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International Alliance of ALS/MND Associations

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@alsmnd-admin

Profile

Registered: 13 years, 2 months ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Philip Brindle, England

    Philip Brindle, England

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Ian Gale, Australia

    Ian Gale, Australia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Daniel Hare, USA

    Daniel Hare, USA

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Frank Taylor, USA

    Frank Taylor, USA

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Rob Tison, USA

    Rob Tison, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • John Russo, USA

    John Russo, USA
    final3878

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Christian Bär, Germany

    Christian Bär, Germany

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Hollister

    Hollister
    hollister

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Lombana, Spain

    Lombana, Spain

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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