Taiwan Motor Neuron Disease Association

Taiwan
Date founded: Oct 1996
Region covered:

Taiwan

Headquarters, Taipei:
7F-1, No. 2 Minzu E. Rd., Zhongshan District, Taipei 10461, Taiwan
Tel: +886 2 2585 1367
Fax: +886 2 2585 1302

Taichung Office:
1F., No. 13 Jiangong St., East Dist., Taichung City 40150, Taiwan
Tel: +886 4 2280 4832
Fax: +886 4 2280 4846

Kaohsiung Office:
15F, No.46, Yichang Rd., Sanmin Dist., Kaohsiung City 80780, Taiwan
Tel: +886 7 389 6930
Fax: +886 7 398 0380

To promote the patient’s willingness to use hospice care, even those who do not choose to prolong their lives by using a ventilator in the advanced stage of the disease.
To cooperate with academic research projects for developing useful communication tools such as an eye-tracking device for ALS patients.
To stimulate volunteerism and organise a training course for volunteers who will be able to assist ALS patient families directly or through telephone consultation.
To increase the awareness of ALS disease in our society.
To publish a second edition of the ALS Handbook, which will include disease awareness, medical care psychological adjustments and social resources.
To distribute our bi-annual ALS magazine to members, ALS patients and their families.
To organise workshops and seminars focusing on general medical and caring skills for ALS patients and families.
To produce videotapes and other instructional materials on general medical care and guidance for ALS patients.
To expand the requirements for home care.

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