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2025 AGM Information

Notice of Annual General Meeting & Call for Resolutions

This is notice that the Annual General Meeting (AGM) of the members of the International Alliance of ALS/MND Associations will be held in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario (Canada), and virtually:

  • November 29, 2025
  • 7:00 am to 8:30 am ET

We value our members’ input. If you’d like to submit an agenda item or resolution, please use the links below to fill out a form.

  • Call for Agenda Items
  • Call for Resolutions

The deadline to submit agenda items and resolutions is September 19, 2025.

Thank you to our members who have submitted a nomination for the Board of Directors. Nominations are now closed.

Please see the full2025 Notice of AGM & Call for Resolutions.

Meeting Materials – to follow 

  • 2025 AGM Agenda
  • 2024 AGM Minutes
  • Year-end Financial Statements
  • 2024-2025 Annual Report

Proxy Vote Instructions & Form

  1. As a member of the Charity, you are entitled to appoint a proxy to exercise all or any of your rights to attend, speak and vote at the meeting.
  2. You can only appoint a proxy using the procedures set out in these notes.
  3. A proxy must be an authorized representative of the member (no other individuals are permitted to be proxies) and must attend the meeting to represent you.
  4. If no voting indication is given, your proxy will vote or abstain from voting on the resolutions put to the meeting at their discretion.
  5. Unless the proxy appointment indicates otherwise, it will be treated as:
    • allowing your proxy to vote (or abstain from voting) as they think fit in relation to the limited range of additional resolutions which may be put before the meeting; and
    • appointing your proxy in relation to any adjournment of the meeting.
  6. Proxy appointments must be using the form below or in writing and emailed to the Secretary of the Charity, Catherine Cummings at cummings@als-mnd.org
  7. The proxy appointments must be notified to the Secretary of the Charity before the commencement of the meeting.
  8. If you are completing the proxy appointment under the authority of a power of attorney or any other authority you must send the relevant document or a certified copy to the Secretary of the Charity when you return the proxy appointment.
  9. If you wish to change your proxy instructions, you can submit another appointment in the way indicated above. The appointment received last before the latest time for the receipt of proxies will take precedence.
  10. If you wish to revoke your proxy instructions, you can send a notice to the Secretary of the Charity in any of the ways described at note 6 above, clearly stating that the instructions are revoked. The revocation must be received by the Secretary of the Charity no later than the commencement of the meeting.
  11. Appointment of a proxy does not preclude you from attending the meeting and voting yourself. If you have appointed a proxy and you attend the meeting and cast a vote yourself, your proxy is no longer entitled to vote for you.
  12. You may only communicate with the Charity about the meeting and appointing a proxy for the meeting using the addresses at note 6 No other methods of communication will be accepted.

2025 Proxy Form

As a member of the Charity, you are entitled to appoint a proxy through this form to exercise all or any of your rights to attend, speak and vote at the meeting.

This field is hidden when viewing the form

2025 Proxy Form

It is the responsibility of the member to determine whether the person to whom they assign the proxy is able and agrees to act in the manner described. Please ensure submission of the completed proxy to the International Alliance of ALS/MND Associations no later than November 23, 2025, at 5:00 pm ET.
Your Name(Required)
I, a voting member in good standing of the International Alliance of ALS/MND Associations, hereby appoint the following person as my proxy to attend, act, and vote on my behalf at the Annual General Meeting of members to be held in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario Canada and virtually on November 29, 2025, at 7:00 am ET (including adjournments thereof).(Required)
Failing the person named above, I hereby give my proxy to the following person.(Required)
OR (complete only if you wish to name someone other than the above as your proxy) I hereby appoint the following person, a voting member in good standing, as my proxy to attend, act, and vote on my behalf at the Annual General Meeting of members to be held in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario Canada and virtually on November 29, 2025, at 7:00 am ET (including adjournments thereof).
By completing the following boxes, the signing party listed below digitally confirms the proxy appointment.

Primary Sidebar

  • Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

    Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

  • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

  • Jack Buzby, USA

    Jack Buzby, USA

  • Joy Blakeley, Diagnosed 2017 , MND Australia

    Joy Blakeley, Diagnosed 2017 , MND Australia

  • Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

    Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

  • Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

    Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

    David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

  • Greg Heydet, ALS Hope Foundation, USA

    Greg Heydet, ALS Hope Foundation, USA

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Irene McCaughey, Diagnosed 2011,  MND Australia

    Irene McCaughey, Diagnosed 2011, MND Australia

  • Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

    Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

  • Frank "Papa" Taylor, USA

    Frank “Papa” Taylor, USA

  • Tison, USA

    Tison, USA

  • Phil Rossall, MND-Association, UK

    Phil Rossall, MND-Association, UK

  • Andrea Zicchieri, Associazione conSLAncio Onlus, Italy

    Andrea Zicchieri, Associazione conSLAncio Onlus, Italy
    AndreaZicchieri_conSLAncioItaly

  • Bayley, Australia

    Bayley, Australia

  • Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

    Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

  • Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

    Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

  • Maurice LeClerc, ALS Canada

    Maurice LeClerc, ALS Canada

  • Denis Blais, Diagnosed 2015 , ALS Canada

    Denis Blais, Diagnosed 2015 , ALS Canada

  • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

    Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

  • Ali Var, Turkey

    Ali Var, Turkey

  • Inta Grubb, Diagnosed 2014,  MND Australia

    Inta Grubb, Diagnosed 2014, MND Australia

  • Kirsten Harley,  Diagnosed 2013,  Australia

    Kirsten Harley, Diagnosed 2013, Australia

  • Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

    Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

  • Olga Cosentino, Diagnosed 2013,  Asociación ELA Argentina

    Olga Cosentino, Diagnosed 2013, Asociación ELA Argentina

  • Natalya Rybakova, Russian Charity ALS Foundation

    Natalya Rybakova, Russian Charity ALS Foundation

  • Michel Perrozzo, ARSLA, Diagnosed 2015, France

    Michel Perrozzo, ARSLA, Diagnosed 2015, France

  • Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

    Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Angie Bordaen, Diagnosed 2014,  ALS Liga België, Belgium

    Angie Bordaen, Diagnosed 2014, ALS Liga België, Belgium

  • Steve Gallagher, ALS Society of Canada

    Steve Gallagher, ALS Society of Canada
    Picture1

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

    Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Kirsty Gerlach, MND New Zealand, Diagnosed 2017

    Kirsty Gerlach, MND New Zealand, Diagnosed 2017

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

  • Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

    Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

  • Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

    Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

  • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

    Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

  • Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

    Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

  • Lachlan Terry,  MND Australia,  Diagnosed 2015

    Lachlan Terry, MND Australia, Diagnosed 2015

  • Art Eggert, USA

    Art Eggert, USA

  • Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

    Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

  • David Watson,  MND Scotland,  Diagnosed 2018

    David Watson, MND Scotland, Diagnosed 2018

  • John Dinon, MND Australia

    John Dinon, MND Australia

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