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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Lee Millard, England

    Lee Millard, England

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Liam Dwyer, England

    Liam Dwyer, England

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • JP

    JP

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Frank Taylor, USA

    Frank Taylor, USA

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Olga, Argentina

    Olga, Argentina

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • John Sweeney, USA

    John Sweeney, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Christian Bär, Germany

    Christian Bär, Germany

  • Glen Elison, USA

    Glen Elison, USA

  • Susan Keldani, USA

    Susan Keldani, USA

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Mark Miller, UK

    Mark Miller, UK

  • John Russo, USA

    John Russo, USA
    final3878

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

Learn more about the March of Faces

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