ALS/MND PLATFORM TRIALS UPDATE 19 March 8 am ET Registration: https://us02web.zoom.us/webinar/register/WN_GEOgomftSVOcV0woGWug4g#/registration We will have captions available This webinar will provide information on ALS/MND platform trials. We will hear from HEALEY, EXPERTS ALS and SMART. They will update us on their approach, recruitment, trial eligibility and their latest news.
About the Program In this talk Dr. Berry will discuss the aims, design considerations, and implementation of observational studies, highlighting the many ways observational studies hastened drug development and can create resources that aid the ALS community in the present and for years to come. About the Speaker Dr. Berry leads the Massachusetts General Hospital […]
About the Program Join us for our April ALS Learning Series with Dr. Goutman, neurologist, from University of Michigan. Dr. Goutman will discuss research related to how environmental exposures influence ALS. A Q&A will follow. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you […]
About the Program Understanding our gaps in knowledge about the social and structural determinants of health inequities in ALS is integral to making sure ALS becomes a livable disease. In this session, Dr. Chelsey R. Carter highlights several determinants and offers approaches to improve ALS epidemiology, patient outcomes, and disparities. By building a health equity […]
About the Program Join us for our May ALS Learning Series with Dr. Kelly Gwathmey from Virginia Commonwealth University. She will explore the causes and consequences of ALS diagnostic delay, along with potential solutions to address this problem. A Q&A will follow. The Les Turner ALS Foundation is proud to offer this webinar at no […]
The upcoming ENCALS meeting will be hosted in Turin, Italy, from June 3-6, 2025. Satellite meetings will take place on Tuesday morning (June 3) and Friday (June 6). The program for the satellite meeting depends on the supply by companies. Registration fees Normal registration (incl. VAT): Until April 20, 2025. (Postgraduate) students: €180,- Established researchers […]
Join ALS TDI and Her ALS Story (HAS) for the second of a 3-part collaborative Town Hall series, "Your Story. Our Science." Our journey continues with What Are Lesser-Known ALS Symptoms?, where we'll delve into the often-overlooked and less-discussed aspects of living with ALS. Connect with the powerful personal stories of HAS members as they […]
June 12 at 5:00 PM CEST Registration This session will explore how to strengthen the mental and emotional support you offer to the ALS community, with practical guidance on understanding the different types and levels of support, making the most of what’s available, dealing with difficult situations, and sensitive sign-posting. This is the first part […]
Date: June 26, 2025 at 4pm ET (3 CT) Title: Healey Platform Trial Updates & The Les Turner ALS Foundation Registration link: https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw#/registration About the Program: Join us for our June ALS Learning Series webinar — a collaboration with the Healey Center Community Webinars. Catherine Small, Patient Navigator for Healey ALS Platform Trial, will provide updates on current […]
July 1st at 5:00 PM CEST Registration This session focuses inward - on you and your team - offering space to reflect on the emotional demands of leadership and strategies to protect wellbeing, prevent your own burnout and compassion fatigue, and how to create a mentally healthy work environment in your organization. This is the […]
Join ALS TDI and Her ALS Story (HAS) for the third and final installment of our 3-part collaborative Town Hall series, "Your Story. Our Science." Our series concludes with How Can We Improve the Diagnosis Process?, where we will discuss the personal challenges of receiving an ALS diagnosis and the ongoing efforts to make the process faster […]
About the Program Join us for a comprehensive review of current best practices and tools in Message Banking, Voice Banking, and Voice Cloning, including the role of Artificial Intelligence (AI) in voice preservation. After a diagnosis of a progressive condition that impacts speech, an urgent priority is preserving one's voice. However, recording your voice is […]
On behalf of the organising committee, it is with great pleasure that we invite you to join us at the PACTALS 2025 Conference, taking place from 7th to 9th September 2025 in the vibrant city of Melbourne, Australia. Under the theme "Towards Precision in ALS/MND Treatments," this conference promises to be a pivotal event in […]