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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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Finance Committee

The role of the International Alliance of ALS/MND Associations’ Finance Committee is responsible for reviewing the integrity of the organization’s financial reporting and overseeing the independence of the external auditors.

Chair of the Finance Committee

Tammy Moore

Tammy Moore first came to know ALS/MND when a family member was diagnosed in 2008. Over the subsequent five years, she was witness to the challenges her family faced. In 2014,Tammy became the CEO of the ALS Society of Canada, a national organization with a mission to improve the lives of Canadians affected by ALS/MND through advancing research, care, advocacy and information.

Tammy has served on Boards and Advisory Councils internationally, nationally and regionally. With the Alliance specifically, she has served on the Board, Advocacy & Public Policy Forum, Innovation & Technology Advisory Council and Strategic Planning Working Group. She has also been involved with Health Charities Coalition of Canada Board, and Compliance, Accountability, Transparency & Ethics Working Group; Ashiana Holdings; Palliative Care Matters; British Columbia Cancer Agency – Southern Interior; Women’s Enterprise Centre of British Columbia; and local arts, sports and service organizations.

Committee Members

David Ali

David AliDavid is passionate about helping to make a difference for people living with ALS/MND, having volunteered for the past 20-years on ALS/MND-related boards and in other ways at the local State, national and global levels. As the CEO of MND Australia since March 2021, David is more focused on contributing at an operational level to improve the impact for people across Australia affected by MND today and in the future.

David has a background in social policy and corporate services through a range of executive roles across the public sector, Parliament (the legislature), as a management consultant, and in the not-for-profit sector.  He also brings much experience as an executive and non-executive director on government and not-for-profit boards.  David says it is a real privilege to be part of the talented Board of the International Alliance since December 2017.

Pablo Aquino

Pablo Aquino is a Certified English/Spanish Translator, Journalist, and the Secretary of the ALS Association of Argentina (Asociacion ELA Argentina), first and only charity exclusively focused on ALS in the country. He was one of the Association’s co-founders in November 2011, and has been assisting in the management of projects along with President Dario Ryba and the rest of the board, and developing the international relations of this institution since then. He was the coordinator and personal interpreter of international visits in Argentina, such as Drs. Lucie Bruijn, Jonathan Glass, Ammar Al-Chalabi, Hiide Yoshino and Angela Genge. Pablo has been the speaker for Asociacion ELA Argentina in every Annual Meeting of the International Alliance of ALS/MND Associations since 2013, and also participated in the constitution of UNELA, the Latin American Union of ALS/MND Associations.
 
 His older and only brother, Alejandro, died of ALS/MND in April 2017.

Nina Barakzai

Nina Barakzai is immediate Past Chair of the UK’s Commerce & Industry Group, representing UK in-house counsel.  She is Group Head of Data Protection & Privacy for the Sky group of companies, handling all aspects of privacy and data governance.  She is Vice President of In-House Counsel Worldwide; sits on the Advisory Board of the Future of Privacy Forum; served as Board Member on the International Federation of Accountants’ International Ethics Standards Board and sits on the Chartered Institute of Management Accountants’ Research Advisory Group, chairing the call for research papers on Big Data.  Her professional experience is in compliance, business ethics, privacy, corporate transactions, cloud services, cybersecurity and social media.  She is an accountant and solicitor and serves as Trustee for two community charities.

Sheila Erickson

Sheila has operated SME Interim, providing interim management services in the not-for-profit sector since 2014. Sheila started SME Interim after 15 years of working in a variety of not-for-profit organizations, including a national professional association, community based social service agency, animal welfare shelter and a national charity. She is a Chartered Professional Accountant with a degree in Economics from McMaster University.

Sheila is passionate about the importance of helping out wherever needed, and has volunteered on both the governance and programming level over the years. As a new member to the Budget and Finance Committee, she’s inspired by the collaborative nature at the International Alliance of ALS/MND Association and looking forward to contributing her financial expertise.

In her spare time Sheila loves spending time outdoors, either at her cottage or travelling abroad on a walking holiday. “It’s truly the best way to experience a new destination”.

Evy Reviers

A woman with long hair smiles while seated at a table, holding papers, in a professional setting.Evy Reviers is the daughter of a person who passed away from ALS/MND. As Chief Executive Officer since 2007 and Chairwoman since 2021 of ALS Liga Belgium, Evy performs the general management of the organization and stand up for the voice of people living with ALS/MND in Belgium, Europe and on the international scale.

In Belgium, she has obtained several priority procedures to increase the quality of life of people with ALS/MND. At the European level, she is the Chairwoman of the European Organisation for Professionals and People with ALS (EUpALS), and defends the rights of people living with ALS/MND in scientific advice procedures at the European Medicines Agency (EMA). She is also a member of TRICALS, Project MinE, the Rare Diseases Organisation Belgium, patient representative at EMA, and EURORDIS. She has also served for several terms as a member of the Board of the Alliance.

Yohei Yamada

Yohei Yamada was born in Hokkaido, Japan, but as his parents were teachers, he moved around Hokkaido with his family. In 1993, Yohei attended high school in Idaho, USA. In 1998, Yohei attended Idaho State University, where he received his bachelor’s degree in psychology. Yohei returned to Japan in 2003 and worked for a company that imported bovine genetics, primarily from North America. Yohei was a translator, negotiator, analyst, and business consultant who travelled around the globe for the dairy industry.

Symptoms of ALS/MND appeared, around the summer of 2013. Yohei was diagnosed with ALS/MND in October 2014, a week after his youngest daughter was born. He announced the diagnosis of ALS/MND to his friends on Facebook New Year’s Eve of 2014. A Japanese dairy farmer started the Ice Bucket Challenge to raise awareness of ALS/MND for Yohei on the New Year of 2015. This movement spread throughout the dairy industry worldwide.

Yohei retired from the dairy industry in February 2016 and had a tracheotomy in July 2016. In August 2018, an American company and the worldwide leader in Bovine Genetics called American Breeders Service (ABS) Global named a bull after Yohei and has donated every unit sold to ALS/MND researchers. The holstein bull, YOHEI, ranked as the #1 bull in Canada in April 2023.

In May 2019, Yohei established a company to send specially trained caregivers to ALS/MND fighters. Yohei was appointed as a Director of Japan ALS Association in April 2022, joined the Board of Directors of the International Alliance of ALS/MND Associations in November 2022, and a Branch Manager of Japan ALS Association Hokkaido Branch in June 2023.

Yohei lives with his wife and three children (two girls and one boy).

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About

  • Who We Are
  • Board of Trustees
  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
    • Innovation and Technology Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Archives
    • Newsletters
    • Meetings
  • Awards

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

  • Alan Liz Ogg 29042016 000799 lo res

    Alan Liz Ogg 29042016 000799 lo res

  • Mary Thomas, Diagnosed 2013 , MND Australia

    Mary Thomas, Diagnosed 2013 , MND Australia

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Susan Keldani, Les Turner ALS Foundation, USA

    Susan Keldani, Les Turner ALS Foundation, USA

  • Nicholas (Nic) Bowman, MND Association of South Africa,  Diagnosed 2016,  Australia

    Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

  • Wendy Hendrickson, ALS Hope Foundation, USA

    Wendy Hendrickson, ALS Hope Foundation, USA

  • Brigitte Wernli,  Association ALS Switzerland,  Diagnosed 2014

    Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014

  • Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

    Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

  • Graham Johnson, MND Australia

    Graham Johnson, MND Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Orlando Ruiz, Diagnosed 2001,  ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001, ACELA, Colombia

  • Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

    Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

  • Conny van der Meijden, Diagnosed 2001,  ALS Netherlands

    Conny van der Meijden, Diagnosed 2001, ALS Netherlands

  • Mike Rannie,  ALS Canada,  Diagnosed 2017

    Mike Rannie, ALS Canada, Diagnosed 2017

  • Ann Nicol

    Ann Nicol

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

    Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

  • Wilfried Leusing

    Wilfried Leusing

  • Eddy LeFrançois, Diagnosed 1992,  ALS Canada

    Eddy LeFrançois, Diagnosed 1992, ALS Canada

  • Natalya Rybakova, Russian Charity ALS Foundation

    Natalya Rybakova, Russian Charity ALS Foundation

  • Norm MacIsaac,  ALS Society of Canada,  ALS Society of Quebec,  Diagnosed 2014

    Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014

  • Phil Rossall, MND-Association, UK

    Phil Rossall, MND-Association, UK

  • Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

    Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Chris McCauley, Diagnosed 2015 , ALS Canada

    Chris McCauley, Diagnosed 2015 , ALS Canada

  • Brian Lovell, Diagnosed 2011 . MND Australia

    Brian Lovell, Diagnosed 2011 . MND Australia

  • JP

    JP

  • Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

    Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

  • Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

    Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

  • Ian Roberts

    Ian Roberts

  • Liam Dwyer, England

    Liam Dwyer, England

  • IMG_2658

    IMG_2658

  • Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

    Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

  • Angie Bordaen, Diagnosed 2014,  ALS Liga België, Belgium

    Angie Bordaen, Diagnosed 2014, ALS Liga België, Belgium

  • Ada Garrido Benavidez, Diagnosed 2016,  FYADENMAC, Mexico

    Ada Garrido Benavidez, Diagnosed 2016, FYADENMAC, Mexico

  • Dad

    Dad

  • Joanne Pratt, Diagnosed 2011 , MND Australia

    Joanne Pratt, Diagnosed 2011 , MND Australia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Jean

    Jean
    jean

  • Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

    Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

  • Marcel R. Wernard, Diagnosed 2016,  ALS Patients Connected,  The Netherlands

    Marcel R. Wernard, Diagnosed 2016, ALS Patients Connected, The Netherlands

  • Carlos Alberto Báez Murillo, ACELA, Colombia

    Carlos Alberto Báez Murillo, ACELA, Colombia

  • Tammy Moore and Eddy Lefrancois

    Tammy Moore and Eddy Lefrancois

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Bjarne Hytjanstorp, ALS Norge, Norway

    Bjarne Hytjanstorp, ALS Norge, Norway

  • Dr Shelly Hoover

    Dr Shelly Hoover

  • Mauril Belanger

    Mauril Belanger

  • Enzo Maccarrone, AISLA ONLUS, Italy

    Enzo Maccarrone, AISLA ONLUS, Italy

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