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International Alliance of ALS/MND Associations

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“Day in the Life Of” Suite

A Signature Experience at the Allied Professionals Forum

What does daily life with ALS/MND truly look like, and how can care, technology, and innovation make it better?

The “Day in the Life Of” (DILO) Suite is a signature immersive experience at the Allied Professionals Forum that brings these questions to life in a practical, human way. Designed for healthcare professionals, allied specialists, researchers, people living with ALS/MND, caregivers, and industry partners, it recreates key moments in a typical day and showcases solutions that can support independence, communication, comfort, mobility, and quality of life.

Step Inside Real-World Solutions

As attendees move through the Suite, they experience a hands-on journey through the daily realities of living with ALS/MND and explore tools that can make a meaningful difference at every stage.

Featured technologies and solutions have included:

Eye gaze communication systems
Voice cloning technologies
Mechanical eating aids
Smart-home accessibility tools
Adaptive travel equipment
Mobility and positioning supports
Nutrition and swallowing solutions
Practical tools for caregivers

Throughout the experience, specialists are available for live demonstrations, practical guidance, and one-to-one conversations.

Learning Through Experience

The DILO Suite offers something that traditional sessions cannot: the opportunity to connect clinical knowledge with the realities of everyday life. Participants leave with practical ideas they can apply, new approaches to person-centred care, and firsthand experience with emerging technologies.

For many attendees, the DILO Suite is one of the most memorable parts of the Allied Professionals Forum. Whether you work in clinical care, research, advocacy, caregiving, or product development, the experience offers practical insights that can stay with you long after the Forum ends.

Watch the 2025 Walk-Through

Take a tour of the 2025 DILO Suite and see the experience in action.

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  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
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  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Chirag Walia, India

    Chirag Walia, India
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  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Hollister

    Hollister
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  • Anna Barrow, UK

    Anna Barrow, UK

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Rosie Riley, USA

    Rosie Riley, USA

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Greg Heydet, USA

    Greg Heydet, USA

  • Rob Tison, USA

    Rob Tison, USA

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Anita Forte, USA

    Anita Forte, USA

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Paul Launer, USA

    Paul Launer, USA

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Purningam Jacob, India

    Purningam Jacob, India

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Michael Lee, Australia

    Michael Lee, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Steve Lufkin, USA

    Steve Lufkin, USA
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  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

Learn more about the March of Faces

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