35th International Symposium on ALS/MND
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic […]
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic […]
In this webinar, Drs. Andrews, Babu and Bedlack will explain what Expanded Access Programs (EAPs) are and how they differ from other pathways by which people living with ALS can […]
About the Program Every caregiver — and every caregiving journey — is unique, but there are some commonalities among caregivers of family members living with ALS. Most say caregiving is […]
In 2016, a "secret shopper" initiative was launched to assess the responsiveness of ALS clinical trial sites to patient inquiries. The findings revealed significant challenges in both the quality and […]
When you slide more or less quickly from independence to total physical and social dependence, you really need to have confidence in your environment and in society in order not […]
ALS/MND PLATFORM TRIALS UPDATE 19 March 8 am ET Registration: https://us02web.zoom.us/webinar/register/WN_GEOgomftSVOcV0woGWug4g#/registration We will have captions available This webinar will provide information on ALS/MND platform trials. We will hear from […]
About the Program In this talk Dr. Berry will discuss the aims, design considerations, and implementation of observational studies, highlighting the many ways observational studies hastened drug development and can […]
About the Program Join us for our April ALS Learning Series with Dr. Goutman, neurologist, from University of Michigan. Dr. Goutman will discuss research related to how environmental exposures influence […]
About the Program Understanding our gaps in knowledge about the social and structural determinants of health inequities in ALS is integral to making sure ALS becomes a livable disease. In […]
About the Program Join us for our May ALS Learning Series with Dr. Kelly Gwathmey from Virginia Commonwealth University. She will explore the causes and consequences of ALS diagnostic delay, […]
The upcoming ENCALS meeting will be hosted in Turin, Italy, from June 3-6, 2025. Satellite meetings will take place on Tuesday morning (June 3) and Friday (June 6). The program […]
June 12 at 5:00 PM CEST Registration This session will explore how to strengthen the mental and emotional support you offer to the ALS community, with practical guidance on understanding […]