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2025 AGM Information

Notice of Annual General Meeting

This is a notice regarding the International Alliance of ALS/MND Associations’ Annual General Meeting (AGM), taking place virtually via Zoom and in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario, Canada.

Date: Saturday, November 29, 2025
Time: 7:00–8:30 am EST 
Zoom link: https://us02web.zoom.us/j/6212859565?omn=81799817727

Thank you to our members who submitted agenda items or resolutions. The submission period is now closed.

Thank you to our members who submitted a nomination for the Board of Directors. Nominations are now closed.

Meeting Materials

  • 2025 AGM Agenda
  • 2024 AGM Minutes
  • Year-end Financial Statements
  • 2024-2025 Annual Report

Voting

Voting will be conducted by a show of hands from in-person and virtual participants at the meeting. 

Members will vote on the following items: 

  • Approval of 2024 AGM Minutes
  • Appointment of new Trustees
  • Receipt of the 2024-2025 accounts
  • Appointment of an Independent Examiner
  • Fixing of the annual subscriptions

Questions

The Alliance welcomes your questions in advance of the AGM. Please send them to cathy.cummings@als-mnd.org. You will also have the opportunity to ask questions during the AGM. 

Proxy Vote Instructions & Form

  1. As a member of the Charity, you are entitled to appoint a proxy to exercise all or any of your rights to attend, speak, and vote at the meeting.
  2. You can only appoint a proxy using the procedures set out in these notes.
  3. A proxy must be an authorized representative of the member (no other individuals are permitted to be proxies) and must attend the meeting to represent you.
  4. If no voting indication is given, your proxy will vote or abstain from voting on the resolutions put to the meeting at their discretion.
  5. Unless the proxy appointment indicates otherwise, it will be treated as:
    • allowing your proxy to vote (or abstain from voting) as they see fit in relation to the limited range of additional resolutions which may be put before the meeting; and
    • appointing your proxy in relation to any adjournment of the meeting.
  6. Proxy appointments must be made using the form below or in writing and emailed to the Secretary of the Charity, Catherine Cummings, at cathy.cummings@als-mnd.org.
  7. The proxy appointments must be notified to the Secretary of the Charity before the commencement of the meeting.
  8. If you are completing the proxy appointment under the authority of a power of attorney or any other authority, you must send the relevant document or a certified copy to the Secretary of the Charity when you return the proxy appointment.
  9. If you wish to change your proxy instructions, you may submit another appointment in the way indicated above. The appointment received last before the latest time for the receipt of proxies will take precedence.
  10. If you wish to revoke your proxy instructions, you may send a notice to the Secretary of the Charity in any of the ways described at note 6 above clearly stating that the instructions are revoked. The revocation must be received by the Secretary of the Charity no later than the commencement of the meeting.
  11. Appointment of a proxy does not preclude you from attending the meeting and voting yourself. If you have appointed a proxy and you attend the meeting and cast a vote yourself, your proxy is no longer entitled to vote on your behalf.
  12. You may only communicate with the Charity about the meeting and appointing a proxy for the meeting using the addresses at note 6. No other methods of communication will be accepted.

2025 Proxy Form

As a member of the Charity, you are entitled to appoint a proxy through this form to exercise all or any of your rights to attend, speak and vote at the meeting.

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2025 Proxy Form

It is the responsibility of the member to determine whether the person to whom they assign the proxy is able and agrees to act in the manner described. Please ensure submission of the completed proxy to the International Alliance of ALS/MND Associations no later than November 23, 2025, at 5:00 pm ET.
Your Name(Required)
I, a voting member in good standing of the International Alliance of ALS/MND Associations, hereby appoint the following person as my proxy to attend, act, and vote on my behalf at the Annual General Meeting of members to be held in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario Canada and virtually on November 29, 2025, at 7:00 am ET (including adjournments thereof).(Required)
Failing the person named above, I hereby give my proxy to the following person.(Required)
OR (complete only if you wish to name someone other than the above as your proxy) I hereby appoint the following person, a voting member in good standing, as my proxy to attend, act, and vote on my behalf at the Annual General Meeting of members to be held in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario Canada and virtually on November 29, 2025, at 7:00 am ET (including adjournments thereof).
By completing the following boxes, the signing party listed below digitally confirms the proxy appointment.

Primary Sidebar

  • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

  • Irene McCaughey, Diagnosed 2011,  MND Australia

    Irene McCaughey, Diagnosed 2011, MND Australia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

    Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

  • Roxana Canova, Diagnosed 2012 ,  Asociación ELA Argentina

    Roxana Canova, Diagnosed 2012 , Asociación ELA Argentina

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • March of Faces Photo Submission_OLGA_ELA ARGENTINA

    March of Faces Photo Submission_OLGA_ELA ARGENTINA

  • Wendy Hendrickson, ALS Hope Foundation, USA

    Wendy Hendrickson, ALS Hope Foundation, USA

  • Imelda Arenas, ACELA, Colombia

    Imelda Arenas, ACELA, Colombia

  • Rosie Riley, Les Turner ALS Foundation, USA

    Rosie Riley, Les Turner ALS Foundation, USA

  • Brian Parsons

    Brian Parsons

  • John and Loretta Russo, USA

    John and Loretta Russo, USA
    final3878

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Monica Soriano, Diagnosed 2011 ,  Asociación ELA , Argentina

    Monica Soriano, Diagnosed 2011 , Asociación ELA , Argentina

  • David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

    David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

  • Steven Spencer, Diagnosed 2014 , MND New Zealand

    Steven Spencer, Diagnosed 2014 , MND New Zealand

  • Lachlan Terry,  MND Australia,  Diagnosed 2015

    Lachlan Terry, MND Australia, Diagnosed 2015

  • Zabun Nassar, MND Association, Diagnosed 2016, England

    Zabun Nassar, MND Association, Diagnosed 2016, England

  • Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

    Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Michael Lee, Australia

    Michael Lee, Australia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Conny van der Meijden, Diagnosed 2001,  ALS Netherlands

    Conny van der Meijden, Diagnosed 2001, ALS Netherlands

  • Dr Shelly Hoover

    Dr Shelly Hoover

  • Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

    Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

  • Roy

    Roy
    roy

  • Denis Blais, Diagnosed 2015 , ALS Canada

    Denis Blais, Diagnosed 2015 , ALS Canada

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

    Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Ann Nicol

    Ann Nicol

  • Maria Santos Garcia Tellez, Diagnosed 2017 , FYADENMAC, Mexico

    Maria Santos Garcia Tellez, Diagnosed 2017 , FYADENMAC, Mexico

  • João Marcos Andrietta, Diagnosed 2008 , ABrELA, Brazil

    João Marcos Andrietta, Diagnosed 2008 , ABrELA, Brazil

  • Zelina Brito, Diagnosed 2018, Brazil

    Zelina Brito, Diagnosed 2018, Brazil

  • Chih Ching Darren Wong, MND Malaysia

    Chih Ching Darren Wong, MND Malaysia

  • IMG_1211

    IMG_1211

  • Ian Roberts

    Ian Roberts

  • Michel Perrozzo, ARSLA, Diagnosed 2015, France

    Michel Perrozzo, ARSLA, Diagnosed 2015, France

  • Jo Knowlton and her dog, Scotland

    Jo Knowlton and her dog, Scotland

  • Eddy LeFrançois, Diagnosed 1992,  ALS Canada

    Eddy LeFrançois, Diagnosed 1992, ALS Canada

  • Susan Anderson, Diagnosed 2014 , Hope Loves Company,  USA

    Susan Anderson, Diagnosed 2014 , Hope Loves Company, USA

  • Andrietta

    Andrietta

  • Liam Dwyer, England

    Liam Dwyer, England

  • Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

    Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

  • Frank "Papa" Taylor, USA

    Frank “Papa” Taylor, USA

  • Guoqiang Xu, Diagnosed 2016 , Shaanxi ALS Association, China

    Guoqiang Xu, Diagnosed 2016 , Shaanxi ALS Association, China

  • Dick Dayton, USA

    Dick Dayton, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Ian and Teresa Roberts

    Ian and Teresa Roberts

Learn more about the March of Faces

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