• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

ALS/MND Connect

ALS/MND Connect brings the global ALS/MND community together with neurologists and researchers for accessible presentations on ALS/MND research and care.

Open to everyone, the session is livestreamed on the Alliance’s Facebook channel so people living with ALS/MND, caregivers, families, and others around the world can watch and ask questions online.

2026 ALS/MND Connect

December 6, 2026
2:00–3:30 pm

Join us live on Facebook for presentations exploring early ALS/MND pathology, new approaches to disease modelling, cognition in ALS/MND and more.

Watch Live on Facebook

2026 Agenda

The session will include three presentations followed by a Q&A.

Welcome by Moderator

Valeria Gerbino

Cutting Edge Methods Used to Detect Early Pathology in ALS/MND

Jenna Gregory

Cutting Edge In Vitro Modelling Systems Used to Study ALS/MND

Jeroen Pasterkamp

Cognition in the ALS/MND–FTD Spectrum

Sharon Abrahams

Q&A

How to Join

No registration is required. On December 6, visit the Alliance’s Facebook channel to watch the livestream and join the conversation.

Visit the International Alliance on Facebook →

Primary Sidebar

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

  • Liam Dwyer, England

    Liam Dwyer, England

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Animesh Kumar, India

    Animesh Kumar, India

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Liam Dwyer, England

    Liam Dwyer, England

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • David Hall, USA

    David Hall, USA

  • Susan Anderson, USA

    Susan Anderson, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Sally Pauls, USA

    Sally Pauls, USA

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Jack Buzby, USA

    Jack Buzby, USA

  • Timmy, Belgium

    Timmy, Belgium

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Greg Heydet, USA

    Greg Heydet, USA

  • Jason Goodman, USA

    Jason Goodman, USA

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Bob Simonds, USA

    Bob Simonds, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login