• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Subscribe to our Bi-Monthly Newsletter

July 29, 2020 by

Fill out the form below to subscribe to the Alliance’s bi-monthly newsletter, packed with updates from members associations from around the world!

Primary Sidebar

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Mike Small, UK

    Mike Small, UK

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Alex, Argentina

    Alex, Argentina

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Jack Buzby, USA

    Jack Buzby, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Purningam Jacob, India

    Purningam Jacob, India

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • David Bishop, UK

    David Bishop, UK

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Susan Keldani, USA

    Susan Keldani, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Greg Heydet, USA

    Greg Heydet, USA

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Jean

    Jean
    jean

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login