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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jean Waters, UK

    Jean Waters, UK

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Alex, Argentina

    Alex, Argentina

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • David Bishop, UK

    David Bishop, UK

  • Animesh Kumar, India

    Animesh Kumar, India

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

Learn more about the March of Faces

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