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International Alliance of ALS/MND Associations

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  • Understanding ALS/MND
    • What is ALS/MND
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      • AB Science – Masitinib
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      • Mitsubishi Tanabe Pharma America – Oral Edaravone
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      • Nuedexta
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    • Drugs No Longer in Development
      • Amylyx – AMX0035
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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Phil Rossall, UK

    Phil Rossall, UK

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Sally Pauls, USA

    Sally Pauls, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Lombana, Spain

    Lombana, Spain

  • Jon Newsome, USA

    Jon Newsome, USA

  • Purningam Jacob, India

    Purningam Jacob, India

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Anna Barrow, UK

    Anna Barrow, UK

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Lee Millard, England

    Lee Millard, England

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Alex, Argentina

    Alex, Argentina

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Michael Lee, Australia

    Michael Lee, Australia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Bob Simonds, USA

    Bob Simonds, USA

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • John Sweeney, USA

    John Sweeney, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Jay Epstein, USA

    Jay Epstein, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
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  • Mike Cels, Canada

    Mike Cels, Canada

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Charlie Dourney, USA

    Charlie Dourney, USA

Learn more about the March of Faces

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