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International Alliance of ALS/MND Associations

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International Alliance

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Registered: 13 years, 1 month ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Your Roadmap to Eating, Swallowing, and Nutrition with ALS

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

View Calendar

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Susan Anderson, USA

    Susan Anderson, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Jon Newsome, USA

    Jon Newsome, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • John Russo, USA

    John Russo, USA
    final3878

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Jean

    Jean
    jean

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Mark Miller, UK

    Mark Miller, UK

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Alex, Argentina

    Alex, Argentina

  • Sally Pauls, USA

    Sally Pauls, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Timmy, Belgium

    Timmy, Belgium

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • John Sweeney, USA

    John Sweeney, USA

  • Anita Forte, USA

    Anita Forte, USA

  • Olga, Argentina

    Olga, Argentina

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Sébastien Batiot, France

    Sébastien Batiot, France

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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