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Asociación Española de Esclerosis Lateral Amiotrófica Actividades

(ADELA)
Spain
Date founded: May 1990
Region covered:

Spain


Address:

C. Emilia, 51 - Local
28029 Madrid


Asociación Española de Esclerosis Lateral Amiotrófica Actividades Activities

  • Provides information and advice to people with ALS/MND and their families
  • Coordinates activities of volunteers providing support and raising funds
  • Supports network of regional care advisors in advising families and professionals
  • Serves as a link for nationwide equipment loan scheme providing communication aids, chairs, bed elevators, etc
  • Provides home care support
  • Forms public opinion (newspapers, TV, Internet)
  • Raises awareness of the disease
  • Conducts conferences and courses (people with ALS/MND and their families, and health professionals)
  • Provides emotional support to specialists, including psychologists
  • Maintains contact with 4000 people with ALS/MND

Asociación Española de Esclerosis Lateral Amiotrófica Actividades Branches/Chapters

1

Contacts

  • Adriana Guevara, President

Phone:

+34 91 311 3530

Email:

adela@adelaweb.org

Website:

adelaweb.org

Facebook:

www.facebook.com/Asociacion.ELA

Twitter:

twitter.com/AsociacionELA

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