This is a mid-year update of The International Alliance of ALS/MND Associations' Scientific Advisory Council in honour of Global ALS/MND Awareness Day. Join us to ask questions about topics related to ALS/MND research and clinical trials! Register here.
While certain practices and fields of medicine have routinely used telemedicine in patient care, the global COVID-19 pandemic has resulted in a widespread uptake in the use of telehealth, across all areas of health care, in order to continue delivering care during these challenging times. While telehealth has ensured continued, and expanded access to, care […]
A biomarker, short for biological marker, is an objective and quantifiable measure of biological processes or states. Biomarkers can be used to deepen our understanding of a disease, or quantify its state and severity, and are critical in clinical trials in determining, at a biological level, therapeutic effect. In ALS/MND, we lack definitive, quantifiable biomarkers […]
Hear updates of what is happening in Innovation and Technology from members of our Advisory Council. How can technology improve quality of life and give us insights into ALS/MND in a meaningful way. Register here.
A diagnosis of ALS/MND is devastating, not only to the individual receiving the diagnosis, but their family members as well. Discussing a parent’s new diagnosis of ALS/MND with their child can be both challenging and emotional. In addition, children whose parent has been affected by ALS/MND may have fears, concerns, and questions that differ greatly […]
The history of clinical trials in ALS/MND has been fraught with failures. It has not been uncommon for a potential therapy to show promise in Phase 2 trial results, then prove to be ineffective in the subsequent, larger-scale Phase 3 trial. Clinical trials take a considerable amount of time, resources, and funding, and as such […]
The PALS & CALS Advisory Council of the International Alliance of ALS MND Associations would like to share the results of their CARE Survey done globally. Register here.
A diagnosis of ALS/MND can generate a range of emotions, for both the patient and their caregivers. Patients can experience anxiety and depression, feel isolated, and often feel like a burden to their loved ones. Caregivers of a loved one with ALS/MND will experience their own set of challenges, including caregiver burnout. This webinar will […]
A chance for representatives of ALS/MND associations from around the world to discuss best practice in care, support, technology, science and organisational development.
A chance for representatives of ALS/MND associations from around the world to discuss best practice in care, support, technology, science and organisational development.
This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND.
This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND.