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International Alliance of ALS/MND Associations

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International Alliance

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@alsmnd-admin

Profile

Registered: 13 years ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Mark Miller, UK

    Mark Miller, UK

  • Timmy, Belgium

    Timmy, Belgium

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Art Eggert, USA

    Art Eggert, USA

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • David Bishop, UK

    David Bishop, UK

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • David Solomon, UK

    David Solomon, UK

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jean Waters, UK

    Jean Waters, UK

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Phil Rossall, UK

    Phil Rossall, UK

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • John Sweeney, USA

    John Sweeney, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Jon Newsome, USA

    Jon Newsome, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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