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International Alliance of ALS/MND Associations

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@alsmnd-admin

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Registered: 13 years, 2 months ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

View Calendar

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • JP

    JP

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Lee Millard, England

    Lee Millard, England

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Susan Anderson, USA

    Susan Anderson, USA

  • Rob Tison, USA

    Rob Tison, USA

  • Jay Epstein, USA

    Jay Epstein, USA

  • Paul Launer, USA

    Paul Launer, USA

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Mike Small, UK

    Mike Small, UK

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Philip Brindle, England

    Philip Brindle, England

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Bob Simonds, USA

    Bob Simonds, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Art Eggert, USA

    Art Eggert, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • David Watson, Scotland

    David Watson, Scotland

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Len Johnrose, England

    Len Johnrose, England

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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