Join ALS TDI and Her ALS Story (HAS) for the second of a 3-part collaborative Town Hall series, "Your Story. Our Science." Our journey continues with What Are Lesser-Known ALS Symptoms?, where we'll delve into the often-overlooked and less-discussed aspects of living with ALS. Connect with the powerful personal stories of HAS members as they […]
June 12 at 5:00 PM CEST Registration This session will explore how to strengthen the mental and emotional support you offer to the ALS community, with practical guidance on understanding the different types and levels of support, making the most of what’s available, dealing with difficult situations, and sensitive sign-posting. This is the first part […]
Date: June 26, 2025 at 4pm ET (3 CT) Title: Healey Platform Trial Updates & The Les Turner ALS Foundation Registration link: https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw#/registration About the Program: Join us for our June ALS Learning Series webinar — a collaboration with the Healey Center Community Webinars. Catherine Small, Patient Navigator for Healey ALS Platform Trial, will provide updates on current […]
July 1st at 5:00 PM CEST Registration This session focuses inward - on you and your team - offering space to reflect on the emotional demands of leadership and strategies to protect wellbeing, prevent your own burnout and compassion fatigue, and how to create a mentally healthy work environment in your organization. This is the […]
Join ALS TDI and Her ALS Story (HAS) for the third and final installment of our 3-part collaborative Town Hall series, "Your Story. Our Science." Our series concludes with How Can We Improve the Diagnosis Process?, where we will discuss the personal challenges of receiving an ALS diagnosis and the ongoing efforts to make the process faster […]
About the Program Join us for a comprehensive review of current best practices and tools in Message Banking, Voice Banking, and Voice Cloning, including the role of Artificial Intelligence (AI) in voice preservation. After a diagnosis of a progressive condition that impacts speech, an urgent priority is preserving one's voice. However, recording your voice is […]
Join us for a thoughtful and informative conversation with Dr. Robin Plumer and Jeremy Boal as we explore the topic of Medical Aid in Dying (MAID). Dr. Plumer will explain what MAID is, how individuals make the decision to pursue it, and the compassionate, patient-centered environments in which it is provided. This webinar will also address the broader context of […]
About the Program: Join us for an informative session about how occupational therapy can support your daily activities and quality of life while living with ALS. Becca Schroeder, MOT, OTR/L, will explore practical strategies, adaptive equipment, and energy conservation techniques that can help you maintain independence in your home and community utilizing her skills as an […]
On behalf of the organising committee, it is with great pleasure that we invite you to join us at the PACTALS 2025 Conference, taking place from 7th to 9th September 2025 in the vibrant city of Melbourne, Australia. Under the theme "Towards Precision in ALS/MND Treatments," this conference promises to be a pivotal event in […]
Webinar 1: ‘Supporting your community’s mental wellbeing’ Date: October 2 Time: 5:00 PM CEST This session will explore how to strengthen the mental and emotional support you offer to the ALS community, with practical guidance on understanding the different types and levels of support, making the most of what’s available, dealing with difficult situations, and […]
Webinar 2: ‘Looking after your own mental wellbeing as an ALS community leader’ Date: October 9 Time: 5:00 PM CEST This session focuses inward - on you and your team - offering space to reflect on the emotional demands of leadership and strategies to protect wellbeing, prevent your own burnout and compassion fatigue, and how […]
On Friday, October 17, 2025, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI's latest work to discover and develop effective treatments for […]