Spain
Date founded: May 1990
Region covered:
Date founded: May 1990
Region covered:
Spain
Address:
C. Emilia, 51 - Local
28029 Madrid
Asociación Española de Esclerosis Lateral Amiotrófica Actividades Activities
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Provides information and advice to people with ALS/MND and their families
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Coordinates activities of volunteers providing support and raising funds
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Supports network of regional care advisors in advising families and professionals
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Serves as a link for nationwide equipment loan scheme providing communication aids, chairs, bed elevators, etc
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Provides home care support
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Forms public opinion (newspapers, TV, Internet)
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Raises awareness of the disease
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Conducts conferences and courses (people with ALS/MND and their families, and health professionals)
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Provides emotional support to specialists, including psychologists
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Maintains contact with 4000 people with ALS/MND
Asociación Española de Esclerosis Lateral Amiotrófica Actividades Branches/Chapters
1
Contacts
- Adriana Guevara, President