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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Purningam Jacob, India

    Purningam Jacob, India

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • John Sweeney, USA

    John Sweeney, USA

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Rob Tison, USA

    Rob Tison, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Anna Barrow, UK

    Anna Barrow, UK

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • John Dinon, Australia

    John Dinon, Australia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Ian Gale, Australia

    Ian Gale, Australia

  • David Watson, Scotland

    David Watson, Scotland

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • David Hall, USA

    David Hall, USA

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Zabun Nassar, England

    Zabun Nassar, England

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Inta Grubb, Australia

    Inta Grubb, Australia

Learn more about the March of Faces

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