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2025 AGM Information

Notice of Annual General Meeting & Call for Resolutions

This is notice that the Annual General Meeting (AGM) of the members of the International Alliance of ALS/MND Associations will be held in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario (Canada), and virtually:

  • November 29, 2025
  • 7:00 am to 8:30 am ET

We value our members’ input. If you’d like to submit an agenda item or resolution, please use the links below to fill out a form.

  • Call for Agenda Items
  • Call for Resolutions

The deadline to submit agenda items and resolutions is September 19, 2025.

Thank you to our members who have submitted a nomination for the Board of Directors. Nominations are now closed.

Please see the full2025 Notice of AGM & Call for Resolutions.

Meeting Materials – to follow 

  • 2025 AGM Agenda
  • 2024 AGM Minutes
  • Year-end Financial Statements
  • 2024-2025 Annual Report

Proxy Vote Instructions & Form

  1. As a member of the Charity, you are entitled to appoint a proxy to exercise all or any of your rights to attend, speak and vote at the meeting.
  2. You can only appoint a proxy using the procedures set out in these notes.
  3. A proxy must be an authorized representative of the member (no other individuals are permitted to be proxies) and must attend the meeting to represent you.
  4. If no voting indication is given, your proxy will vote or abstain from voting on the resolutions put to the meeting at their discretion.
  5. Unless the proxy appointment indicates otherwise, it will be treated as:
    • allowing your proxy to vote (or abstain from voting) as they think fit in relation to the limited range of additional resolutions which may be put before the meeting; and
    • appointing your proxy in relation to any adjournment of the meeting.
  6. Proxy appointments must be using the form below or in writing and emailed to the Secretary of the Charity, Catherine Cummings at cummings@als-mnd.org
  7. The proxy appointments must be notified to the Secretary of the Charity before the commencement of the meeting.
  8. If you are completing the proxy appointment under the authority of a power of attorney or any other authority you must send the relevant document or a certified copy to the Secretary of the Charity when you return the proxy appointment.
  9. If you wish to change your proxy instructions, you can submit another appointment in the way indicated above. The appointment received last before the latest time for the receipt of proxies will take precedence.
  10. If you wish to revoke your proxy instructions, you can send a notice to the Secretary of the Charity in any of the ways described at note 6 above, clearly stating that the instructions are revoked. The revocation must be received by the Secretary of the Charity no later than the commencement of the meeting.
  11. Appointment of a proxy does not preclude you from attending the meeting and voting yourself. If you have appointed a proxy and you attend the meeting and cast a vote yourself, your proxy is no longer entitled to vote for you.
  12. You may only communicate with the Charity about the meeting and appointing a proxy for the meeting using the addresses at note 6 No other methods of communication will be accepted.

2025 Proxy Form

As a member of the Charity, you are entitled to appoint a proxy through this form to exercise all or any of your rights to attend, speak and vote at the meeting.

This field is hidden when viewing the form

2025 Proxy Form

It is the responsibility of the member to determine whether the person to whom they assign the proxy is able and agrees to act in the manner described. Please ensure submission of the completed proxy to the International Alliance of ALS/MND Associations no later than November 23, 2025, at 5:00 pm ET.
Your Name(Required)
I, a voting member in good standing of the International Alliance of ALS/MND Associations, hereby appoint the following person as my proxy to attend, act, and vote on my behalf at the Annual General Meeting of members to be held in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario Canada and virtually on November 29, 2025, at 7:00 am ET (including adjournments thereof).(Required)
Failing the person named above, I hereby give my proxy to the following person.(Required)
OR (complete only if you wish to name someone other than the above as your proxy) I hereby appoint the following person, a voting member in good standing, as my proxy to attend, act, and vote on my behalf at the Annual General Meeting of members to be held in person at the Sheraton Toronto Airport Hotel & Conference Centre, 801 Dixon Road, Toronto, Ontario Canada and virtually on November 29, 2025, at 7:00 am ET (including adjournments thereof).
By completing the following boxes, the signing party listed below digitally confirms the proxy appointment.

Primary Sidebar

  • Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

    Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

  • Mike Rannie,  ALS Canada,  Diagnosed 2017

    Mike Rannie, ALS Canada, Diagnosed 2017

  • Rosie Riley, Les Turner ALS Foundation, USA

    Rosie Riley, Les Turner ALS Foundation, USA

  • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

  • Tison, USA

    Tison, USA

  • Sébastien Batiot, Diagnosed 2012 , ARSLA, France

    Sébastien Batiot, Diagnosed 2012 , ARSLA, France

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

    Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

  • Wilfried Leusing, Diagnosed 2010 , DGM, Germany

    Wilfried Leusing, Diagnosed 2010 , DGM, Germany

  • Leon Ryba, Asociación ELA Argentina

    Leon Ryba, Asociación ELA Argentina

  • Len Johnrose,  MND Association,  Diagnosed 2017,  England

    Len Johnrose, MND Association, Diagnosed 2017, England

  • Brian Parsons

    Brian Parsons

  • Joanne Pratt, Diagnosed 2011 , MND Australia

    Joanne Pratt, Diagnosed 2011 , MND Australia

  • Jan Zuring, Diagnosed 2010 , The Netherlands

    Jan Zuring, Diagnosed 2010 , The Netherlands

  • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

  • Oliver Juenke, DGM, Germany

    Oliver Juenke, DGM, Germany

  • England-Lee-Millard, UK

    England-Lee-Millard, UK

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Mauril Bélanger, Diagnosed 2015 , ALS Canada

    Mauril Bélanger, Diagnosed 2015 , ALS Canada

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

    Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

  • March of Faces Photo Submission_ALEX_ELA ARGENTINA

    March of Faces Photo Submission_ALEX_ELA ARGENTINA

  • Armando González Gómez, ACELA, Colombia

    Armando González Gómez, ACELA, Colombia

  • Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

    Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • 393647_2252248542053_984912751_n

    393647_2252248542053_984912751_n

  • Karl Hughes, Diagnosed 2010 , IMNDA,  Ireland

    Karl Hughes, Diagnosed 2010 , IMNDA, Ireland

  • Ali Var, Turkey

    Ali Var, Turkey

  • Juvenal Bayona Romero

    Juvenal Bayona Romero

  • Lachlan Terry,  MND Australia,  Diagnosed 2015

    Lachlan Terry, MND Australia, Diagnosed 2015

  • Glen Elison,  ALS Hope Foundation,  Diagnosed 2019,  USA

    Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Den Haag, Diagnosed 2016 , The Netherlands

    Den Haag, Diagnosed 2016 , The Netherlands

  • Michel Perrozzo, ARSLA, Diagnosed 2015, France

    Michel Perrozzo, ARSLA, Diagnosed 2015, France

  • Fabio Carvalho

    Fabio Carvalho

  • Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

    Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

  • Art Eggert, USA

    Art Eggert, USA

  • Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

    Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

  • Frank "Papa" Taylor, USA

    Frank “Papa” Taylor, USA

  • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

  • Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

    Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

  • Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

    Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

  • Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

    Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

  • Monica Soriano, Diagnosed 2011 ,  Asociación ELA , Argentina

    Monica Soriano, Diagnosed 2011 , Asociación ELA , Argentina

  • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

    Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

  • Peng Yi-Wen

    Peng Yi-Wen

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Fabio Correia

    Fabio Correia

  • Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

    Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

Learn more about the March of Faces

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