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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Jack Buzby, USA

    Jack Buzby, USA

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Willi Klein, UK

    Willi Klein, UK

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Jean

    Jean
    jean

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Paul Launer, USA

    Paul Launer, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Art Eggert, USA

    Art Eggert, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Jason Goodman, USA

    Jason Goodman, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • John Sweeney, USA

    John Sweeney, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • JP

    JP

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Daniel Hare, USA

    Daniel Hare, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

Learn more about the March of Faces

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