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International Alliance of ALS/MND Associations

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@alsmnd-admin

Profile

Registered: 13 years, 2 months ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Jason Goodman, USA

    Jason Goodman, USA

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Len Johnrose, England

    Len Johnrose, England

  • Anita Forte, USA

    Anita Forte, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Ali Var, Turkey

    Ali Var, Turkey

  • Lee Millard, England

    Lee Millard, England

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Anna Barrow, UK

    Anna Barrow, UK

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Paul Launer, USA

    Paul Launer, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Jean Waters, UK

    Jean Waters, UK

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • John Sweeney, USA

    John Sweeney, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Glen Elison, USA

    Glen Elison, USA

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Ian Gale, Australia

    Ian Gale, Australia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Jay Epstein, USA

    Jay Epstein, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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