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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Jack Buzby, USA

    Jack Buzby, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Ali Var, Turkey

    Ali Var, Turkey

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Daniel Hare, USA

    Daniel Hare, USA

  • Steve

    Steve

  • Timmy, Belgium

    Timmy, Belgium

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Mike Cels, Canada

    Mike Cels, Canada

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Denis Blais, Canada

    Denis Blais, Canada

  • Paul Launer, USA

    Paul Launer, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Lee Millard, England

    Lee Millard, England

  • Jon Newsome, USA

    Jon Newsome, USA

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jean Waters, UK

    Jean Waters, UK

  • Rosie Riley, USA

    Rosie Riley, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Jason Goodman, USA

    Jason Goodman, USA

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Art Eggert, USA

    Art Eggert, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • David Bishop, UK

    David Bishop, UK

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Purningam Jacob, India

    Purningam Jacob, India

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • John Dinon, Australia

    John Dinon, Australia

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

Learn more about the March of Faces

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