This webinar will provide information on ALS/MND treatments currently in Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered and who to contact if […]
About the Program Join us for our November ALS Learning Series about hope with Dr. Richard Bedlack. In this talk, Dr. Bedlack will review what he has learned about hope […]
In this webinar, Drs. Andrews, Babu and Bedlack will explain what Expanded Access Programs (EAPs) are and how they differ from other pathways by which people living with ALS can […]
About the Program Every caregiver — and every caregiving journey — is unique, but there are some commonalities among caregivers of family members living with ALS. Most say caregiving is […]
In 2016, a "secret shopper" initiative was launched to assess the responsiveness of ALS clinical trial sites to patient inquiries. The findings revealed significant challenges in both the quality and […]
ALS/MND PLATFORM TRIALS UPDATE 19 March 8 am ET Registration: https://us02web.zoom.us/webinar/register/WN_GEOgomftSVOcV0woGWug4g#/registration We will have captions available This webinar will provide information on ALS/MND platform trials. We will hear from […]
About the Program In this talk Dr. Berry will discuss the aims, design considerations, and implementation of observational studies, highlighting the many ways observational studies hastened drug development and can […]
About the Program Join us for our April ALS Learning Series with Dr. Goutman, neurologist, from University of Michigan. Dr. Goutman will discuss research related to how environmental exposures influence […]
About the Program Join us for our May ALS Learning Series with Dr. Kelly Gwathmey from Virginia Commonwealth University. She will explore the causes and consequences of ALS diagnostic delay, […]
June 12 at 5:00 PM CEST Registration This session will explore how to strengthen the mental and emotional support you offer to the ALS community, with practical guidance on understanding […]
Date: June 26, 2025 at 4pm ET (3 CT) Title: Healey Platform Trial Updates & The Les Turner ALS Foundation Registration link: https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw#/registration About the Program: Join us for our June ALS Learning […]
July 1st at 5:00 PM CEST Registration This session focuses inward - on you and your team - offering space to reflect on the emotional demands of leadership and strategies […]