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International Alliance of ALS/MND Associations

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International Alliance

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@alsmnd-admin

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Registered: 13 years, 1 month ago


Forums

Topics Started: 0

Replies Created: 0

Forum Role: Keymaster

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
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  • ALS/MND Connect
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  • International Symposium

About

  • Who We Are
  • Board of Trustees
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    • PALS and CALS Advisory Council
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Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Glen Elison, USA

    Glen Elison, USA

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Bob Simonds, USA

    Bob Simonds, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Mike Cels, Canada

    Mike Cels, Canada

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Rob Tison, USA

    Rob Tison, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Rosie Riley, USA

    Rosie Riley, USA

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Jean Waters, UK

    Jean Waters, UK

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Steve

    Steve

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Ian Gale, Australia

    Ian Gale, Australia

  • David Hall, USA

    David Hall, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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