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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Jean Waters, UK

    Jean Waters, UK

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • David Watson, Scotland

    David Watson, Scotland

  • Ali Var, Turkey

    Ali Var, Turkey

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Ann Nicol, USA

    Ann Nicol, USA

  • Jay Epstein, USA

    Jay Epstein, USA

  • Rob Tison, USA

    Rob Tison, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Willi Klein, UK

    Willi Klein, UK

  • Michael Lee, Australia

    Michael Lee, Australia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Lombana, Spain

    Lombana, Spain

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Susan Anderson, USA

    Susan Anderson, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Len Johnrose, England

    Len Johnrose, England

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Art Eggert, USA

    Art Eggert, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Timmy, Belgium

    Timmy, Belgium

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Bayley, Australia

    Bayley, Australia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Jack Buzby, USA

    Jack Buzby, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

Learn more about the March of Faces

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