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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Jack Buzby, USA

    Jack Buzby, USA

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Rob Tison, USA

    Rob Tison, USA

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Anna Barrow, UK

    Anna Barrow, UK

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • John Sweeney, USA

    John Sweeney, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Jean Waters, UK

    Jean Waters, UK

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Ali Var, Turkey

    Ali Var, Turkey

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Mark Miller, UK

    Mark Miller, UK

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Jason Goodman, USA

    Jason Goodman, USA

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Ann Nicol, USA

    Ann Nicol, USA

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

Learn more about the March of Faces

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