The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic […]

About the Program Understanding our gaps in knowledge about the social and structural determinants of health inequities in ALS is integral to making sure ALS becomes a livable disease. In […]

The upcoming ENCALS meeting will be hosted in Turin, Italy, from June 3-6, 2025. Satellite meetings will take place on Tuesday morning (June 3) and Friday (June 6). The program […]

Join ALS TDI and Her ALS Story (HAS) for the second of a 3-part collaborative Town Hall series, "Your Story. Our Science." Our journey continues with What Are Lesser-Known ALS […]

Join ALS TDI and Her ALS Story (HAS) for the third and final installment of our 3-part collaborative Town Hall series, "Your Story. Our Science." Our series concludes with How Can […]

About the Program: Join us for an informative session about how occupational therapy can support your daily activities and quality of life while living with ALS. Becca Schroeder, MOT, OTR/L, will […]

About the Program ALS research depends on people living with ALS to join the National ALS Registry. Every individual’s story can contribute to our understanding of the disease, its causes, […]

2025 PACTALS INARC Session Date: Sept. 8 2025 Time: 4:30 PM - 6:00 PM Location: Melbourne, Australia Format: Roundtable Discussion For whom? INARC is a network dedicated to ALS clinical […]

About the Program Join us for an informative session focused on constipation management in people living with ALS. This webinar will explore the impact of constipation in this population, examine […]

This webinar will take participants through an end-to-end demonstration of creating and using AI voice tools, highlighting the process from start to finish. The session will feature walkthroughs that illustrate […]

About the program: Changes in functional mobility are common with ALS. This often may present as difficulty with transfers, need for a walking aide, possible wheelchair evaluation, and need for additional training with a […]

In this webinar, we will share the latest information on ALS/MND treatments currently in Phase 3 clinical trials. We will look at trial timelines, site locations, additional programs available, and key […]

Military Veterans are at increased risk of developing ALS. In 2008, the VA extended benefits to all Veterans with ALS who served greater than 90 days of active duty. Dr. […]

*This webinar was rescheduled from September. Join us for an informative session focused on constipation management in people living with ALS. This webinar will explore the impact of constipation in […]

In this presentation, Dr. Grouls will explore a concept people living with ALS know all too well: the financial burden of disease. She will trace the evolution of financial burden […]

The 2025 Patient Fellows will share their key learnings and experiences from participating in the 36th International Symposium on ALS/MND. Guided by the theme “Nothing About Us, Without Us,” this […]

Dr. Kara Bischoff will provide an introduction to palliative care and how it can be helpful to people with ALS and their loved ones. Aspects of advance care planning that […]

Hospice Care and ALS: What It Is, When to Consider It, and How It Supports You Join for our February ALS Learning series which will provide an overview of hospice […]

This webinar will feature an open conversation and testimonials about access to approved treatments for ALS/MND around the world. We will explore which therapies are approved in different countries and […]

Join us for a presentation of the headline findings from the third iteration of the ALS/MND Fundamental Rights Survey. This session will share key data and emerging trends on how […]

Exploring ALS Clinical Trials: What They Are, How to Find Them, and What Happens Next For many in the ALS community, clinical trials represent both hope and uncertainty. This educational […]

The Gift of Discovery: Tissue Donation and the Future of ALS Research Tissue donation is one of the most powerful contributions a person living with ALS can make to future […]

Event: Toward New Perspectives: From Diagnosis to Treatment of Voice Disorders (In Italian) Date: April 11, 2026 Time: 8:00 AM CEST Register here. Alcune patologie neurologiche e otorinolaringoiatriche possono causare […]

Your Care, Your Voice: Becoming an Active Partner in ALS Decision-Making Living with ALS means facing important decisions about your care - and your voice matters in every conversation. We'll […]

Informed Decision-Making in ALS: An Open Discussion on Tracheostomy and Invasive Mechanical Ventilation Join us for an open and honest conversation about one of the more challenging decisions people living […]

Understanding the FTD of an FTD/ALS Diagnosis Frontotemporal degeneration (FTD) and ALS are specific neurodegenerative disorders with different symptoms and underlying biology. As challenging as each can be on their […]

Platform trials are reshaping how new therapies are tested in ALS/MND. Join us for updates from leaders of EXPERTS-ALS, HEALEY,  and SMART, who will share the latest on trial design, […]

A member forum exploring fundraising strategies, opportunities, and shared learning to strengthen organizational capacity.   Registration note: Members only. To register or request more information, email alliance@als-mnd.org.

A member forum exploring fundraising strategies, opportunities, and shared learning to strengthen organizational capacity.   Registration note: Members only. To register or request more information, email alliance@als-mnd.org.

Connected Through the ALS Journey: Support, Resources, and Community May 12 @ 2:00 pm - 3:30 pm EDT May 13 @ 2:00 pm - 3:30 pm EDT May 14 @ […]

A member forum focused on advocacy strategies, campaign development, government engagement, and approaches to securing funding.   Registration note: Members only. To register or request more information, email alliance@als-mnd.org.

A member forum focused on advocacy strategies, campaign development, government engagement, and approaches to securing funding.   Registration note: Members only. To register or request more information, email alliance@als-mnd.org.

Finding Your People: Real Stories of Community After an ALS Diagnosis An ALS diagnosis can change everything — but it doesn't mean navigating the road ahead alone. In this panel […]

A member forum examining workforce challenges affecting organizations and services across the ALS/MND community.   Registration note: Members only. To register or request more information, email alliance@als-mnd.org.

A member forum examining workforce challenges affecting organizations and services across the ALS/MND community.   Registration note: Members only. To register or request more information, email alliance@als-mnd.org.

A New Way to Measure What Matters Join us for an inspiring one-hour conversation with Peggy Plews-Ogan, MD, of the Hummingbird Fund, as she shares the story behind the ALS […]

Multidisciplinary care extends life and improves quality of life, yet clinic structures differ greatly across regions. This member roundtable will explore the key components of a baseline ALS/MND clinic model, […]

Les Turner ALS Foundation: ALS-FTD Clinicopathological OverlapTravel and exploration don’t need to stop with an ALS diagnosis. Join us for our July ALS Learning Series on travel. Kari Brouwer, Craig […]

A member forum discussing barriers, opportunities, and practical approaches to improving equitable access to ALS/MND care.   Registration note: Members only. To register or request more information, email alliance@als-mnd.org.

A member forum discussing barriers, opportunities, and practical approaches to improving equitable access to ALS/MND care.   Registration note: Members only. To register or request more information, email alliance@als-mnd.org.

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap ALS and frontotemporal dementia (FTD) are increasingly understood to share underlying biological connections, and some people living with ALS may also experience changes […]

A member forum focused on health literacy and improving understanding, navigation, and access to information for people affected by ALS/MND.   Registration note: Members only. To register or request more information, […]

Changes with eating and swallowing are common in ALS, and can feel overwhelming, but having the right information can make planning ahead easier. Join us for a practical conversation about […]

A member forum focused on health literacy and improving understanding, navigation, and access to information for people affected by ALS/MND.   Registration note: Members only. To register or request more information, […]