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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Susan Keldani, USA

    Susan Keldani, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Glen Elison, USA

    Glen Elison, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • JP

    JP

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Jay Epstein, USA

    Jay Epstein, USA

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Jason Goodman, USA

    Jason Goodman, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Greg Heydet, USA

    Greg Heydet, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • John Dinon, Australia

    John Dinon, Australia

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Lee Millard, England

    Lee Millard, England

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

Learn more about the March of Faces

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