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International Alliance of ALS/MND Associations

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@alsmnd-admin

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Registered: 12 years, 12 months ago


Forums

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Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Advocacy and Public Policy Forum
    • Research Directors Forum
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  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Susan Keldani, USA

    Susan Keldani, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Anita Forte, USA

    Anita Forte, USA

  • Daniel Hare, USA

    Daniel Hare, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • JP

    JP

  • Art Eggert, USA

    Art Eggert, USA

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Anna Barrow, UK

    Anna Barrow, UK

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Willi Klein, UK

    Willi Klein, UK

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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