A member forum exploring fundraising strategies, opportunities, and shared learning to strengthen organizational capacity. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A member forum exploring fundraising strategies, opportunities, and shared learning to strengthen organizational capacity. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
Connected Through the ALS Journey: Support, Resources, and Community May 12 @ 2:00 pm - 3:30 pm EDT May 13 @ 2:00 pm - 3:30 pm EDT May 14 @ 2:00 pm - 3:30 pm EDT Living with ALS can feel overwhelming and isolating. Throughout the ALS journey, connection matters. This special ALS Awareness Month […]
A member forum focused on advocacy strategies, campaign development, government engagement, and approaches to securing funding. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A member forum focused on advocacy strategies, campaign development, government engagement, and approaches to securing funding. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
Finding Your People: Real Stories of Community After an ALS Diagnosis An ALS diagnosis can change everything — but it doesn't mean navigating the road ahead alone. In this panel discussion, Rob Akins, Tina Cascio, Kelly McGinn, and Juan Reyes, people living with ALS, will share their personal stories of finding community, getting involved with […]
A member forum examining workforce challenges affecting organizations and services across the ALS/MND community. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A member forum examining workforce challenges affecting organizations and services across the ALS/MND community. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A New Way to Measure What Matters Join us for an inspiring one-hour conversation with Peggy Plews-Ogan, MD, of the Hummingbird Fund, as she shares the story behind the ALS Turbocharged Living Scale, a powerful framework developed by her late husband. The scale offers a meaningful way for people living with ALS to measure and […]
Multidisciplinary care extends life and improves quality of life, yet clinic structures differ greatly across regions. This member roundtable will explore the key components of a baseline ALS/MND clinic model, how it can be adapted regionally, and how the Alliance can support implementation worldwide. Group discussion (two options to accommodate time zones): Group 1: 9:00–10:30 […]
Les Turner ALS Foundation: ALS-FTD Clinicopathological OverlapTravel and exploration don’t need to stop with an ALS diagnosis. Join us for our July ALS Learning Series on travel. Kari Brouwer, Craig and Emily Mandell, and Monica Meder O’Callaghan will come together to share honest stories and hard-won advice about navigating travel with ALS. From practical planning […]
A member forum discussing barriers, opportunities, and practical approaches to improving equitable access to ALS/MND care. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A member forum discussing barriers, opportunities, and practical approaches to improving equitable access to ALS/MND care. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap ALS and frontotemporal dementia (FTD) are increasingly understood to share underlying biological connections, and some people living with ALS may also experience changes in thinking, behavior, or personality. Join Dr. David Irwin from Penn Medicine, as he explores the relationship between ALS and ALS-FTD, explaining what current research […]
A member forum focused on health literacy and improving understanding, navigation, and access to information for people affected by ALS/MND. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
Changes with eating and swallowing are common in ALS, and can feel overwhelming, but having the right information can make planning ahead easier. Join us for a practical conversation about what to expect, ways to adapt as your needs change, and how to think through decisions about feeding tubes. You'll gain helpful tips, answers to […]
A member forum focused on health literacy and improving understanding, navigation, and access to information for people affected by ALS/MND. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
Small tools can make a big difference in everyday life with ALS. Join us to learn about affordable products that can help with daily activities, where to find them, and which types of equipment are typically covered by insurance, and which are not. From simple over-the-counter items to practical tips for getting what you need, […]
Join us on Wednesday September 23, at 1 pm ET for "Living and Loving with Loss: A Webinar on Navigating Grief While Living with ALS." A diagnosis of ALS brings many layers of loss – both immediate and unfolding over time. Join grief therapist Andrea Warnick and ALS Canada for this compassionate webinar exploring the unique […]
In this webinar, Marie Saxon, MS, CCC-SLP will review the most commonly observed cognitive and language symptoms in individuals with ALS and FTD, as well as their functional implications. Symptoms include reduced executive functioning, attention, memory, social cognition, and communication that can impact decision making, safety, and interpersonal connection. Marie will review potential signs of […]