A diagnosis of ALS/MND can generate a range of emotions, for both the patient and their caregivers. Patients can experience anxiety and depression, feel isolated, and often feel like a […]
A chance for representatives of ALS/MND associations from around the world to discuss best practice in care, support, technology, science and organisational development.
A chance for representatives of ALS/MND associations from around the world to discuss best practice in care, support, technology, science and organisational development.
This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND.
This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND.
ALS/MND Connect is an open session which allows people living with ALS/MND and their caregivers to attend an afternoon of presentations by neurologists and researchers .
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This is not an easy topic, but one that is important to discuss. In this webinar we will provide PALS and CALS with guidance on how to address this stage […]
Every year the International Alliance of ALS/MND Associations celebrates 21 June as the global day of recognition of ALS/MND – a disease that affects people in every country of the […]
Join us for the mid-year update from the Scientific Advisory Council. This interactive webinar will be informative but will also give you the opportunity to ask questions.
Join us in this webinar where we will be demonstrating applications that can help people living with ALS/MND with their communication. Panel: Alper Kaya (Co-Chair of the Turkish ALS/MND Association & […]
Join us for the first webinar of our Cure in ALS/MND series: What do I need to know about clinical trials? In this webinar we will learn more about the […]
To celebrate the 25th Anniversary of Taiwan MND Association (TMNDA) endeavoring to empower people with ALS to live a better life, we'll launch a two-week Interactive Digital Art Exhibition, FLY HIGH […]
This is a special day designed for those providing care to People with ALS. This invitation is for primary caregivers, family members, friends and former caregivers.
Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical […]
In this webinar we will learn more about the assistive technology of voice banking, how it works, when in the ALS/MND journey should it be done, and how to get […]
Join us in the second webinar of our Cure in ALS/MND series: Genetics – Counselling and Testing. This webinar will provide an update on the latest in ALS/MND Genetics and […]
The 2022 Alliance Meeting will be held on November 28, 29 & 30, 2022 in a hybrid format – both virtually and in San Diego, California, USA! The Alliance Meeting […]
The 2022 Allied Professionals Forum will be held on November 30, December 1 & December 2, 2022 in a hybrid format – both virtually and in San Diego, California, USA! […]
Learn about the importance of clinical trials, how to find a suitable clinical trial, and what to consider if you want to take part and next steps. Moderated by Rachael […]
Join us in an informal conversation with the 2022 Award winners on their careers, and their contributions to the field of ALS/MND. Panellists include Sally Light (Humanitarian Award recipient), Dr. […]
Familial or sporadic ALS/MND, the importance of genetic counselling and testing can´t be emphasized enough. Join us for this scenario-based discussion which will look at real situations ranging from an […]
Student projects in ALS/MND.
A panel with occupational therapists in ALS/MND providing recommendations for PALS at different stages of their journey. Tips, considerations, and what can be done at home.
Join us for the mid-year update from the Scientific Advisory Council.
In this Learning Series webinar, Professor Samar Aoun will share key findings and advice on enabling social networks to support people living with ALS/MND, making palliative care more widely accessible. […]
The International Alliance of ALS/MND Associations surveyed the community about the Fundamental Rights of People living with ALS/MND and Caregivers. Learn more about the data, strengths and weaknesses at a […]
