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International Alliance of ALS/MND Associations

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@alsmnd-admin

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Registered: 13 years, 3 months ago


Forums

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Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
  • Global Day Calendar
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  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Mark Miller, UK

    Mark Miller, UK

  • Denis Blais, Canada

    Denis Blais, Canada

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Frank Taylor, USA

    Frank Taylor, USA

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Steve

    Steve

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • John Sweeney, USA

    John Sweeney, USA

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • John Dinon, Australia

    John Dinon, Australia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Greg Heydet, USA

    Greg Heydet, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Ann Nicol, USA

    Ann Nicol, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Glen Elison, USA

    Glen Elison, USA

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Dick Dayton, USA

    Dick Dayton, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Jason Goodman, USA

    Jason Goodman, USA

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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