Effective advance care planning is the important theme of this prestigious event, which is being organised by the MND Association and the Royal College of Speech and Language Therapists (RCSLT). […]
Time: 12:30pm - 1:00pm In this session Caroline Bidder, MND Network Coordinator, Swansea Bay will answer questions about how an MND network operates, what makes this dispersed model of care the […]
Time: 11.00am – 12.30pm Aim: To increase understanding of how pain may be experienced in MND and potential methods to treat it. Objectives: to examine current practice for pain management in MND […]
Join us for our December ALS Learning Series with Dr. Melinda S. Kavanaugh. Dr. Kavanaugh will discuss ways in which ALS affects mental health and the need for support – […]
Title: A conversation with a genetic counselor: Could the ALS in my family be genetic? Speaker: Laynie Dratch Date/Time: Wednesday, January 31, 2024 at 12:00pm CST Link to register: https://attendee.gotowebinar.com/register/233260727250953046 About the Program: About the […]
February 21, 2024 – 7AM ET This webinar will provide an understanding of the importance of nutrition in ALS/MND. We will address nutritional changes upon diagnosis, considerations for bulbar onset […]
The Penn Frontotemporal Degeneration (FTD) Center is excited to open registration for our fourth annual familial conference, Uncovering the Genetics of FTD/ALS, on Wednesday, February 21st, 3:00PM to 6:00PM EST. Please register by visiting www.pennmedicine.org/FTDCFamilialConference2024. This event will take place virtually and the link will be provided once you've registered. Our […]
Dr. Ikjae Lee, from the Eleanor and Lou Gehrig ALS Center at Columbia University, will present a summary of literature on the intake of various macronutrients and their impact on […]
We are kicking off State of Play for 2024 with a look at how tech research can help people living with MND. MND Australia's Dr Ben O'Mara will talk about […]
This webinar will cover the essentials to understand respiratory support in ALS/MND. We will cover how breathing is affected, what care and support can be followed, non-invasive equipment available, […]