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ALS Town Hall from ALS TDI: Light the Way – A New Approach to Genetic Testing
April 3 @ 3:00 pm - 4:00 pm EDT
Wednesday, April 3, 2024 | 3:00 – 4:00pm EDT
Participate in our upcoming ALS Town Hall on April 3rd to hear how ALS scientists, advocates, innovators, and gene carriers have collaborated to develop the “Light the Way” program.
With the recent approval of a new gene therapy for people living with SOD1 ALS and the potential for IVF to prevent passing on genes to future generations, it is now more important than ever to offer comprehensive genetic education, counseling, and rapid testing to the whole community. However research suggests there are inconsistent approaches and multiple barriers to getting people the information and support they need.
Hear from researcher-turned-advocate Dr Paul Wicks how with the support of a grant from the UK government, his team at Sano Genetics have built a new online platform that offers no-cost genetic education, counseling, testing, peer support, and connection to research. Ultimately, the goal is to build a multi-language, multi-national platform that could pave the way for clinical trials in gene carriers to prevent ALS from starting in the first place.
Why should you attend?
- Understand the pros and cons of knowing your genetic status
- Learn more about the Light the Way genetics program
- Engage with the ALS community
- Ask questions straight from the source