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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • John Russo, USA

    John Russo, USA
    final3878

  • Willi Klein, UK

    Willi Klein, UK

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Mike Small, UK

    Mike Small, UK

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Steve

    Steve

  • Zabun Nassar, England

    Zabun Nassar, England

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Alex, Argentina

    Alex, Argentina

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Jason Goodman, USA

    Jason Goodman, USA

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Jack Buzby, USA

    Jack Buzby, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Timmy, Belgium

    Timmy, Belgium

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Dick Dayton, USA

    Dick Dayton, USA

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

Learn more about the March of Faces

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