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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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Registered: 12 years, 11 months ago


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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Archives
    • Newsletters
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • John Sweeney, USA

    John Sweeney, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Bayley, Australia

    Bayley, Australia

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Anna Barrow, UK

    Anna Barrow, UK

  • Jean Waters, UK

    Jean Waters, UK

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Zabun Nassar, England

    Zabun Nassar, England

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Jay Epstein, USA

    Jay Epstein, USA

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Steve

    Steve

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Mike Cels, Canada

    Mike Cels, Canada

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Olga, Argentina

    Olga, Argentina

  • Mikey Stone, ALS

    Mikey Stone, ALS

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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