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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • John Dinon, Australia

    John Dinon, Australia

  • Rob Tison, USA

    Rob Tison, USA

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • John Russo, USA

    John Russo, USA
    final3878

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Purningam Jacob, India

    Purningam Jacob, India

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • John Sweeney, USA

    John Sweeney, USA

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Susan Keldani, USA

    Susan Keldani, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Liam Dwyer, England

    Liam Dwyer, England

  • Phil Rossall, UK

    Phil Rossall, UK

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Ann Nicol, USA

    Ann Nicol, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Alex, Argentina

    Alex, Argentina

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Bayley, Australia

    Bayley, Australia

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Philip Brindle, England

    Philip Brindle, England

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

Learn more about the March of Faces

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