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International Alliance of ALS/MND Associations

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@alsmnd-admin

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Registered: 12 years, 11 months ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Jay Epstein, USA

    Jay Epstein, USA

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Len Johnrose, England

    Len Johnrose, England

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Glen Elison, USA

    Glen Elison, USA

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Rosie Riley, USA

    Rosie Riley, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Sally Pauls, USA

    Sally Pauls, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Susan Keldani, USA

    Susan Keldani, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Purningam Jacob, India

    Purningam Jacob, India

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Zabun Nassar, England

    Zabun Nassar, England

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Philip Brindle, England

    Philip Brindle, England

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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