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International Alliance of ALS/MND Associations

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Improving Regulatory Pathways

The International ALS/MND Alliance seeks to encourage all international regulatory agencies to develop a framework for global alignment in evaluating potential new therapies for people living with ALS/MND. The Alliance believes that the ALS/MND community and all stakeholders will benefit from a more cooperative global approach to evaluation of risks and benefits of novel therapies, especially given the global nature of drug development and clinical trial conduct. People living with ALS/MND – regardless of where they reside – have extraordinary unmet need and seek the fastest and widest possible access to potentially beneficial therapies. Given the devastating nature of ALS/MND, this community cannot wait for excessive procedural delays caused by sequential reviews and hand-offs.

Pivotal clinical trials in ALS/MND are often conducted internationally and these global trials are increasingly important for investigating the safety and effectiveness of ALS/MND drugs for approval. Future drug development may benefit by establishing a greater uniformity of new global standards of treatment, leading to the optimal design of these important trials. There should be a cooperative, harmonized, pathway to approval which increases effectiveness and expediency for treatments of ALS/MND guided by the following principles.

Please download our full report on improving regulatory pathways.

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Advocacy

  • Advocacy Toolkit

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Willi Klein, UK

    Willi Klein, UK

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Rosie Riley, USA

    Rosie Riley, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Jay Epstein, USA

    Jay Epstein, USA

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • David Hall, USA

    David Hall, USA

  • Lee Millard, England

    Lee Millard, England

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Alex, Argentina

    Alex, Argentina

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Liam Dwyer, England

    Liam Dwyer, England

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Sally Pauls, USA

    Sally Pauls, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Jon Newsome, USA

    Jon Newsome, USA

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Michael Lee, Australia

    Michael Lee, Australia

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Jon Newsome, USA

    Jon Newsome, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Hollister

    Hollister
    hollister

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Susan Anderson, USA

    Susan Anderson, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Ali Var, Turkey

    Ali Var, Turkey

  • Bob Simonds, USA

    Bob Simonds, USA

Learn more about the March of Faces

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