Welcome to the ALS Forum. We were started in 2000 by the ALS Therapy Development Foundation (now Institute), which continues to moderate with the help of long-time forum members. The purpose of this forum is to exchange information about ALS, scientific advances in ALS, and treatments for ALS. Forum members include people living with ALS today as well as their care providers, family members, friends, neurologists as well as neurodegenerative disease researchers and pharmaceutical executives. We encourage an open dialogue and the sharing of ideas and opinions. However, bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be removed and may lead to termination of forum privileges. If you have any questions about the use of this forum, or experience difficulties, please email us at info@als.net.
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What is ALS?
Every 90 minutes someone is diagnosed with amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disorder. Each case is different, and the community of people with ALS and the care providers involved with ALS TDI share their experiences to help those newly diagnosed and their families. Advancements in ALS research have provided significant new insights into ALS, how to stratify those diagnosed, and develop effective treatments and cures…