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International Alliance of ALS/MND Associations

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Global CRLI

October 20–29, 2025 | Virtual

The Global Clinical Research Learning Institute (CRLI) is an online learning program for people affected by ALS/MND who want to better understand research and take part in advocacy. It’s designed to empower participants to read, discuss, and share scientific information, ultimately helping shape the future of ALS/MND research.

2025 Applications

This is the first time the Alliance is offering this virtual program. Whether you’re living with ALS/MND, a caregiver, or have a family connection to the disease, we invite you to apply.

The application period for 2025 is now closed. Thank you to all those who applied. 

About the Program

The Global CRLI is a virtual program for people impacted by ALS/MND worldwide who want to expand their understanding of ALS/MND research and engage more deeply in advocacy and research initiatives. It is modelled on the successful NEALS CRLI, which also served as an inspiration for national initiatives in Canada and Australia.

The program includes:

  •  Sessions led by an international faculty of clinicians and researchers on ALS/MND research and clinical trials

  • Group discussions and peer learning

  • Training on how to read and talk about scientific papers

  • Conversations about research ethics, informed consent, and how to advocate for better research

See the Global CRLI Preliminary Program.

Program Details

  • When: October 20–29, 2025

  • Where: Online via Zoom

  • Time: Sessions are mostly held in the morning (Eastern Time), with some evening sessions. You’ll also get recordings if you can’t attend live.

  • Language: English ( (Translation captions may be offered, depending on demand.)

Who Should Apply?

When people affected by ALS/MND are included in research conversations, it leads to better understanding, stronger advocacy, and more meaningful research. You are invited to apply if you have a personal connection to ALS/MND.

To participate, you need a device with internet and a webcam, have time to attend most sessions live or watch recordings, and a willingness to learn and contribute to discussions.

Each applicant must submit a separate application. (Note: Caregivers do not need to submit a separate form if the person living with ALS/MND who they support is applying.)

If you’re selected to join the Global CRLI, we ask that you review program materials and come prepared to each session, share what you learn with your community, and embrace your role as a Global ALS/MND Research Ambassador once the program is complete. 

Primary Sidebar

  • March of Faces Photo Submission_ALEX_ELA ARGENTINA

    March of Faces Photo Submission_ALEX_ELA ARGENTINA

  • H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

    H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

  • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    Dawn Morton, Diagnosed 2014 , MND Scotland, UK

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

    Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

  • Bjarne Hytjanstorp, ALS Norge, Norway

    Bjarne Hytjanstorp, ALS Norge, Norway

  • Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

    Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

  • Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    Yessenia Hernandez Mendoza, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

  • Dad

    Dad

  • Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

    Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

  • João Marcos Andrietta, Diagnosed 2008 , ABrELA, Brazil

    João Marcos Andrietta, Diagnosed 2008 , ABrELA, Brazil

  • Jo Knowlton and her dog, Scotland

    Jo Knowlton and her dog, Scotland

  • Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

    Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

  • Len Johnrose,  MND Association,  Diagnosed 2017,  England

    Len Johnrose, MND Association, Diagnosed 2017, England

  • Den Haag, Diagnosed 2016 , The Netherlands

    Den Haag, Diagnosed 2016 , The Netherlands

  • Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

    Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Wilfried Leusing

    Wilfried Leusing

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Eddy LeFrançois, Diagnosed 1992,  ALS Canada

    Eddy LeFrançois, Diagnosed 1992, ALS Canada

  • Graham Johnson, MND Australia

    Graham Johnson, MND Australia

  • Elkin Ramiro Gaviria Muñoz, Diagnosed December 2018

    Elkin Ramiro Gaviria Muñoz, Diagnosed December 2018

  • Jan Zuring, Diagnosed 2010 , The Netherlands

    Jan Zuring, Diagnosed 2010 , The Netherlands

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

    Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

  • Conny van der Meijden, Diagnosed 2001,  ALS Netherlands

    Conny van der Meijden, Diagnosed 2001, ALS Netherlands

  • Ali Var, Turkey

    Ali Var, Turkey

  • Christian Bär, Germany

    Christian Bär, Germany

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Brigitte Wernli,  Association ALS Switzerland,  Diagnosed 2014

    Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014

  • Chih Ching Darren Wong, MND Malaysia

    Chih Ching Darren Wong, MND Malaysia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • March of Faces Photo Submission_OLGA_ELA ARGENTINA

    March of Faces Photo Submission_OLGA_ELA ARGENTINA

  • Leon Ryba, Asociación ELA Argentina

    Leon Ryba, Asociación ELA Argentina

  • Joy Blakeley, Diagnosed 2017 , MND Australia

    Joy Blakeley, Diagnosed 2017 , MND Australia

  • Oliver Juenke, DGM, Germany

    Oliver Juenke, DGM, Germany

  • Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

    Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

  • Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

    Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

  • Bayley, Australia

    Bayley, Australia

  • Bob Simonds and Drew O'Neill , Les Turner ALS Foundation, USA

    Bob Simonds and Drew O’Neill , Les Turner ALS Foundation, USA

  • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

  • Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

    Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

    Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

  • David Bishop

    David Bishop

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

    Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

Learn more about the March of Faces

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