• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

ALS/MND Connect

ALS/MND Connect brings the global ALS/MND community together with neurologists and researchers for accessible presentations on ALS/MND research and care.

Open to everyone, the session is livestreamed on the Alliance’s Facebook channel so people living with ALS/MND, caregivers, families, and others around the world can watch and ask questions online.

2026 ALS/MND Connect

December 6, 2026
2:00–3:30 pm (Amsterdam time / CET)

Join us live on Facebook for presentations exploring early ALS/MND pathology, new approaches to disease modelling, cognition in ALS/MND and more.

Watch Live on Facebook

2026 Agenda

The session will include three presentations followed by a Q&A.

Welcome by Moderator

Valeria Gerbino

Cutting Edge Methods Used to Detect Early Pathology in ALS/MND

Jenna Gregory

Cutting Edge In Vitro Modelling Systems Used to Study ALS/MND

Jeroen Pasterkamp

Cognition in the ALS/MND–FTD Spectrum

Sharon Abrahams

Q&A

How to Join

No registration is required. On December 6, visit the Alliance’s Facebook channel to watch the livestream and join the conversation.

Visit the International Alliance on Facebook →

Primary Sidebar

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Frank Taylor, USA

    Frank Taylor, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Daniel Hare, USA

    Daniel Hare, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Lombana, Spain

    Lombana, Spain

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • David Hall, USA

    David Hall, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Olga, Argentina

    Olga, Argentina

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Michael Lee, Australia

    Michael Lee, Australia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Ann Nicol, USA

    Ann Nicol, USA

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Christian Bär, Germany

    Christian Bär, Germany

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Mike Small, UK

    Mike Small, UK

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login