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International Alliance of ALS/MND Associations

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International Alliance

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@alsmnd-admin

Profile

Registered: 13 years ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Ali Var, Turkey

    Ali Var, Turkey

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • David Bishop, UK

    David Bishop, UK

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Anita Forte, USA

    Anita Forte, USA

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Glen Elison, USA

    Glen Elison, USA

  • Art Eggert, USA

    Art Eggert, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Jason Goodman, USA

    Jason Goodman, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • John Russo, USA

    John Russo, USA
    final3878

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Jack Buzby, USA

    Jack Buzby, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Hollister

    Hollister
    hollister

Learn more about the March of Faces

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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