2025 AGM Information

Notice of Annual General Meeting

This is a notice regarding the International Alliance of ALS/MND Associations’ Annual General Meeting (AGM), taking place virtually via Zoom and in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario, Canada.

Date: Saturday, November 29, 2025
Time: 7:00–8:30 am EST 
Zoom link: https://us02web.zoom.us/j/6212859565?omn=81799817727

Thank you to our members who submitted agenda items or resolutions. The submission period is now closed.

Thank you to our members who submitted a nomination for the Board of Directors. Nominations are now closed.

Meeting Materials

• 2025 AGM Agenda
• 2024 AGM Minutes
• Year-end Financial Statements
• 2024-2025 Annual Report

A resolution to increase membership fees will be presented, as outlined below. 

Background

The membership fee has not increased since 2014. A review of the fee structure was informed by data including the International Monetary Fund cumulative global inflation rate.

It was determined during the review that the World Bank income-based classification system be applied to membership fee calculations. The World Bank uses this system to categorize countries’ economies. This system divides the world’s economies into four groups: low-income, lower-middle-income, upper-middle-income, and high-income. These classifications are updated annually on July 1, based on the Gross National Income per capita of the previous calendar year.

RESOLUTION: That the Alliance membership fees for 2026-2027 be increased as outlined below:

• The calculation of membership fees to remain at 0.2% of member organization revenue for the previous year.
• The minimum fee for Full Members to be £125, and then adjusted for inflation each year thereafter by equivalent to the global inflation rate.
• The fee cap for Full Members to be £12,500, and then adjusted for inflation each year thereafter by equivalent to the global inflation rate.
• Any Full Member in countries in the lowest income tier as defined by the World Bank income-based classification system may apply to be granted a fee waiver.
• Any Full Member in the lower-middle-income tier as defined by the World Bank be granted 50% fee relief if they apply for it.
• For Affiliate Membership categories, the following membership fees proposed to apply for 2026-2027:
  • Emerging Associations: 0.2% of member organization revenue for the previous year if available, and may apply for a membership fee waiver.
  • Network: 0.1% of revenue for the previous year. Less developed networks may apply to be granted a fee waiver.
  • Education and Research: 0.2% if have own revenue, or minimum fee of £125 if have no direct income given operate within a non-profit entity such as a university.
  • Fiscal Sponsorship/Hosting Arrangement: minimum fee of £125.

Voting

Voting will be conducted by a show of hands from in-person and virtual participants at the meeting. 

Members will vote on the following items: 

• Approval of 2024 AGM Minutes
• Appointment of new Trustees
• Receipt of the 2024-2025 accounts
• Appointment of an Independent Examiner
• Fixing of the annual subscriptions

Questions

The Alliance welcomes your questions in advance of the AGM. Please send them to cathy.cummings@als-mnd.org. You will also have the opportunity to ask questions during the AGM. 

Proxy Vote Instructions & Form

1. As a member of the Charity, you are entitled to appoint a proxy to exercise all or any of your rights to attend, speak, and vote at the meeting.
2. You can only appoint a proxy using the procedures set out in these notes.
3. A proxy must be an authorized representative of the member (no other individuals are permitted to be proxies) and must attend the meeting to represent you.
4. If no voting indication is given, your proxy will vote or abstain from voting on the resolutions put to the meeting at their discretion.
5. Unless the proxy appointment indicates otherwise, it will be treated as:
   • allowing your proxy to vote (or abstain from voting) as they see fit in relation to the limited range of additional resolutions which may be put before the meeting; and
   • appointing your proxy in relation to any adjournment of the meeting.
6. Proxy appointments must be made using the form below or in writing and emailed to the Secretary of the Charity, Catherine Cummings, at cathy.cummings@als-mnd.org.
7. The proxy appointments must be notified to the Secretary of the Charity before the commencement of the meeting.
8. If you are completing the proxy appointment under the authority of a power of attorney or any other authority, you must send the relevant document or a certified copy to the Secretary of the Charity when you return the proxy appointment.
9. If you wish to change your proxy instructions, you may submit another appointment in the way indicated above. The appointment received last before the latest time for the receipt of proxies will take precedence.
10. If you wish to revoke your proxy instructions, you may send a notice to the Secretary of the Charity in any of the ways described at note 6 above clearly stating that the instructions are revoked. The revocation must be received by the Secretary of the Charity no later than the commencement of the meeting.
11. Appointment of a proxy does not preclude you from attending the meeting and voting yourself. If you have appointed a proxy and you attend the meeting and cast a vote yourself, your proxy is no longer entitled to vote on your behalf.
12. You may only communicate with the Charity about the meeting and appointing a proxy for the meeting using the addresses at note 6. No other methods of communication will be accepted.