Project MinE researchers plan to map the full DNA profiles of at least 15,000 people with ALS and 7,500 control subjects, and to perform comparative analyses on the resulting data.
Patient Registries
National ALS Registry (USA)
The National ALS Registry – run by the Center for Disease Control’s Agency for Toxic Substances and Disease Registry – is a new program to collect, manage and analyze data about people with ALS in the United States. The goal is to gather information to better understand the disease and improve care for people with ALS.