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2025 AGM Information

Notice of Annual General Meeting & Call for Resolutions

This is notice that the Annual General Meeting (AGM) of the members of the International Alliance of ALS/MND Associations will be held in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario (Canada), and virtually:

  • November 29, 2025
  • 7:00 am to 8:30 am ET

We value our members’ input. If you’d like to submit an agenda item or resolution, please use the links below to fill out a form.

  • Call for Agenda Items
  • Call for Resolutions

The deadline to submit agenda items and resolutions is September 19, 2025.

Thank you to our members who have submitted a nomination for the Board of Directors. Nominations are now closed.

Please see the full2025 Notice of AGM & Call for Resolutions.

Meeting Materials – to follow 

  • 2025 AGM Agenda
  • 2024 AGM Minutes
  • Year-end Financial Statements
  • 2024-2025 Annual Report

Proxy Vote Instructions & Form

  1. As a member of the Charity, you are entitled to appoint a proxy to exercise all or any of your rights to attend, speak and vote at the meeting.
  2. You can only appoint a proxy using the procedures set out in these notes.
  3. A proxy must be an authorized representative of the member (no other individuals are permitted to be proxies) and must attend the meeting to represent you.
  4. If no voting indication is given, your proxy will vote or abstain from voting on the resolutions put to the meeting at their discretion.
  5. Unless the proxy appointment indicates otherwise, it will be treated as:
    • allowing your proxy to vote (or abstain from voting) as they think fit in relation to the limited range of additional resolutions which may be put before the meeting; and
    • appointing your proxy in relation to any adjournment of the meeting.
  6. Proxy appointments must be using the form below or in writing and emailed to the Secretary of the Charity, Catherine Cummings at cummings@als-mnd.org
  7. The proxy appointments must be notified to the Secretary of the Charity before the commencement of the meeting.
  8. If you are completing the proxy appointment under the authority of a power of attorney or any other authority you must send the relevant document or a certified copy to the Secretary of the Charity when you return the proxy appointment.
  9. If you wish to change your proxy instructions, you can submit another appointment in the way indicated above. The appointment received last before the latest time for the receipt of proxies will take precedence.
  10. If you wish to revoke your proxy instructions, you can send a notice to the Secretary of the Charity in any of the ways described at note 6 above, clearly stating that the instructions are revoked. The revocation must be received by the Secretary of the Charity no later than the commencement of the meeting.
  11. Appointment of a proxy does not preclude you from attending the meeting and voting yourself. If you have appointed a proxy and you attend the meeting and cast a vote yourself, your proxy is no longer entitled to vote for you.
  12. You may only communicate with the Charity about the meeting and appointing a proxy for the meeting using the addresses at note 6 No other methods of communication will be accepted.

2025 Proxy Form

As a member of the Charity, you are entitled to appoint a proxy through this form to exercise all or any of your rights to attend, speak and vote at the meeting.

This field is hidden when viewing the form

2025 Proxy Form

It is the responsibility of the member to determine whether the person to whom they assign the proxy is able and agrees to act in the manner described. Please ensure submission of the completed proxy to the International Alliance of ALS/MND Associations no later than November 23, 2025, at 5:00 pm ET.
Your Name(Required)
I, a voting member in good standing of the International Alliance of ALS/MND Associations, hereby appoint the following person as my proxy to attend, act, and vote on my behalf at the Annual General Meeting of members to be held in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario Canada and virtually on November 29, 2025, at 7:00 am ET (including adjournments thereof).(Required)
Failing the person named above, I hereby give my proxy to the following person.(Required)
OR (complete only if you wish to name someone other than the above as your proxy) I hereby appoint the following person, a voting member in good standing, as my proxy to attend, act, and vote on my behalf at the Annual General Meeting of members to be held in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario Canada and virtually on November 29, 2025, at 7:00 am ET (including adjournments thereof).
By completing the following boxes, the signing party listed below digitally confirms the proxy appointment.

Primary Sidebar

  • Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

    Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

  • Peng Yi-Wen

    Peng Yi-Wen

  • Nicholas (Nic) Bowman, MND Association of South Africa,  Diagnosed 2016,  Australia

    Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

  • Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

    Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

  • David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

    David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

  • Susan Keldani, Les Turner ALS Foundation, USA

    Susan Keldani, Les Turner ALS Foundation, USA

  • Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

    Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

  • Bob Simonds and Drew O'Neill , Les Turner ALS Foundation, USA

    Bob Simonds and Drew O’Neill , Les Turner ALS Foundation, USA

  • Brian Parsons

    Brian Parsons

  • Willi Klein

    Willi Klein

  • Phil Rossall, MND-Association, UK

    Phil Rossall, MND-Association, UK

  • Glen Elison,  ALS Hope Foundation,  Diagnosed 2019,  USA

    Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

  • Armando González Gómez, ACELA, Colombia

    Armando González Gómez, ACELA, Colombia

  • Susan Anderson, Diagnosed 2014 , Hope Loves Company,  USA

    Susan Anderson, Diagnosed 2014 , Hope Loves Company, USA

  • Shay Rishoni

    Shay Rishoni

  • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

  • Mauril Bélanger, Diagnosed 2015 , ALS Canada

    Mauril Bélanger, Diagnosed 2015 , ALS Canada

  • Ian Gale, MND Australia

    Ian Gale, MND Australia

  • Wendy Hendrickson, ALS Hope Foundation, USA

    Wendy Hendrickson, ALS Hope Foundation, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Mike Rannie,  ALS Canada,  Diagnosed 2017

    Mike Rannie, ALS Canada, Diagnosed 2017

  • Liz Ogg, Diagnosed 2013 , MND Scotland, UK

    Liz Ogg, Diagnosed 2013 , MND Scotland, UK

  • Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

    Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

  • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

  • Sébastien Batiot, Diagnosed 2012 , ARSLA, France

    Sébastien Batiot, Diagnosed 2012 , ARSLA, France

  • Liong Ting Ngu, MND Malaysia, Diagnosed 2014

    Liong Ting Ngu, MND Malaysia, Diagnosed 2014

  • Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

    Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

  • March of Faces Photo Submission_OLGA_ELA ARGENTINA

    March of Faces Photo Submission_OLGA_ELA ARGENTINA

  • John Dinon, MND Australia

    John Dinon, MND Australia

  • Jo Knowlton and her dog, Scotland

    Jo Knowlton and her dog, Scotland

  • Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

    Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

  • IMG_2658

    IMG_2658

  • England-Lee-Millard, UK

    England-Lee-Millard, UK

  • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

    Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

  • David Watson,  MND Scotland,  Diagnosed 2018

    David Watson, MND Scotland, Diagnosed 2018

  • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

  • Leon Ryba, Asociación ELA Argentina

    Leon Ryba, Asociación ELA Argentina

  • Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

    Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

  • Graham Johnson, MND Australia

    Graham Johnson, MND Australia

  • Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

    Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Oliver Juenke, DGM, Germany

    Oliver Juenke, DGM, Germany

  • Osiel Mendoza, Diagnosed 2016 ,  ALS Therapy Development Institute, USA

    Osiel Mendoza, Diagnosed 2016 , ALS Therapy Development Institute, USA

  • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    Dawn Morton, Diagnosed 2014 , MND Scotland, UK

  • Alan Liz Ogg 29042016 000799 lo res

    Alan Liz Ogg 29042016 000799 lo res

  • Frank "Papa" Taylor

    Frank “Papa” Taylor

  • Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

  • H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

    H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Richard Clark, MND New Zealand,  Diagnosed 2011

    Richard Clark, MND New Zealand, Diagnosed 2011

Learn more about the March of Faces

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