• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

@alsmnd-admin

Profile

Registered: 13 years, 1 month ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • John Russo, USA

    John Russo, USA
    final3878

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Sally Pauls, USA

    Sally Pauls, USA

  • David Bishop, UK

    David Bishop, UK

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Timmy, Belgium

    Timmy, Belgium

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Philip Brindle, England

    Philip Brindle, England

  • Jon Newsome, USA

    Jon Newsome, USA

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Liam Dwyer, England

    Liam Dwyer, England

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Mike Cels, Canada

    Mike Cels, Canada

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Dick Dayton, USA

    Dick Dayton, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Greg Heydet, USA

    Greg Heydet, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • John Sweeney, USA

    John Sweeney, USA

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login