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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Christian Bär, Germany

    Christian Bär, Germany

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Lombana, Spain

    Lombana, Spain

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Timmy, Belgium

    Timmy, Belgium

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Jay Epstein, USA

    Jay Epstein, USA

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Anna Barrow, UK

    Anna Barrow, UK

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Bob Simonds, USA

    Bob Simonds, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Steve

    Steve

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Paul Launer, USA

    Paul Launer, USA

  • David Bishop, UK

    David Bishop, UK

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Alex, Argentina

    Alex, Argentina

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • JP

    JP

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

Learn more about the March of Faces

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