Join us on Wednesday September 23, at 1 pm ET for "Living and Loving with Loss: A Webinar on Navigating Grief While Living with ALS." A diagnosis of ALS brings many layers of loss – both immediate and unfolding over time. Join grief therapist Andrea Warnick and ALS Canada for this compassionate webinar exploring the unique […]
In this webinar, Marie Saxon, MS, CCC-SLP will review the most commonly observed cognitive and language symptoms in individuals with ALS and FTD, as well as their functional implications. Symptoms include reduced executive functioning, attention, memory, social cognition, and communication that can impact decision making, safety, and interpersonal connection. Marie will review potential signs of […]
A member forum exploring technology solutions that can support people living with ALS/MND (PALS) in daily life, communication, and independence. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A member forum exploring technology solutions that can support people living with ALS/MND (PALS) in daily life, communication, and independence. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
This webinar will provide an overview of the rapidly evolving landscape of artificial intelligence. We will look at responsible and trustworthy AI, and the importance of governance as it relates to the ALS/MND community. Join the conversation about how this growing technology can help enrich quality of life. Register now
One of the biggest questions after an ALS diagnosis is, "What happens next?" This webinar will walk through common changes and the care decisions they may bring, helping you understand what to expect, when to start planning, and how to make informed choices that fit your priorities. Register now
As genetics becomes increasingly relevant in ALS/MND care and research, important questions are emerging around access, consent, privacy, equity, and support. This member roundtable will examine what rights should guide policy and practice in the genetics era, and how the global community can respond. Group discussion (two options to accommodate time zones): Group 1: […]
The Access for ALL in ALS (ALL ALS) Consortium is a nationwide, NIH-funded clinical research initiative in the United States that collects and shares biological samples and clinical data to accelerate amyotrophic lateral sclerosis (ALS) research. Aeryn Hopwood and Emma Schmidt of the Les Turner ALS Center at Northwestern Medicine will discuss the structure of the study […]
Hospice is often surrounded by fear and misconceptions, yet it can be one of the most valuable sources of support during the ALS journey. Join us for an honest discussion about what hospice care looks like in ALS, what to expect from referral through end of life, and how to make the most of the […]
In recognition of National Family Caregivers Month, join us for a special three-part webinar series exploring the family side of the ALS journey. ALS impacts not only the person living with the disease, but also the caregivers, children, and loved ones who walk alongside them. Through conversations on caregiver wellbeing, family relationships, finding joy together, […]
In recognition of National Family Caregivers Month, join us for a special three-part webinar series exploring the family side of the ALS journey. ALS impacts not only the person living with the disease, but also the caregivers, children, and loved ones who walk alongside them. Through conversations on caregiver wellbeing, family relationships, finding joy together, […]
This webinar will provide an update on ALS/MND treatments currently in Phase 3 clinical trials. Participants will learn about trial timelines, study locations, available programs, and key contacts for further information. The session will offer an overview of the current Phase 3 clinical trial landscape and the latest developments in treatment research. Register now
In recognition of National Family Caregivers Month, join us for a special three-part webinar series exploring the family side of the ALS journey. ALS impacts not only the person living with the disease, but also the caregivers, children, and loved ones who walk alongside them. Through conversations on caregiver wellbeing, family relationships, finding joy together, […]