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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Hollister

    Hollister
    hollister

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Dick Dayton, USA

    Dick Dayton, USA

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Ali Var, Turkey

    Ali Var, Turkey

  • Alex, Argentina

    Alex, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • David Hall, USA

    David Hall, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Ann Nicol, USA

    Ann Nicol, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

Learn more about the March of Faces

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