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International Alliance of ALS/MND Associations

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@alsmnd-admin

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Registered: 13 years, 1 month ago


Forums

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Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
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  • Support for Family & Caregivers
  • Technology

Support for members

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About

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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • JP

    JP

  • Mike Cels, Canada

    Mike Cels, Canada

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Mike Small, UK

    Mike Small, UK

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Susan Anderson, USA

    Susan Anderson, USA

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Rob Tison, USA

    Rob Tison, USA

  • Jean

    Jean
    jean

  • Jason Goodman, USA

    Jason Goodman, USA

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Ali Var, Turkey

    Ali Var, Turkey

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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