TMNDA 25th Anniversary Press Conference

To celebrate the 25th Anniversary of Taiwan MND Association (TMNDA) endeavoring to empower people with ALS to live a better life, we'll launch a two-week Interactive Digital Art Exhibition, FLY HIGH & SHINE, from September 1st to 13th, 2022. We’ll host a press conference from 1030-1130am on September 1st, Thursday.

A Day of Caring for Caregivers

This is a special day designed for those providing care to People with ALS. This invitation is for primary caregivers, family members, friends and former caregivers.

Webinar: INNOVATION IN CLINICAL TRIAL DESIGN Copy

Zoom Webinar

Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical implications for our community.

Webinar: VOICE BANKING Copy

Zoom Webinar

In this webinar we will learn more about the assistive technology of voice banking, how it works, when in the ALS/MND journey should it be done, and how to get access.

Webinar: GENETICS – COUNSELLING & TESTING

Zoom Webinar

Join us in the second webinar of our Cure in ALS/MND series: Genetics – Counselling and Testing. This webinar will provide an update on the latest in ALS/MND Genetics and what is happening in the field.

Alliance Meeting (members-only)

Kona Kai 1551 Shelter Island Drive, San Diego, CA, United States

The 2022 Alliance Meeting will be held on November 28, 29 & 30, 2022 in a hybrid format – both virtually and in San Diego, California, USA! The Alliance Meeting is an opportunity for member associations to meet and share advances in supporting people living with ALS/MND. It is a chance for representatives of ALS/MND […]

Allied Professionals Forum

Kona Kai 1551 Shelter Island Drive, San Diego, CA, United States

The 2022 Allied Professionals Forum will be held on November 30, December 1 & December 2, 2022 in a hybrid format – both virtually and in San Diego, California, USA! The Allied Professionals Forum (APF) is an educational and training forum for allied health professionals, such as physiotherapists, respiratory therapists, nutritionists, speech-language pathologists, social workers and more, […]

WEBINAR: What do I need to know about clinical trials?

Zoom Webinar

Learn about the importance of clinical trials, how to find a suitable clinical trial, and what to consider if you want to take part and next steps. Moderated by Rachael Marsden. Panelists include Allison Bulat, Nadia Sethi & Paula Trefiak.

WEBINAR: Sharing Success: A Fireside Chat with the 2022 Award Winners

Zoom Webinar

Join us in an informal conversation with the 2022 Award winners on their careers, and their contributions to the field of ALS/MND. Panellists include Sally Light (Humanitarian Award recipient), Dr. Richard Bedlack (Forbes Norris Award recipient), Richard Cave (Allied Health Professional Award recipient).

WEBINAR: Genetic Counselling and Testing

Zoom Webinar

Familial or sporadic ALS/MND, the importance of genetic counselling and testing can´t be emphasized enough. Join us for this scenario-based discussion which will look at real situations ranging from an ALS/MND asymptomatic carrier to someone whose parent had ALS/MND, but has not done genetic testing.

WEBINAR: Maintaining my independence

Zoom Webinar

A panel with occupational therapists in ALS/MND providing recommendations for PALS at different stages of their journey. Tips, considerations, and what can be done at home.