• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

@alsmnd-admin

Profile

Registered: 13 years, 2 months ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Greg Heydet, USA

    Greg Heydet, USA

  • Daniel Hare, USA

    Daniel Hare, USA

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • John Dinon, Australia

    John Dinon, Australia

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Michael Lee, Australia

    Michael Lee, Australia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Jean

    Jean
    jean

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Christian Bär, Germany

    Christian Bär, Germany

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Hollister

    Hollister
    hollister

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Dick Dayton, USA

    Dick Dayton, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Liam Dwyer, England

    Liam Dwyer, England

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Bayley, Australia

    Bayley, Australia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Seckin McGuirk, England

    Seckin McGuirk, England

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login