ALS TDI has partnered with I AM ALS and the NEALS Patient Education & Advocacy Committee to develop this new series – creating a platform for the ALS community to meet some of the key people in the different ALS organizations that form our community and learn about the work that they are doing. The next event in the series […]
Join us in this conversation where we discuss warning signs, how to safeguard, get help , and maintain mental health in people living with ALS/MND and caregivers.
Join us this fall to discover how creativity and mindfulness can impact your daily life and mindset as a caregiver. Beginning September 28, explore the healing power of journaling. Over six weeks, we’ll dive into practical and powerful tools to aid caregivers in their journaling practices. Register for FREE today, whether you’re an avid writer or just beginning your […]
Time: 12:30pm - 1:00pm Find out what support the MND Association can provide. In this session Pauline Matheson-Marks, Head of National Care at the Association will answer questions about the various grants and equipment services that the MND Association can provide for people living with and affected by MND. And how to apply for them. No […]
From the MND Association - Following the tremendous success of the networking event last year, we are pleased to advise booking is now open for this year's event. Wonderful to see a group of experienced HSCP coming together with a common purpose. Thanks, a great day! Attendee at Networking Event 2022 Throughout the day you […]
An individual’s mental health and how they are supported is important when facing an ALS diagnosis. On October 11, please join presenters from Sunnybrook ALS Clinic and Hospice Niagara, who will provide in-depth information about the importance of emotional health, conversations about anticipatory grief, and how individuals, family, and friends can access mental health resources […]
Time: 10am – 4pm Cost: £40 View events cancellation policy Date: 16 October 2023 Location: Online delivery via Zoom Aim: To help health and social care professionals gain confidence in discussing death, dying and advance care planning with people with MND. By the end of the one-day masterclass, participants will: understand the benefits and challenges of offering opportunities to discuss dying […]
Starting October 25, learn about the importance of creating a self-care practice to help manage stress and maintain balance. In this four-week workshop, we’ll discover various self-care practices through guided art and mindfulness exercises. Register for FREE and learn about using art to improve mental health. (Please register by October 18, 2023) Register now
Starting October 25, learn about the importance of creating a self-care practice to help manage stress and maintain balance. In this four-week workshop, we’ll discover various self-care practices through guided art and mindfulness exercises. Register for FREE and learn about using art to improve mental health. (Please register by October 18, 2023) Register now
About the Program: Informed consent is an essential component of research, but have you ever wondered why? Join us for our October ALS Learning Series where Emma Schmidt, Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine will discuss the history behind informed consent, explain the process of informed consent, your […]
The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI's latest work to discover and develop effective treatments for ALS. The Summit invites all members of the community to learn about ALS TDI's cutting-edge approach to ending ALS. This year along with […]
This webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to contact if more information is needed.
Date: 7 November 2023 Time: 10am-3:30pm (registration and coffee from 9:30am) Cost: £50 View Events Cancellation Policy Location: Newcastle United Football Club, St James Park, Newcastle Upon Tyne, NE1 4ST Aim: to introduce non respiratory specialist members of the MDT to secretion management and airway clearance. Objectives: By the end of the session you will: be better able to identify the presenting […]