Webinar from Les Turner ALS Foundation – Open Enrollment Matters: Health Insurance Considerations for People Diagnosed with ALS

Zoom Webinar

Title:  Open Enrollment Matters: Health Insurance Considerations for People Diagnosed with ALS Registration Link: https://us02web.zoom.us/webinar/register/WN_6A8UOAtqR2eiOF9RJUYz9A#/registration About the Program Open Enrollment is the time each year when consumers can sign up or make changes to their health insurance coverage. This presentation will outline why you should care about Open Enrollment, factors to consider when enrolling in a […]

Free

Webinar from NEALS – Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One

Zoom Webinar

Join us for the NEALS webinar, "Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One." Presenter Molly Spitz, RD, an ALS-focused registered dietitian from Barnes Jewish Hospital in St. Louis, MO, will share essential information and insights about feeding tubes. Don't miss this opportunity to learn and ask questions […]

Free

Webinar from NEALS – At the Crossroads: Advanced Respiratory Care in ALS

Zoom Webinar

Join us for the final installment in the "Advanced Respiratory Care in ALS" series as we delve into the complexities of respiratory failure in ALS. This session will focus on crucial end-of-life and quality of life considerations, aiming to facilitate timely advanced directives. Our expert presenters will discuss key aspects of respiratory care, including the […]

Free

Event from conSLAncio: 2nd annual Italian Patient-Industry Networking Event

2nd annual Italian Patient-Industry Networking Event with our partners, Oct 9th, in Milano, Italy.   Free registration.   It will focus on the necessary psychological support for persons living with disease.   Please see link below: https://www.conslancio.it/2024/07/22/accompagnare-sempre-il-bisogno-del-sostegno-psicologico-nella-malattiamilano/

Annual Clinical Trials Update

Zoom Webinar

This webinar will provide information on ALS/MND treatments currently in Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered and who to contact if more information is needed.

Free

Workshop from conSLAncio : Motor Neuron Diseases III Edition: Understanding the Pathogenetic Mechanisms to Develop Therapies

Palace of the Anatomical Institutes , Italy

The workshop will focus on motor neuron diseases, in particular ALS and SMA. This hybrid meeting will elucidate biological mechanisms involved in muscular atrophy (at different ages and conditions) and describe therapeutic strategies for these disorders.   For whom may be interested, a social dinner (40€) is planned on 8th November: it will be a […]

Webinar from Les Turner ALS Foundation – Stitching Strength: What I have learned about hope in ALS and how I am trying to weave that into my practice

Online

About the Program Join us for our November ALS Learning Series about hope with Dr. Richard Bedlack. In this talk, Dr. Bedlack will review what he has learned about hope in health and diseases, including ALS. He’ll talk about why it matters, where it comes from, what clinicians do to boost and to suppress it, […]

Free

2024 Alliance Meeting

The 2024 Alliance Meeting will be attended by 100+ delegates in-person and 100+ delegates virtually from over 40 countries around the globe that represent the Alliance’s many member associations. The meeting provides an opportunity for member associations to meet and share advances in supporting people living with ALS/MND. It is an excellent opportunity for representatives of […]

2024 Allied Professionals Forum

The Allied Professionals Forum (APF) includes clinical care presentations for ALS/MND health and social care professionals. During the APF, practitioners from around the globe come together to share their practical knowledge and experiences, with a mission to improve the quality of care for people living with ALS/MND worldwide. On average, we expect 200 professionals to attend […]

35th International Symposium on ALS/MND

The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic lateral sclerosis and motor neurone disease. This year's event will take place in Montreal, Canada on 6-8 December 2024.