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International Alliance of ALS/MND Associations
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What is ALS/MND
Find a Member Association
Support for PALS & CALS
Fundamental Rights for People with ALS/MND and Caregivers
Research
Voice Preservation
Open Science
Expanded Access
Understanding ALS/MND Research
Improving Regulatory Pathways
Right to Try
US FDA Orphan Drug Designation
Unproven (Off-Label) Treatments
Open Label Extension
Advocacy
Advocacy Toolkit
Emergency Preparedness Toolkit
Equitable Access to Therapies
Recommendations for Trial Sponsors
Clinical Care
Genetic Counselling & Testing
Mental Health Support
Nursing and Symptom Management
Nutrition and Swallowing
Occupational Therapy and Activities of Daily Living
Physiotherapy and Mobility
Respiratory Care
Speech Therapy and Communication
Support for Family & Caregivers
Technology
Global Clinic Locator
Drugs in Development
AB Science – Masitinib
BrainStorm Cell Therapeutics – NurOwn
Clene Nanomedicine – CNM-Au8
Collaborative Medicinal Development – CuATSM
ILB – Tikomed
Kadimastem – AstroRx
Mitsubishi Tanabe Pharma America – Oral Edaravone
Neuronata-R/Lenzumestrocel
NeuroSense – PrimeC
Neuvivo – NP001
Prilenia Therapeutics – Pridopidine
SOD1 Therapies & Trials
T Regulatory Cell Therapies
Ulefnersen – Ionis Pharmaceuticals
Approved Drugs
Nuedexta
Radicava/Edaravone
Riluzole/Tiglutik
Rozebalamin/Methylcobalamin
Tofersen/Qalsody
Drugs No Longer in Development
Amylyx – AMX0035
Collaborative Medicinal Development – CuATSM
Cytokinetics – Reldesemtiv
Orphazyme – Arimoclomol
TUDCA Trial
Support for Health Professionals
Breaking the News in ALS/MND
Diagnostic Delay (in development)
Events/Programs
Calendar of Events/Programs
Alliance Meeting
Allied Professionals Forum
Alliance Webinars
ALS/MND Connect
Global Day Calendar
March of Faces
Patient Fellows Program
Global CRLI
International Symposium
About
Who We Are
ALS/MND Health Literacy Map
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PALS and CALS Advisory Council
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2026 Calendar Project
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