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International Alliance of ALS/MND Associations

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R.A.C.E. To Diagnose ALS/MND

A Call to Action to Refer Early Across Diverse Healthcare Settings

Learning Objectives

  • Recognize the early signs and symptoms of ALS/MND across diverse healthcare settings and specialties
  • Assess clinical features and initiate appropriate investigations (if warranted) without delaying referral
  • Communicate the need for an urgent onward specialist referral to those with suspected ALS/MND
  • Expedite referrals — even in the absence of complete diagnostic confirmation — and ensure referral letters clearly communicate key clinical findings to support triage

Resources

  • Content
  • Evaluation Form
  • Invitation Live Event
  • Invitation Virtual Event
  • Participant Handout
  • Speaker Guide
  • Certificate (with speaker)
  • Certificate

Videos

Person Living with ALS/MND Sharing His Diagnostic Journey

Mr. Craig Reyenga

https://www.als-mnd.org/wp-content/uploads/2026/02/craig_reyenga´s_als_mnd_diagnosis_story_v1-1080p.mp4

Overcoming Therapeutic Nihilism in ALS/MND

Prof. Orla Hardiman, BSc, MB, MD, FRCPI, FTCD, MRIA

https://www.als-mnd.org/wp-content/uploads/2026/02/orla_hardiman_-_overcoming_therapeutic_nihilism_v1-720p.mp4

The Cost of Delayed Diagnosis: Personal Stories from the Faculty

Prof. Orla Hardiman, BSc, MB, MD, FRCPI, FTCD, MRIA

https://www.als-mnd.org/wp-content/uploads/2026/02/video_orla_hardiman_-_the_cost_of_delayed_diagnosis__personal_stories_from_the_faculty_v1-720p.mp4

Ms. Marla Calder, BScOT

https://www.als-mnd.org/wp-content/uploads/2026/02/marla_calder_–_the_cost_of_delayed_diagnosis__personal_stories_from_the_faculty_v1-720p.mp4

Prof. Christopher J. McDermott, PhD, MD, FRCP

https://www.als-mnd.org/wp-content/uploads/2026/02/chris_mcdermott_–_the_cost_of_delayed_diagnosis__personal_stories_from_the_faculty_v1-720p.mp4

Prof. Nortina Shahrizaila, DM, PhD, FRCP 

https://www.als-mnd.org/wp-content/uploads/2026/02/nortina_shahrizaila_–_the_cost_of_delayed_diagnosis__personal_stories_from_the_faculty_v1-720p.mp4

RECAP: When to Suspect ALS/MND and Refer

Prof. Nortina Shahrizaila, DM, PhD, FRCP 

https://www.als-mnd.org/wp-content/uploads/2026/02/nortina_shahrizaila_-_recap__when_to_suspect_als_mnd_and_refer_v1-720p.mp4

Avoid Diagnostic Pitfalls: Prioritize Urgent Referrals

Prof. Orla Hardiman, BSc, MB, MD, FRCPI, FTCD, MRIA

https://www.als-mnd.org/wp-content/uploads/2026/02/orla_hardiman_-_avoid_diagnostic_pitfalls__prioritize_urgent_referrals_v1-720p.mp4

Craig’s MRI Maze: A Journey Through Missed Opportunities and Delayed Referral

Mr. Craig Reyenga

https://www.als-mnd.org/wp-content/uploads/2026/02/craig_reyenga_-_a_journey_through_missed_opportunities_and_delayed_referral_v1-720p.mp4

Faculty Perspective: Frustration with Referral Delays

Prof. Christopher J. McDermott, PhD, MD, FRCP

https://www.als-mnd.org/wp-content/uploads/2026/02/chris_mcdermott_–_frustration_with_referral_delays_v1-720p.mp4

From Diagnostic Uncertainty to Clarity: Insights from the Voices of People Living with ALS/MND

Ms. Leanne Sklavenitis

https://www.als-mnd.org/wp-content/uploads/2026/02/leanne_sklavenitis_-_patient_testimonial_v1-1080p-1.mp4

Mr. Bruce Virgo

https://www.als-mnd.org/wp-content/uploads/2026/02/bruce_virgo_-_patient_testimonial_v1-1080p-1.mp4

What If the Patient Asks: “Could this be ALS/MND?”

Ms. Marla Calder, BScOT

https://www.als-mnd.org/wp-content/uploads/2026/02/marla_calder_–_what_if_the_patient_asks__could_this_be_als_mnd__v1-720p.mp4

 

For additional information or enquiries on booking the faculty, please email education@als-mnd.org.

Primary Sidebar

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

  • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

  • Joanne Pratt, Diagnosed 2011 , MND Australia

    Joanne Pratt, Diagnosed 2011 , MND Australia

  • Mike Small, Motor Neurone Disease (MND) Association, UK

    Mike Small, Motor Neurone Disease (MND) Association, UK

  • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

    Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

  • IMG_1211

    IMG_1211

  • David Bishop

    David Bishop

  • Chris McCauley, Diagnosed 2015 , ALS Canada

    Chris McCauley, Diagnosed 2015 , ALS Canada

  • Chih Ching Darren Wong, MND Malaysia

    Chih Ching Darren Wong, MND Malaysia

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

    Camilla Heiberg Freiberg, Muskelsvindfonden, Denmark

  • John and Loretta Russo, USA

    John and Loretta Russo, USA
    final3878

  • Hollister

    Hollister
    hollister

  • David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

    David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

  • Mauril Belanger

    Mauril Belanger

  • Osiel Mendoza, Diagnosed 2016 ,  ALS Therapy Development Institute, USA

    Osiel Mendoza, Diagnosed 2016 , ALS Therapy Development Institute, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Conny van der Meijden, Diagnosed 2001,  ALS Netherlands

    Conny van der Meijden, Diagnosed 2001, ALS Netherlands

  • Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

    Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

  • Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

    Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

  • Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

    Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

  • Leon Ryba, Asociación ELA Argentina

    Leon Ryba, Asociación ELA Argentina

  • Enzo Maccarrone, AISLA ONLUS, Italy

    Enzo Maccarrone, AISLA ONLUS, Italy

  • Hanne Stenmose, Muskelsvindfonden, Denmark

    Hanne Stenmose, Muskelsvindfonden, Denmark

  • Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

    Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

  • Armando González Gómez, ACELA, Colombia

    Armando González Gómez, ACELA, Colombia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    Dawn Morton, Diagnosed 2014 , MND Scotland, UK

  • Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

    Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

  • Michel Perrozzo, ARSLA, Diagnosed 2015, France

    Michel Perrozzo, ARSLA, Diagnosed 2015, France

  • Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

    Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Steve Gallagher, ALS Society of Canada

    Steve Gallagher, ALS Society of Canada
    Picture1

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

    Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

  • Ailsa Malcolm-Hutton, Diagnosed 2013,  MND Association of England, Wales and N Ireland

    Ailsa Malcolm-Hutton, Diagnosed 2013, MND Association of England, Wales and N Ireland

  • Karl Hughes, Diagnosed 2010 , IMNDA,  Ireland

    Karl Hughes, Diagnosed 2010 , IMNDA, Ireland

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Brigitte Wernli,  Association ALS Switzerland,  Diagnosed 2014

    Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014

  • Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

    Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

  • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

  • Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

    Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

  • Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

    Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

  • Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

    Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

  • Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

  • Monica Soriano, Diagnosed 2011 ,  Asociación ELA , Argentina

    Monica Soriano, Diagnosed 2011 , Asociación ELA , Argentina

Learn more about the March of Faces

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