Webinar from Les Turner ALS Foundation: Breaking Barriers: Building a Health Equity Approach to Make ALS Livable for All

About the Program

Understanding our gaps in knowledge about the social and structural determinants of health inequities in ALS is integral to making sure ALS becomes a livable disease. In this session, Dr. Chelsey R. Carter highlights several determinants and offers approaches to improve ALS epidemiology, patient outcomes, and disparities. By building a health equity approach for ALS, she describes various research initiatives and inclusive care models to improve ALS care and research for individuals, caregivers, and families.

The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar.

About the Speaker

Chelsey R. Carter is an Assistant Professor of Public Health in the Department of Social and Behavioral Sciences at Yale University, with a secondary affiliation in the Department of Anthropology. Her research program examines how scientific knowledge production, clinical care, and systemic marginalization impact historically underrepresented communities affected by rare and neurodegenerative diseases like ALS. Dr. Carter is also undertaking a book project tentatively titled, Finding the Forgotten: Race, Bias, and Care in the World of ALS, which includes an ethnographic study of the diverse experiences of living with ALS, and draws on over 15 years of experience with Black communities affected by ALS. She is Founder & Director of The LEITH (Lived Experiences Igniting Transformations in Health) Lab.