ALS Association Webinar Series: Connected Through the ALS Journey
May 12 - May 14
Connected Through the ALS Journey: Support, Resources, and Community
May 12 @ 2:00 pm – 3:30 pm EDT
May 13 @ 2:00 pm – 3:30 pm EDT
May 14 @ 2:00 pm – 3:30 pm EDT
Living with ALS can feel overwhelming and isolating. Throughout the ALS journey, connection matters.
This special ALS Awareness Month webinar series emphasizes that no one has to navigate ALS alone. Across three sessions, we’ll explore how connection can reduce isolation and improve quality of life. Learn how to connect with experienced Care Services professionals, access programs that support independence, and build meaningful connections with others living this journey.
Whether you are newly diagnosed or further along in your ALS journey, this series will help you discover resources and relationships that can support you every step of the way.
Your Connection to Support: The ALS Care Navigation Program
Tuesday, May 12, 2026 @ 2:00 pm – 3:30 pm EDT
One of the most important connections in the ALS journey is your ALS Care Navigation team. Care Services professionals are here to support individuals living with ALS and their families from diagnosis through every stage of the journey. In this session, you will learn how ALS Care Navigators can help you find resources, answer questions, solve problems, and provide emotional support. Whether you need help finding equipment, understanding services, or simply someone to talk to who understands ALS, your Care Navigation team is here for you. This session will help you understand how to make the most of this important connection and how Care Navigators can support you throughout your ALS journey.
Speakers: Tara Dhakal and Norriell Richards
Supporting Independence: Programs and Equipment That Help You Live Well with ALS
Wednesday, May 13, 2026 @ 2:00 pm – 3:30 pm EDT
ALS brings changes, but the right tools and support can help you maintain independence, safety, and quality of life. This session will introduce key ALS Association programs that support daily living, including durable medical equipment resources, virtual home assessments, ramp programs, and communication support through alternative and augmentative communication (AAC). In this session, you will learn what resources are available, how to access them, and how these programs can help you adapt to changes throughout the ALS journey.
Speakers: Steve Morse, Haley Holland, and Matt Gonzalez
Finding Community: Connecting with Others in the ALS Journey
Thursday, May 14, 2026 @ 2:00 pm – 3:30 pm EDT
Living with ALS can feel isolating, but connection with others who understand can make a powerful difference. This session will explore the many ways individuals and families can connect with the ALS community, including support groups, events such as the Walk to Defeat ALS, advocacy opportunities, and special events like Lou Gehrig Day at Major League Baseball parks. You will learn how connecting with others can reduce isolation, build strength, and create meaningful relationships throughout the ALS journey.
Speakers: Jennifer Myhre, Daniel Cramer, Allison Lardner, and Cary Justmann