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International Alliance of ALS/MND Associations

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“Day in the Life Of” Suite

One of the Most Powerful Experiences at the Allied Professionals Forum

What does daily life with ALS/MND truly look like, and how can care, technology, and innovation make it better?

The “Day in the Life Of” (DILO) Suite is a signature immersive experience at the Allied Professionals Forum that brings these questions to life in a practical, human way. Designed for healthcare professionals, allied specialists, researchers, people living with ALS/MND, caregivers, and industry partners, it recreates key moments in a typical day and showcases solutions that can support independence, communication, comfort, mobility, and quality of life.

Step Inside Real-World Solutions

As attendees move through the Suite, they experience a hands-on journey through the daily realities of living with ALS/MND and explore tools that can make a meaningful difference at every stage.

Featured technologies and solutions have included:

  • Eye gaze communication systems
  • Voice cloning technologies
  • Mechanical eating aids
  • Smart-home accessibility tools
  • Adaptive travel equipment
  • Mobility and positioning supports
  • Nutrition and swallowing solutions
  • Practical tools for caregivers

Throughout the experience, specialists are available for live demonstrations, practical guidance, and one-to-one conversations.

Participants consistently value the DILO Suite because it offers something rare: the chance to connect clinical knowledge with everyday life. They leave with practical ideas they can apply immediately, new approaches to patient-centred care, and firsthand experience with emerging technologies.

For many attendees, the DILO Suite has become one of the most memorable parts of the Allied Professionals Forum, offering a type of learning that traditional sessions cannot.

Whether you work in clinical care, research, advocacy, caregiving, or product development, the experience provides insights that stay with you long after the conference ends.

Watch the 2025 Walk-Through

Take a tour of the 2025 DILO Suite in the video below.

 

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  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Purningam Jacob, India

    Purningam Jacob, India

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Susan Keldani, USA

    Susan Keldani, USA

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Lee Millard, England

    Lee Millard, England

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • David Hall, USA

    David Hall, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • David Watson, Scotland

    David Watson, Scotland

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Jack Buzby, USA

    Jack Buzby, USA

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Phil Rossall, UK

    Phil Rossall, UK

Learn more about the March of Faces

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