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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Michael Lee, Australia

    Michael Lee, Australia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Ian Gale, Australia

    Ian Gale, Australia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • John Dinon, Australia

    John Dinon, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • John Sweeney, USA

    John Sweeney, USA

  • Hollister

    Hollister
    hollister

  • JP

    JP

  • Rob Tison, USA

    Rob Tison, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Philip Brindle, England

    Philip Brindle, England

Learn more about the March of Faces

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