Member Roundtables

Roundtable Resources

Fundamental Rights: (e)Quality of Life Roundtable (February 2025)

• (e)Quality of Life Report

India Discovery Roundtable (October 2024)

• India Discovery Meeting Report

Fundamental Rights: Access to Care Roundtable (June 2024)

• Access to Care Roundtable Report

Fundamental Rights: Access to Treatment Roundtable (February 2024)

• Access to Treatment Roundtable Report

Emergency Preparedness Roundtable (May 2023)

• Emergency Preparedness Roundtable Report
• Emergency Preparedness Plan Template (This template will automatically download as a Microsoft Word document so you can customize it to suit your environment and situation. We recommend creating a PDF of your final version before distributing.)
• Emergency Preparedness Toolkit

Optimizing Clinical Trials Roundtable (October 2022)

• Optimizing Clinical Trials: Outcome Measures for ALS-MND Report

Genetics Summit Roundtable (Spring-Summer 2022)

• Genetics Summit Report

Regulatory Pathways Roundtable (October 2021)

• Regulatory Pathways Roundtable Report

ITAC Roundtable (June 2021)

• Spectrum of Possibilities Report