In this presentation, Dr. Grouls will explore a concept people living with ALS know all too well: the financial burden of disease. She will trace the evolution of financial burden […]
The 2025 Patient Fellows will share their key learnings and experiences from participating in the 36th International Symposium on ALS/MND. Guided by the theme “Nothing About Us, Without Us,” this […]
Dr. Kara Bischoff will provide an introduction to palliative care and how it can be helpful to people with ALS and their loved ones. Aspects of advance care planning that […]
Hospice Care and ALS: What It Is, When to Consider It, and How It Supports You Join for our February ALS Learning series which will provide an overview of hospice […]
This webinar will feature an open conversation and testimonials about access to approved treatments for ALS/MND around the world. We will explore which therapies are approved in different countries and […]
Join us for a presentation of the headline findings from the third iteration of the ALS/MND Fundamental Rights Survey. This session will share key data and emerging trends on how […]
Exploring ALS Clinical Trials: What They Are, How to Find Them, and What Happens Next For many in the ALS community, clinical trials represent both hope and uncertainty. This educational […]
The Gift of Discovery: Tissue Donation and the Future of ALS Research Tissue donation is one of the most powerful contributions a person living with ALS can make to future […]
Event: Toward New Perspectives: From Diagnosis to Treatment of Voice Disorders (In Italian) Date: April 11, 2026 Time: 8:00 AM CEST Register here. Alcune patologie neurologiche e otorinolaringoiatriche possono causare […]
Your Care, Your Voice: Becoming an Active Partner in ALS Decision-Making Living with ALS means facing important decisions about your care - and your voice matters in every conversation. We'll […]
Informed Decision-Making in ALS: An Open Discussion on Tracheostomy and Invasive Mechanical Ventilation Join us for an open and honest conversation about one of the more challenging decisions people living […]
Understanding the FTD of an FTD/ALS Diagnosis Frontotemporal degeneration (FTD) and ALS are specific neurodegenerative disorders with different symptoms and underlying biology. As challenging as each can be on their […]