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International Alliance of ALS/MND Associations

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Alliance Meeting

LOCATION UPDATE: Due to ongoing travel uncertainties to the U.S., our meetings will now take place in Toronto, Canada. We know this change may disrupt your plans and appreciate your understanding. We hope to see you there in person or virtually! 


Be part of this gathering of passionate individuals dedicated to creating a world free of ALS/MND! The Alliance Meeting is the place where member associations can meet and share experiences in growing, running and building an ALS/MND association to support people living with ALS/MND. The meeting is attended by 150+ delegates from over 30 countries around the globe, either in-person or virtually, that represent the Alliance’s many member associations.

When: November 29-30, 2025
Where: Toronto, Canada and Virtual Platform
Program: See the preliminary program. 

To guarantee the lowest pricing (in-person – £325; virtual – £125), register now.

Call for Abstracts Open 

Abstract submissions for the Alliance Meeting are open to members only. We invite you to share your experiences and insights on the following themes: delivering value to your ALS/MND community, strategic success, and capacity building. Submissions should highlight innovative and practical approaches, outcomes achieved, lessons learned, and the impact of your work. 

Deadline to submit: Monday, June 2

  • Submit your abstract for the Alliance Meeting.

See the questions on the abstract application to prepare.

If you have any questions, reach out to Jessica Mabe, Programs Coordinator, at jessica.mabe@als-mnd.org.

What Last Year’s Participants Had to Say

  • “The most valuable part of this meeting was all being together in the same place in the world. So many different perspectives, and we became actual three-dimensional people to each other!”
  • “This is my first time of attending the conference, so I can only say that it empowered me to know all that is done worldwide for ALS/MND. Thank you.”
  • “Thank you for the opportunity to learn from so many. Your online platform is awesome!”

You can also find a recap of the 2024 international meetings in our December newsletter. 

2025 Host Associations

 

 

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

  • March of Faces Photo Submission_ALEX_ELA ARGENTINA

    March of Faces Photo Submission_ALEX_ELA ARGENTINA

  • Lachlan Terry,  MND Australia,  Diagnosed 2015

    Lachlan Terry, MND Australia, Diagnosed 2015

  • Steve Gallagher, ALS Society of Canada

    Steve Gallagher, ALS Society of Canada
    Picture1

  • Kirsten Harley,  Diagnosed 2013,  Australia

    Kirsten Harley, Diagnosed 2013, Australia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

    Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

  • Jean

    Jean
    jean

  • 83

    83

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Brigitte Wernli,  Association ALS Switzerland,  Diagnosed 2014

    Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014

  • Jason Goodman, Les Turner ALS Foundation, USA

    Jason Goodman, Les Turner ALS Foundation, USA

  • Dick Dayton, USA

    Dick Dayton, USA

  • Orlando Ruiz, Diagnosed 2001,  ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001, ACELA, Colombia

  • Zabun Nassar, MND Association, Diagnosed 2016, England

    Zabun Nassar, MND Association, Diagnosed 2016, England

  • Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

    Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

    Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

  • Lombana, Spain

    Lombana, Spain

  • Len Johnrose,  MND Association,  Diagnosed 2017,  England

    Len Johnrose, MND Association, Diagnosed 2017, England

  • Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

    Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

  • Timmy, ALS Liga

    Timmy, ALS Liga

  • Daniel Hare

    Daniel Hare

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Steve

    Steve

  • Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

    Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

    Ana Lilia RodriguezApoyo Integral Gila A.C., Diagnosed 2018, Mexico

  • Philip Brindle,  MND Association,  Diagnosed 2015,  England

    Philip Brindle, MND Association, Diagnosed 2015, England

  • England-Lee-Millard, UK

    England-Lee-Millard, UK

  • Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

    Sharon Corosanite, Diagnosed 2014 , ALS Hope Foundation, USA

  • Olga Cosentino, Diagnosed 2013,  Asociación ELA Argentina

    Olga Cosentino, Diagnosed 2013, Asociación ELA Argentina

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Duncan Bayly , MND Australia

    Duncan Bayly , MND Australia

  • Graham Johnson, MND Australia

    Graham Johnson, MND Australia

  • Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

    Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Cath Muir

    Cath Muir
    Cath

  • Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

    Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

  • Bjarne Hytjanstorp, ALS Norge, Norway

    Bjarne Hytjanstorp, ALS Norge, Norway

  • Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

    Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

  • IMG_2658

    IMG_2658

  • Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

    Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

  • H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

    H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

  • Shay Rishoni

    Shay Rishoni

  • Claudette Sturk, ALS Society of Canada

    Claudette Sturk, ALS Society of Canada
    Picture2

  • Jeff Sutherland

    Jeff Sutherland
    jspic

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

Learn more about the March of Faces

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