A diagnosis of ALS/MND is devastating, not only to the individual receiving the diagnosis, but their family members as well. Discussing a parent’s new diagnosis of ALS/MND with their child […]
The history of clinical trials in ALS/MND has been fraught with failures. It has not been uncommon for a potential therapy to show promise in Phase 2 trial results, then […]
The PALS & CALS Advisory Council of the International Alliance of ALS MND Associations would like to share the results of their CARE Survey done globally. Register here.
A diagnosis of ALS/MND can generate a range of emotions, for both the patient and their caregivers. Patients can experience anxiety and depression, feel isolated, and often feel like a […]
A chance for representatives of ALS/MND associations from around the world to discuss best practice in care, support, technology, science and organisational development.
A chance for representatives of ALS/MND associations from around the world to discuss best practice in care, support, technology, science and organisational development.
This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND.
This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND.
ALS/MND Connect is an open session which allows people living with ALS/MND and their caregivers to attend an afternoon of presentations by neurologists and researchers .
Registration is not open yet. Check back soon.
This is not an easy topic, but one that is important to discuss. In this webinar we will provide PALS and CALS with guidance on how to address this stage […]
Every year the International Alliance of ALS/MND Associations celebrates 21 June as the global day of recognition of ALS/MND – a disease that affects people in every country of the […]