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International Alliance of ALS/MND Associations

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    • Fundamental Rights for People with ALS/MND and Caregivers
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      • Amylyx – AMX0035
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Nursing and Symptom Management

Click on the icon below to visit our playlist of videos related to Nursing and Symptom Management.

The following are resources from Members of the International Alliance of ALS/MND Associations on the topic of Nursing and Symptom Management.

Information for Professionals

This page has information for health and social care professionals who provide care and support for people with motor neurone disease (MND) in the United Kingdom.

https://www.mndassociation.org/forprofessionals/

Language: English
Subject areas: For Clinicians

MND Care

Welcome to MNDcare – the MND Australia evidence based and best practice website for health, disability, aged and community care professionals – getting motor neurone disease care research into practice.

http://www.mndcare.net.au/Home.aspx

Language: English
Subject areas: Care and Support Guides and Manuals, For Clinicians, Navigating Healthcare Systems

Medical Information and Materials

These pages have been developed as communication and educational tools to help inform medical providers as well as provide pertinent insurance and family information. They may be used as a packet or as individual pages, based on individual preference and need. The electronic versions of these pages have been built as a form with fillable fields. Individuals can type their information within the pdf and save and/or print when complete.

http://www.alsa.org/als-care/resources/publications-videos/medical-information-packet/

Language: English
Subject areas: For Clinicians

Living with MND

This page explores how to manage daily living with MND. The challenges can feel overwhelming, but support and planning ahead can help you maintain the best possible quality of life. Categories include: Mobility and personal care; Speech and communication; Swallowing, eating and drinking; Relationships and family; Emotions, thinking and behavior; and Breathing and ventilation.

https://www.mndassociation.org/about-mnd/living-with-mnd/

Language: English
Subject areas: Care and Support Guides and Manuals, Equipment, Communications and Assistive Technology, For Families and Caregivers

Living with ALS Resource Guides

The ALS Association’s Living with ALS Resource Guides were created because of the rapidly expanding information and research in the clinical management of ALS. These cornerstone educational materials were designed to inform and educate people about ALS in a comprehensive and easily understood format. They address many of the common concerns and issues that face people living with ALS.

http://www.alsa.org/als-care/resources/publications-videos/resource-guides/

Language: English
Subject areas: Care and Support Guides and Manuals, For Families and Caregivers, Navigating Healthcare Systems

Leben mit ALS

Leben mit ALS:

Atmung
Ernährung
Kommunikation
Therapie
Häusliche Pflege
Stationäre Aufenthalte
Mobilität & Reisen
Hilfsmittel & WohnberatungElektronische Hilfsmittel
Wohnberatung
Technische Hilfsmittel
Unser Hilfsmitteldepot
MyCareHelper
Bekleidung
Finanzielle Unterstützung
Patientenverfügung
Testament

http://www.als-schweiz.ch/de/leben_mit_als/

Language: German
Subject areas: Care and Support Guides and Manuals, For Families and Caregivers

Primary Sidebar

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

  • Brian Parsons

    Brian Parsons

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Fabio Correia

    Fabio Correia

  • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

    Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

    Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

  • Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

    Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Juvenal Bayona Romero

    Juvenal Bayona Romero

  • Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

    Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

  • Susan Anderson, Diagnosed 2014 , Hope Loves Company,  USA

    Susan Anderson, Diagnosed 2014 , Hope Loves Company, USA

  • Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

    Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Dr Shelly Hoover

    Dr Shelly Hoover

  • Tison, USA

    Tison, USA

  • Zabun Nassar, MND Association, Diagnosed 2016, England

    Zabun Nassar, MND Association, Diagnosed 2016, England

  • IMG_1211

    IMG_1211

  • Osiel Mendoza, Diagnosed 2016 ,  ALS Therapy Development Institute, USA

    Osiel Mendoza, Diagnosed 2016 , ALS Therapy Development Institute, USA

  • Angie Bordaen, Diagnosed 2014,  ALS Liga België, Belgium

    Angie Bordaen, Diagnosed 2014, ALS Liga België, Belgium

  • David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

    David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

  • Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

  • Margreth Burger-Saile, Diagnosed 2011,  ALS Schweiz,  Switzerland

    Margreth Burger-Saile, Diagnosed 2011, ALS Schweiz, Switzerland

  • Monica Soriano, Diagnosed 2011 ,  Asociación ELA , Argentina

    Monica Soriano, Diagnosed 2011 , Asociación ELA , Argentina

  • Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

    Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Rosie Riley, Les Turner ALS Foundation, USA

    Rosie Riley, Les Turner ALS Foundation, USA

  • Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

    Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

  • David Bishop

    David Bishop

  • Chris McCauley, Diagnosed 2015 , ALS Canada

    Chris McCauley, Diagnosed 2015 , ALS Canada

  • Roxana Canova, Diagnosed 2012 ,  Asociación ELA Argentina

    Roxana Canova, Diagnosed 2012 , Asociación ELA Argentina

  • Dad

    Dad

  • Chih Ching Darren Wong, MND Malaysia

    Chih Ching Darren Wong, MND Malaysia

  • Brigitte Wernli,  Association ALS Switzerland,  Diagnosed 2014

    Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Jeff Sutherland

    Jeff Sutherland
    jspic

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Jean

    Jean
    jean

  • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    Dawn Morton, Diagnosed 2014 , MND Scotland, UK

  • Maurice LeClerc, ALS Canada

    Maurice LeClerc, ALS Canada

  • Ada Garrido Benavidez, Diagnosed 2016,  FYADENMAC, Mexico

    Ada Garrido Benavidez, Diagnosed 2016, FYADENMAC, Mexico

  • unnamed

    unnamed

  • Conny van der Meijden, Diagnosed 2001,  ALS Netherlands

    Conny van der Meijden, Diagnosed 2001, ALS Netherlands

  • Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

    Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

  • Bob Simonds and Drew O'Neill , Les Turner ALS Foundation, USA

    Bob Simonds and Drew O’Neill , Les Turner ALS Foundation, USA

  • Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

    Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

  • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

    Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

  • Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

    Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

  • Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

    Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

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