ALS/MND affects each person differently, and symptoms change over time. Nursing and symptom management focuses on treating those symptoms and adjusting care as needs change. This work is usually shared among a multidisciplinary care team, the person living with ALS/MND, and their family or caregivers.
The guides and tools below come from Alliance member organizations. They explain common symptoms and how care can address them, and provide clinical reference material for health and social care professionals. They do not replace advice from a person’s own care team.
On this page
Guides for people living with ALS/MND and their families
These resources provide practical information about managing symptoms, adapting to changes, and planning ahead as ALS/MND progresses.
Living with ALS Resource Guides
The ALS Association · English
This series of 11 guides covers the main areas of daily life and care with ALS. Topics include managing symptoms, mobility, swallowing and nutrition, speech and communication, breathing, thinking and behaviour, planning, insurance, and end-of-life care.
Living with MND
MND Association · English
Information about managing daily life with MND and planning ahead. Topics include mobility and movement, personal care, speech and communication, swallowing, eating and drinking, relationships and family, breathing and ventilation, emotions, thinking and behaviour, and safety at home.
Leben mit ALS (Living with ALS)
ALS Schweiz · German and French
Information about breathing, nutrition, communication, care and support, home adaptations, mobility and travel, and advance care documents.
Resources for health and social care professionals
These resources provide clinical guidance, education, and practical information to support multidisciplinary ALS/MND care.
Information for Professionals
MND Association · English · For health and social care professionals
Evidence-based information about caring for people with MND, including clinical guidance, publications, and educational events. Some content applies only to the United Kingdom.
MNDcare
MND Australia · English · For health and care professionals
An evidence-based, best-practice resource for health, disability, aged care, and community care professionals. It supports putting MND care research into practice, including assessment, communication, and ventilation support.
Videos about nursing and symptom management
Watch recorded presentations about nursing care and symptom management for people living with ALS/MND.