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International Alliance of ALS/MND Associations

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  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
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      • Nuedexta
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      • Amylyx – AMX0035
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“Day in the Life Of” Suite

One of the Most Powerful Experiences at the Allied Professionals Forum

What does daily life with ALS/MND truly look like, and how can care, technology, and innovation make it better?

The “Day in the Life Of” (DILO) Suite is a signature immersive experience at the Allied Professionals Forum that brings these questions to life in a practical, human way. Designed for healthcare professionals, allied specialists, researchers, people living with ALS/MND, caregivers, and industry partners, it recreates key moments in a typical day and showcases solutions that can support independence, communication, comfort, mobility, and quality of life.

Step Inside Real-World Solutions

As attendees move through the Suite, they experience a hands-on journey through the daily realities of living with ALS/MND and explore tools that can make a meaningful difference at every stage.

Featured technologies and solutions have included:

  • Eye gaze communication systems
  • Voice cloning technologies
  • Mechanical eating aids
  • Smart-home accessibility tools
  • Adaptive travel equipment
  • Mobility and positioning supports
  • Nutrition and swallowing solutions
  • Practical tools for caregivers

Throughout the experience, specialists are available for live demonstrations, practical guidance, and one-to-one conversations.

Participants consistently value the DILO Suite because it offers something rare: the chance to connect clinical knowledge with everyday life. They leave with practical ideas they can apply immediately, new approaches to patient-centred care, and firsthand experience with emerging technologies.

For many attendees, the DILO Suite has become one of the most memorable parts of the Allied Professionals Forum, offering a type of learning that traditional sessions cannot.

Whether you work in clinical care, research, advocacy, caregiving, or product development, the experience provides insights that stay with you long after the conference ends.

Watch the 2025 Walk-Through

Take a tour of the 2025 DILO Suite in the video below.

 

Primary Sidebar

  • Kirsten Harley,  Diagnosed 2013,  Australia

    Kirsten Harley, Diagnosed 2013, Australia

  • Olga Cosentino, Diagnosed 2013,  Asociación ELA Argentina

    Olga Cosentino, Diagnosed 2013, Asociación ELA Argentina

  • Ann Nicol

    Ann Nicol

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    Dawn Morton, Diagnosed 2014 , MND Scotland, UK

  • Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

    Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

  • Alan Liz Ogg 29042016 000799 lo res

    Alan Liz Ogg 29042016 000799 lo res

  • IMG_2658

    IMG_2658

  • Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

    Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

  • Eddy LeFrançois, Diagnosed 1992,  ALS Canada

    Eddy LeFrançois, Diagnosed 1992, ALS Canada

  • Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

    Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

  • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

  • Philip Brindle,  MND Association,  Diagnosed 2015,  England

    Philip Brindle, MND Association, Diagnosed 2015, England

  • Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

    Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

  • Chen Chun-Chin

    Chen Chun-Chin

  • Claudette Sturk, ALS Society of Canada

    Claudette Sturk, ALS Society of Canada
    Picture2

  • Michael Lee, Australia

    Michael Lee, Australia

  • Shay Rishoni

    Shay Rishoni

  • Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

    Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Imelda Arenas, ACELA, Colombia

    Imelda Arenas, ACELA, Colombia

  • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

    Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

  • Osiel Mendoza, Diagnosed 2016 ,  ALS Therapy Development Institute, USA

    Osiel Mendoza, Diagnosed 2016 , ALS Therapy Development Institute, USA

  • 727747090571358167

    727747090571358167

  • Duncan Bayly , MND Australia

    Duncan Bayly , MND Australia

  • Hollister

    Hollister
    hollister

  • Guoqiang Xu, Diagnosed 2016 , Shaanxi ALS Association, China

    Guoqiang Xu, Diagnosed 2016 , Shaanxi ALS Association, China

  • Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

    Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

  • Elkin Ramiro Gaviria Muñoz, Diagnosed December 2018

    Elkin Ramiro Gaviria Muñoz, Diagnosed December 2018

  • David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

    David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

  • Ian Gale, MND Australia

    Ian Gale, MND Australia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

    Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

  • 83

    83

  • 393647_2252248542053_984912751_n

    393647_2252248542053_984912751_n

  • Joyce Rusinak, Forbes Norris ALS Center, USA

    Joyce Rusinak, Forbes Norris ALS Center, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Bayley, Australia

    Bayley, Australia

  • Sébastien Batiot, Diagnosed 2012 , ARSLA, France

    Sébastien Batiot, Diagnosed 2012 , ARSLA, France

  • Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

    Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

  • Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

    Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

  • Phil Rossall, MND-Association, UK

    Phil Rossall, MND-Association, UK

  • Dad

    Dad

  • Andrietta

    Andrietta

  • Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

    Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

  • Art Eggert, USA

    Art Eggert, USA

  • Ian and Teresa Roberts

    Ian and Teresa Roberts

  • Norm MacIsaac,  ALS Society of Canada,  ALS Society of Quebec,  Diagnosed 2014

    Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014

Learn more about the March of Faces

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