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International Alliance of ALS/MND Associations

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@alsmnd-admin

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Registered: 13 years, 3 months ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Nov 10
8:00 am - 9:00 am EST

Member Forum: AI Impacts

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

View Calendar

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Ian Gale, Australia

    Ian Gale, Australia

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Susan Anderson, USA

    Susan Anderson, USA

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Timmy, Belgium

    Timmy, Belgium

  • Zabun Nassar, England

    Zabun Nassar, England

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Jack Buzby, USA

    Jack Buzby, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Bayley, Australia

    Bayley, Australia

  • David Bishop, UK

    David Bishop, UK

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Jean

    Jean
    jean

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Mike Cels, Canada

    Mike Cels, Canada

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Christian Bär, Germany

    Christian Bär, Germany

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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