Webinar from EUpALS: ‘Supporting your community’s mental wellbeing’

June 12 at 5:00 PM CEST

Registration

This session will explore how to strengthen the mental and emotional support you offer to the ALS community, with practical guidance on understanding the different types and levels of support, making the most of what’s available, dealing with difficult situations, and sensitive sign-posting.

This is the first part of a 2-part webinars series brought to you by EUpALS and supported by Zambon Biotech. They are designed by ALS patient organization leaders for patient organization leaders. Part 2: ‘Looking after your own mental wellbeing as an ALS community leader’ on July 1. 

These interactive webinars will focus on the rewards, challenges, and emotional impact of patient leadership, and how best to support others whilst still looking after your own mental wellbeing. They will provide you with some practical guidance to help you feel more confident in meeting the emotional needs of people affected by ALS. It will also explore ways you can look after your own emotional wellbeing and that of others who work in your organization.

We are delighted that Kym Winter, a leading psychotherapist with extensive experience in rare diseases, will lead the webinars. Kym is the Clinical Director and Founder of Rareminds (www.rareminds.org), a UK based charity providing specialist counselling services and mental wellbeing resources for rare disease communities.

To make the webinar series accessible to as many as possible across Europe, simultaneous translation into French, German, Italian and Spanish will be available.

While we recommend attending both sessions, each is designed as a standalone webinar so you can choose the one most relevant to you or come to both!