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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Jack Buzby, USA

    Jack Buzby, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Rob Tison, USA

    Rob Tison, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • John Dinon, Australia

    John Dinon, Australia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Jean

    Jean
    jean

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Michael Lee, Australia

    Michael Lee, Australia

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Willi Klein, UK

    Willi Klein, UK

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Ali Var, Turkey

    Ali Var, Turkey

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Ali Var, Turkey

    Ali Var, Turkey

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Jean Waters, UK

    Jean Waters, UK

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Olga, Argentina

    Olga, Argentina

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

Learn more about the March of Faces

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