key moments in a typical day and showcases solutions that can support independence, communication, comfort, mobility, and quality of life.

Step Inside Real-World Solutions

As attendees move through the Suite, they experience a hands-on journey through the daily realities of living with ALS/MND and explore tools that can make a meaningful difference at every stage.

Featured technologies and solutions have included:

  • Eye gaze communication systems
  • Voice cloning technologies
  • Mechanical eating aids
  • Smart-home accessibility tools
  • Adaptive travel equipment
  • Mobility and positioning supports
  • Nutrition and swallowing solutions
  • Practical tools for caregivers

Throughout the experience, specialists are available for live demonstrations, practical guidance, and one-to-one conversations.

Participants consistently value the DILO Suite because it offers something rare: the chance to connect clinical knowledge with everyday life. They leave with practical ideas they can apply immediately, new approaches to patient-centred care, and firsthand experience with emerging technologies.

For many attendees, the DILO Suite has become one of the most memorable parts of the Allied Professionals Forum, offering a type of learning that traditional sessions cannot.

Whether you work in clinical care, research, advocacy, caregiving, or product development, the experience provides insights that stay with you long after the conference ends.

Watch the 2025 Walk-Through

Take a tour of the 2025 DILO Suite in the video below.

 

Primary Sidebar

  • Ian Gale, MND Australia

    Ian Gale, MND Australia

  • Denis Blais, Diagnosed 2015 , ALS Canada

    Denis Blais, Diagnosed 2015 , ALS Canada

  • Bayley, Australia

    Bayley, Australia

  • Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

    Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

  • Oliver Juenke, DGM, Germany

    Oliver Juenke, DGM, Germany

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Michael Lee, Australia

    Michael Lee, Australia

  • Susan Anderson, Diagnosed 2014 , Hope Loves Company,  USA

    Susan Anderson, Diagnosed 2014 , Hope Loves Company, USA

  • Dad

    Dad

  • Eddy LeFrançois, Diagnosed 1992,  ALS Canada

    Eddy LeFrançois, Diagnosed 1992, ALS Canada

  • Fabio Correia

    Fabio Correia

  • Jason Goodman, Les Turner ALS Foundation, USA

    Jason Goodman, Les Turner ALS Foundation, USA

  • Orlando Ruiz, Diagnosed 2001,  ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001, ACELA, Colombia

  • Bob Simonds and Drew O'Neil, USA

    Bob Simonds and Drew O’Neil, USA

  • 727747090571358167

    727747090571358167

  • Juvenal Bayona Romero

    Juvenal Bayona Romero

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Paul Launer, USA

    Paul Launer, USA

  • Frank "Papa" Taylor, USA

    Frank “Papa” Taylor, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Art Eggert, USA

    Art Eggert, USA

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Leon Ryba, Asociación ELA Argentina

    Leon Ryba, Asociación ELA Argentina

  • Bjarne Hytjanstorp, ALS Norge, Norway

    Bjarne Hytjanstorp, ALS Norge, Norway

  • Claudette Sturk, ALS Society of Canada

    Claudette Sturk, ALS Society of Canada
    Picture2

  • Richard Clark, MND New Zealand,  Diagnosed 2011

    Richard Clark, MND New Zealand, Diagnosed 2011

  • Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

    Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Kirsten Harley,  Diagnosed 2013,  Australia

    Kirsten Harley, Diagnosed 2013, Australia

  • Marcel R. Wernard, Diagnosed 2016,  ALS Patients Connected,  The Netherlands

    Marcel R. Wernard, Diagnosed 2016, ALS Patients Connected, The Netherlands

  • Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

    Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

  • Hanne Stenmose, Muskelsvindfonden, Denmark

    Hanne Stenmose, Muskelsvindfonden, Denmark

  • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

    Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

  • Liz Ogg, Diagnosed 2013 , MND Scotland, UK

    Liz Ogg, Diagnosed 2013 , MND Scotland, UK

  • Andrea Zicchieri, Associazione conSLAncio Onlus, Italy

    Andrea Zicchieri, Associazione conSLAncio Onlus, Italy
    AndreaZicchieri_conSLAncioItaly

  • Ada Garrido Benavidez, Diagnosed 2016,  FYADENMAC, Mexico

    Ada Garrido Benavidez, Diagnosed 2016, FYADENMAC, Mexico

  • JP

    JP

  • Ian and Teresa Roberts

    Ian and Teresa Roberts

  • Nicholas (Nic) Bowman, MND Association of South Africa,  Diagnosed 2016,  Australia

    Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

  • Mark Miller

    Mark Miller

  • Brian Lovell, Diagnosed 2011 . MND Australia

    Brian Lovell, Diagnosed 2011 . MND Australia

  • Jean

    Jean
    jean

  • Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

    Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

  • Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

    Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

  • Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

    Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

  • Steve Gallagher, ALS Society of Canada

    Steve Gallagher, ALS Society of Canada
    Picture1

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

Learn more about the March of Faces

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