Allied Professionals Forum – Day 2

Online

This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND.

ALS/MND Connect

Online

ALS/MND Connect is an open session which allows people living with ALS/MND and their caregivers to attend an afternoon of presentations by neurologists and researchers .

Webinar: CARE PART 3: END OF LIFE

Zoom Webinar

This is not an easy topic, but one that is important to discuss. In this webinar we will provide PALS and CALS with guidance on how to address this stage of their journey, and what to look for in support and planning resources.

Global Day for ALS/MND Awareness

Every year the International Alliance of ALS/MND Associations celebrates 21 June as the global day of recognition of ALS/MND – a disease that affects people in every country of the globe. ALS/MND  is a global problem. It does not discriminate on the basis of race, ethnicity, socioeconomic status or region. There are people living with ALS/MND all […]

Webinar: SCIENTIFIC ADVISORY COUNCIL UPDATE

Zoom Webinar

Join us for the mid-year update from the Scientific Advisory Council. This interactive webinar will be informative but will also give you the opportunity to ask questions.

Webinar: App Demonstration

Zoom Webinar

Join us in this webinar where we will be demonstrating applications that can help people living with ALS/MND with their communication. Panel: Alper Kaya (Co-Chair of the Turkish ALS/MND Association & Person living with ALS/MND and Richard Cave (Speech and Language Therapist & Project Manager for MND Association).

Webinar: WHAT DO I NEED TO KNOW ABOUT CLINICAL TRIALS

Zoom Webinar

Join us for the first webinar of our Cure in ALS/MND series: What do I need to know about clinical trials? In this webinar we will learn more about the importance of clinical trials, how to find a suitable clinical trial, what to consider if you want to take part and next steps.

TMNDA 25th Anniversary Press Conference

To celebrate the 25th Anniversary of Taiwan MND Association (TMNDA) endeavoring to empower people with ALS to live a better life, we'll launch a two-week Interactive Digital Art Exhibition, FLY HIGH & SHINE, from September 1st to 13th, 2022. We’ll host a press conference from 1030-1130am on September 1st, Thursday.

A Day of Caring for Caregivers

This is a special day designed for those providing care to People with ALS. This invitation is for primary caregivers, family members, friends and former caregivers.

Webinar: INNOVATION IN CLINICAL TRIAL DESIGN Copy

Zoom Webinar

Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical implications for our community.

Webinar: VOICE BANKING Copy

Zoom Webinar

In this webinar we will learn more about the assistive technology of voice banking, how it works, when in the ALS/MND journey should it be done, and how to get access.

Webinar: GENETICS – COUNSELLING & TESTING

Zoom Webinar

Join us in the second webinar of our Cure in ALS/MND series: Genetics – Counselling and Testing. This webinar will provide an update on the latest in ALS/MND Genetics and what is happening in the field.