Your Care, Your Voice: Becoming an Active Partner in ALS Decision-Making Living with ALS means facing important decisions about your care - and your voice matters in every conversation. We'll explore ways to become an active partner in your healthcare journey, learn tips on having conversations that can help you express what matters most, and […]

Informed Decision-Making in ALS: An Open Discussion on Tracheostomy and Invasive Mechanical Ventilation Join us for an open and honest conversation about one of the more challenging decisions people living with ALS face: whether to pursue tracheostomy and invasive mechanical ventilation. Our panel discussion brings together diverse perspectives; through their stories and insights, this webinar […]

Understanding the FTD of an FTD/ALS Diagnosis Frontotemporal degeneration (FTD) and ALS are specific neurodegenerative disorders with different symptoms and underlying biology. As challenging as each can be on their own, some people are diagnosed with both. This presentation will focus on the FTD part of an FTD/ALS diagnosis and provide an overview of its […]

Platform trials are reshaping how new therapies are tested in ALS/MND. Join us for updates from leaders of EXPERTS-ALS, HEALEY,  and SMART, who will share the latest on trial design, recruitment progress, eligibility criteria, and emerging developments. This session offers an opportunity to better understand how these innovative trial models are advancing research and what […]