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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Anna Barrow, UK

    Anna Barrow, UK

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Jean Waters, UK

    Jean Waters, UK

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Timmy, Belgium

    Timmy, Belgium

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Greg Heydet, USA

    Greg Heydet, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Zabun Nassar, England

    Zabun Nassar, England

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • David Bishop, UK

    David Bishop, UK

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • John Sweeney, USA

    John Sweeney, USA

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Bob Simonds, USA

    Bob Simonds, USA

  • Alex, Argentina

    Alex, Argentina

  • Rosie Riley, USA

    Rosie Riley, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Mike Cels, Canada

    Mike Cels, Canada

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Jack Buzby, USA

    Jack Buzby, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Ali Var, Turkey

    Ali Var, Turkey

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

Learn more about the March of Faces

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