One of the biggest questions after an ALS diagnosis is, "What happens next?" This webinar will walk through common changes and the care decisions they may bring, helping you understand […]
As genetics becomes increasingly relevant in ALS/MND care and research, important questions are emerging around access, consent, privacy, equity, and support. This member roundtable will examine what rights should guide […]
Hospice is often surrounded by fear and misconceptions, yet it can be one of the most valuable sources of support during the ALS journey. Join us for an honest discussion […]
This webinar will provide an update on ALS/MND treatments currently in Phase 3 clinical trials. Participants will learn about trial timelines, study locations, available programs, and key contacts for further […]
The fourth edition of Motor Neuron Diseases brings together researchers and clinicians to share advances in understanding motor neuron diseases, including disease mechanisms and emerging therapeutic approaches. The event is […]
The conSLAncio ETS Association, founded by Andrea Zicchieri, member of the International Alliance of ALS/MND Associations, EUpALS (European Organization for Professionals and People with ALS), the EU ALS Coalition, and […]
A member forum examining how artificial intelligence may impact people living with ALS/MND, care delivery, research, and support services. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
A member forum examining how artificial intelligence may impact people living with ALS/MND, care delivery, research, and support services. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
Our Annual Meeting will be taking place virtually. This meeting will provide an opportunity to reflect on achievements and discuss priorities for the coming year. Additional details will be shared […]
The Alliance Meeting is the place where member associations can meet and share experiences in growing, running and building an ALS/MND association to support people living with ALS/MND. The meeting […]
Are you ready to be part of something bigger? The Allied Professionals Forum (APF) brings together healthcare professionals from around the world, including physiotherapists, respiratory therapists, nutritionists, speech-language pathologists, social […]