Member Roundtable: Defining Rights in the Genetics Era of ALS/MND
October 21 @ 7:00 am - 8:30 am EDT
As genetics becomes increasingly relevant in ALS/MND care and research, important questions are emerging around access, consent, privacy, equity, and support. This member roundtable will examine what rights should guide policy and practice in the genetics era, and how the global community can respond.
Group discussion (two options to accommodate time zones):
- Group 1: 9:00–10:30 AM ET
- Group 2: 6:00–7:30 PM ET
Registration Note: Members only. To register or request more information, email alliance@als-mnd.org.