Your Care, Your Voice: Becoming an Active Partner in ALS Decision-Making Living with ALS means facing important decisions about your care - and your voice matters in every conversation. We'll […]
Informed Decision-Making in ALS: An Open Discussion on Tracheostomy and Invasive Mechanical Ventilation Join us for an open and honest conversation about one of the more challenging decisions people living […]
Understanding the FTD of an FTD/ALS Diagnosis Frontotemporal degeneration (FTD) and ALS are specific neurodegenerative disorders with different symptoms and underlying biology. As challenging as each can be on their […]
Platform trials are reshaping how new therapies are tested in ALS/MND. Join us for updates from leaders of EXPERTS-ALS, HEALEY, and SMART, who will share the latest on trial design, […]
A member forum exploring fundraising strategies, opportunities, and shared learning to strengthen organizational capacity. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A member forum exploring fundraising strategies, opportunities, and shared learning to strengthen organizational capacity. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
Connected Through the ALS Journey: Support, Resources, and Community May 12 @ 2:00 pm - 3:30 pm EDT May 13 @ 2:00 pm - 3:30 pm EDT May 14 @ […]
A member forum focused on advocacy strategies, campaign development, government engagement, and approaches to securing funding. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A member forum focused on advocacy strategies, campaign development, government engagement, and approaches to securing funding. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
Finding Your People: Real Stories of Community After an ALS Diagnosis An ALS diagnosis can change everything — but it doesn't mean navigating the road ahead alone. In this panel […]
A member forum examining workforce challenges affecting organizations and services across the ALS/MND community. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A member forum examining workforce challenges affecting organizations and services across the ALS/MND community. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A New Way to Measure What Matters Join us for an inspiring one-hour conversation with Peggy Plews-Ogan, MD, of the Hummingbird Fund, as she shares the story behind the ALS […]
Multidisciplinary care extends life and improves quality of life, yet clinic structures differ greatly across regions. This member roundtable will explore the key components of a baseline ALS/MND clinic model, […]
Les Turner ALS Foundation: ALS-FTD Clinicopathological OverlapTravel and exploration don’t need to stop with an ALS diagnosis. Join us for our July ALS Learning Series on travel. Kari Brouwer, Craig […]
A member forum discussing barriers, opportunities, and practical approaches to improving equitable access to ALS/MND care. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A member forum discussing barriers, opportunities, and practical approaches to improving equitable access to ALS/MND care. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap ALS and frontotemporal dementia (FTD) are increasingly understood to share underlying biological connections, and some people living with ALS may also experience changes […]
A member forum focused on health literacy and improving understanding, navigation, and access to information for people affected by ALS/MND. Registration note: Members only. To register or request more information, […]
Changes with eating and swallowing are common in ALS, and can feel overwhelming, but having the right information can make planning ahead easier. Join us for a practical conversation about […]
A member forum focused on health literacy and improving understanding, navigation, and access to information for people affected by ALS/MND. Registration note: Members only. To register or request more information, […]
Small tools can make a big difference in everyday life with ALS. Join us to learn about affordable products that can help with daily activities, where to find them, and […]
Join us on Wednesday September 23, at 1 pm ET for "Living and Loving with Loss: A Webinar on Navigating Grief While Living with ALS." A diagnosis of ALS brings […]
In this webinar, Marie Saxon, MS, CCC-SLP will review the most commonly observed cognitive and language symptoms in individuals with ALS and FTD, as well as their functional implications. Symptoms […]
A member forum exploring technology solutions that can support people living with ALS/MND (PALS) in daily life, communication, and independence. Registration note: Members only. To register or request more information, […]
A member forum exploring technology solutions that can support people living with ALS/MND (PALS) in daily life, communication, and independence. Registration note: Members only. To register or request more information, […]
This webinar will provide an overview of the rapidly evolving landscape of artificial intelligence. We will look at responsible and trustworthy AI, and the importance of governance as it relates […]
One of the biggest questions after an ALS diagnosis is, "What happens next?" This webinar will walk through common changes and the care decisions they may bring, helping you understand […]
As genetics becomes increasingly relevant in ALS/MND care and research, important questions are emerging around access, consent, privacy, equity, and support. This member roundtable will examine what rights should guide […]
Hospice is often surrounded by fear and misconceptions, yet it can be one of the most valuable sources of support during the ALS journey. Join us for an honest discussion […]
This webinar will provide an update on ALS/MND treatments currently in Phase 3 clinical trials. Participants will learn about trial timelines, study locations, available programs, and key contacts for further […]
The fourth edition of Motor Neuron Diseases brings together researchers and clinicians to share advances in understanding motor neuron diseases, including disease mechanisms and emerging therapeutic approaches. The event is […]
The conSLAncio ETS Association, founded by Andrea Zicchieri, member of the International Alliance of ALS/MND Associations, EUpALS (European Organization for Professionals and People with ALS), the EU ALS Coalition, and […]
A member forum examining how artificial intelligence may impact people living with ALS/MND, care delivery, research, and support services. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A member forum examining how artificial intelligence may impact people living with ALS/MND, care delivery, research, and support services. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
Our Annual Meeting will be taking place virtually. This meeting will provide an opportunity to reflect on achievements and discuss priorities for the coming year. Additional details will be shared […]
The Alliance Meeting is the place where member associations can meet and share experiences in growing, running and building an ALS/MND association to support people living with ALS/MND. The meeting […]