About the Program Understanding our gaps in knowledge about the social and structural determinants of health inequities in ALS is integral to making sure ALS becomes a livable disease. In this session, Dr. Chelsey R. Carter highlights several determinants and offers approaches to improve ALS epidemiology, patient outcomes, and disparities. By building a health equity […]

The upcoming ENCALS meeting will be hosted in Turin, Italy, from June 3-6, 2025. Satellite meetings will take place on Tuesday morning (June 3) and Friday (June 6). The program for the satellite meeting depends on the supply by companies. Registration fees Normal registration (incl. VAT): Until April 20, 2025. (Postgraduate) students: €180,- Established researchers […]

Join ALS TDI and Her ALS Story (HAS) for the second of a 3-part collaborative Town Hall series, "Your Story. Our Science." Our journey continues with What Are Lesser-Known ALS Symptoms?, where we'll delve into the often-overlooked and less-discussed aspects of living with ALS. Connect with the powerful personal stories of HAS members as they […]

Join ALS TDI and Her ALS Story (HAS) for the third and final installment of our 3-part collaborative Town Hall series, "Your Story. Our Science." Our series concludes with How Can We Improve the Diagnosis Process?, where we will discuss the personal challenges of receiving an ALS diagnosis and the ongoing efforts to make the process faster […]

About the Program: Join us for an informative session about how occupational therapy can support your daily activities and quality of life while living with ALS. Becca Schroeder, MOT, OTR/L, will explore practical strategies, adaptive equipment, and energy conservation techniques that can help you maintain independence in your home and community utilizing her skills as an […]

About the Program ALS research depends on people living with ALS to join the National ALS Registry. Every individual’s story can contribute to our understanding of the disease, its causes, and how to fight it. Join us for our ALS Learning series with Reshma Punjani and Janie Gobeli to learn how the National ALS Registry […]

2025 PACTALS INARC Session Date: Sept. 8 2025 Time: 4:30 PM - 6:00 PM Location: Melbourne, Australia Format: Roundtable Discussion For whom? INARC is a network dedicated to ALS clinical trial and care staff (who are not MDs): nurses, research nurses, trial coordinators, social workers, nutritionists, speech and language pathologists, occupational therapists, physiotherapists, psychologists, spiritual […]

About the Program Join us for an informative session focused on constipation management in people living with ALS. This webinar will explore the impact of constipation in this population, examine the role of dietary fiber, and discuss how hydration supports bowel health. The session will provide practical strategies to support digestive wellness in ALS care.  […]

This webinar will take participants through an end-to-end demonstration of creating and using AI voice tools, highlighting the process from start to finish. The session will feature walkthroughs that illustrate how technology can be applied in different global contexts, complemented by testimonials to ground the experience in real-world impact.   We will showcase examples from […]

About the program: Changes in functional mobility are common with ALS. This often may present as difficulty with transfers, need for a walking aide, possible wheelchair evaluation, and need for additional training with a caregiver. In this presentation, we will cover common mobility changes along with a discussion on what to expect when partnering with an ALS provider and […]

In this webinar, we will share the latest information on ALS/MND treatments currently in Phase 3 clinical trials. We will look at trial timelines, site locations, additional programs available, and key contacts for further information.   Moderators: Dr. Nadia Sethi & Dr. Martina de Majo   Captions in multiple languages available.

Military Veterans are at increased risk of developing ALS. In 2008, the VA extended benefits to all Veterans with ALS who served greater than 90 days of active duty. Dr. Howard will discuss the unique steps the VA has taken to care for Veterans with ALS, and why the National Academies called the VA “A […]

*This webinar was rescheduled from September. Join us for an informative session focused on constipation management in people living with ALS. This webinar will explore the impact of constipation in this population, examine the role of dietary fiber, and discuss how hydration supports bowel health. The session will provide practical strategies to support digestive wellness […]

In this presentation, Dr. Grouls will explore a concept people living with ALS know all too well: the financial burden of disease. She will trace the evolution of financial burden research in ALS, drawing comparisons with the more established field of financial toxicity research in oncology. She'll share what we're learning from the latest research […]

The 2025 Patient Fellows will share their key learnings and experiences from participating in the 36th International Symposium on ALS/MND. Guided by the theme “Nothing About Us, Without Us,” this webinar will explore how engaging in research discussions shaped their perspectives, deepened their understanding of ALS/MND science, and reinforced the importance of including the voices […]

Dr. Kara Bischoff will provide an introduction to palliative care and how it can be helpful to people with ALS and their loved ones. Aspects of advance care planning that are important for people with ALS will be discussed. Hospice will also be described and distinguished from palliative care. Finally, information about how to find […]

Hospice Care and ALS: What It Is, When to Consider It, and How It Supports You Join for our February ALS Learning series which will provide an overview of hospice care and how it supports individuals living with ALS and their caregivers. Participants will learn what hospice is, when it may be appropriate, and how […]

This webinar will feature an open conversation and testimonials about access to approved treatments for ALS/MND around the world. We will explore which therapies are approved in different countries and regions, and discuss if and how people living with ALS/MND can access these treatments in practice.   REGISTER NOW

Join us for a presentation of the headline findings from the third iteration of the ALS/MND Fundamental Rights Survey. This session will share key data and emerging trends on how fundamental rights are experienced by people living with ALS/MND around the world. We will explore areas of progress, identify persistent gaps, and consider what the […]

Exploring ALS Clinical Trials: What They Are, How to Find Them, and What Happens Next For many in the ALS community, clinical trials represent both hope and uncertainty. This educational webinar offers a clear, supportive overview of what clinical trials are, how ALS clinical trials work, how to search for opportunities, and what happens after […]

The Gift of Discovery: Tissue Donation and the Future of ALS Research Tissue donation is one of the most powerful contributions a person living with ALS can make to future generations. Join Dr. Lyle Ostrow from Temple University who will discuss the tissue donation process, address common questions and concerns, explain what researchers can learn […]