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International Alliance of ALS/MND Associations

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Global CRLI

October 20–29, 2025 | Virtual

The Global Clinical Research Learning Institute (CRLI) is an online learning program for people affected by ALS/MND who want to better understand research and take part in advocacy. It’s designed to empower participants to read, discuss, and share scientific information, ultimately helping shape the future of ALS/MND research.

2025 Applications

This is the first time the Alliance is offering this virtual program. Whether you’re living with ALS/MND, a caregiver, or have a family connection to the disease, we invite you to apply.

The application period for 2025 is now closed. Thank you to all those who applied. 

About the Program

The Global CRLI is a virtual program for people impacted by ALS/MND worldwide who want to expand their understanding of ALS/MND research and engage more deeply in advocacy and research initiatives. It is modelled on the successful NEALS CRLI, which also served as an inspiration for national initiatives in Canada and Australia.

The program includes:

  •  Sessions led by an international faculty of clinicians and researchers on ALS/MND research and clinical trials

  • Group discussions and peer learning

  • Training on how to read and talk about scientific papers

  • Conversations about research ethics, informed consent, and how to advocate for better research

See the Global CRLI Preliminary Program.

Program Details

  • When: October 20–29, 2025

  • Where: Online via Zoom

  • Time: Sessions are mostly held in the morning (Eastern Time), with some evening sessions. You’ll also get recordings if you can’t attend live.

  • Language: English ( (Translation captions may be offered, depending on demand.)

Who Should Apply?

When people affected by ALS/MND are included in research conversations, it leads to better understanding, stronger advocacy, and more meaningful research. You are invited to apply if you have a personal connection to ALS/MND.

To participate, you need a device with internet and a webcam, have time to attend most sessions live or watch recordings, and a willingness to learn and contribute to discussions.

Each applicant must submit a separate application. (Note: Caregivers do not need to submit a separate form if the person living with ALS/MND who they support is applying.)

If you’re selected to join the Global CRLI, we ask that you review program materials and come prepared to each session, share what you learn with your community, and embrace your role as a Global ALS/MND Research Ambassador once the program is complete. 

Thank You to Our Supporters 

Primary Sidebar

  • Len Johnrose,  MND Association,  Diagnosed 2017,  England

    Len Johnrose, MND Association, Diagnosed 2017, England

  • Norm MacIsaac,  ALS Society of Canada,  ALS Society of Quebec,  Diagnosed 2014

    Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014

  • Willi Klein

    Willi Klein

  • Lombana, Spain

    Lombana, Spain

  • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Ailsa Malcolm-Hutton, Diagnosed 2013,  MND Association of England, Wales and N Ireland

    Ailsa Malcolm-Hutton, Diagnosed 2013, MND Association of England, Wales and N Ireland

  • Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

    Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Daniel Hare

    Daniel Hare

  • Richard Clark, MND New Zealand,  Diagnosed 2011

    Richard Clark, MND New Zealand, Diagnosed 2011

  • Andrietta

    Andrietta

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Joanne Pratt, Diagnosed 2011 , MND Australia

    Joanne Pratt, Diagnosed 2011 , MND Australia

  • Paul Launer, USA

    Paul Launer, USA

  • 83

    83

  • Fabio Correia

    Fabio Correia

  • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

  • Sébastien Batiot, Diagnosed 2012 , ARSLA, France

    Sébastien Batiot, Diagnosed 2012 , ARSLA, France

  • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

  • Mike Small, Motor Neurone Disease (MND) Association, UK

    Mike Small, Motor Neurone Disease (MND) Association, UK

  • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    Dawn Morton, Diagnosed 2014 , MND Scotland, UK

  • Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

    Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

  • Mike Rannie,  ALS Canada,  Diagnosed 2017

    Mike Rannie, ALS Canada, Diagnosed 2017

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

    Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

  • March of Faces Photo Submission_OLGA_ELA ARGENTINA

    March of Faces Photo Submission_OLGA_ELA ARGENTINA

  • Lachlan Terry,  MND Australia,  Diagnosed 2015

    Lachlan Terry, MND Australia, Diagnosed 2015

  • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

  • Marcel R. Wernard, Diagnosed 2016,  ALS Patients Connected,  The Netherlands

    Marcel R. Wernard, Diagnosed 2016, ALS Patients Connected, The Netherlands

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Hollister

    Hollister
    hollister

  • Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

    Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

  • Shera Mukherjee, Diagnosed 2013,  Asha Ek Hope Foundation, India

    Shera Mukherjee, Diagnosed 2013, Asha Ek Hope Foundation, India

  • Cath Muir

    Cath Muir
    Cath

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Anita Forte, Les Turner ALS Foundation, USA

    Anita Forte, Les Turner ALS Foundation, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Steve

    Steve

  • Susan Anderson, Diagnosed 2014 , Hope Loves Company,  USA

    Susan Anderson, Diagnosed 2014 , Hope Loves Company, USA

  • Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

    Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

  • Zelina Brito, Diagnosed 2018, Brazil

    Zelina Brito, Diagnosed 2018, Brazil

  • Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

    Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

  • Fabio Carvalho

    Fabio Carvalho

  • Kirsty Gerlach, MND New Zealand, Diagnosed 2017

    Kirsty Gerlach, MND New Zealand, Diagnosed 2017

  • Frank "Papa" Taylor, USA

    Frank “Papa” Taylor, USA

  • Liong Ting Ngu, MND Malaysia, Diagnosed 2014

    Liong Ting Ngu, MND Malaysia, Diagnosed 2014

  • Chih Ching Darren Wong, MND Malaysia

    Chih Ching Darren Wong, MND Malaysia

  • Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

    Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

  • Michael Lee, Australia

    Michael Lee, Australia

Learn more about the March of Faces

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