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International Alliance of ALS/MND Associations

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International Alliance

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@alsmnd-admin

Profile

Registered: 13 years ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Rob Tison, USA

    Rob Tison, USA

  • Rosie Riley, USA

    Rosie Riley, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Frank Taylor, USA

    Frank Taylor, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Lombana, Spain

    Lombana, Spain

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Philip Brindle, England

    Philip Brindle, England

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Liam Dwyer, England

    Liam Dwyer, England

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Ali Var, Turkey

    Ali Var, Turkey

  • Hollister

    Hollister
    hollister

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Phil Rossall, UK

    Phil Rossall, UK

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • John Sweeney, USA

    John Sweeney, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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