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International Alliance of ALS/MND Associations

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  • Understanding ALS/MND
    • What is ALS/MND
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    • Fundamental Rights for People with ALS/MND and Caregivers
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      • AB Science – Masitinib
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      • Nuedexta
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    • Drugs No Longer in Development
      • Amylyx – AMX0035
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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Frank Taylor, USA

    Frank Taylor, USA

  • John Russo, USA

    John Russo, USA
    final3878

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Anita Forte, USA

    Anita Forte, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Rosie Riley, USA

    Rosie Riley, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Sally Pauls, USA

    Sally Pauls, USA

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Dick Dayton, USA

    Dick Dayton, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Anna Barrow, UK

    Anna Barrow, UK

Learn more about the March of Faces

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