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International Alliance of ALS/MND Associations

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@alsmnd-admin

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Registered: 13 years, 1 month ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Susan Anderson, USA

    Susan Anderson, USA

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Jean

    Jean
    jean

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • John Russo, USA

    John Russo, USA
    final3878

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Lombana, Spain

    Lombana, Spain

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Christian Bär, Germany

    Christian Bär, Germany

  • Mike Cels, Canada

    Mike Cels, Canada

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Mark Miller, UK

    Mark Miller, UK

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Glen Elison, USA

    Glen Elison, USA

  • Dick Dayton, USA

    Dick Dayton, USA

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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