• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Forum Replies Created

  • Oh, bother! No replies were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • David Solomon, UK

    David Solomon, UK

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Lee Millard, England

    Lee Millard, England

  • Dick Dayton, USA

    Dick Dayton, USA

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Paul Launer, USA

    Paul Launer, USA

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Jean Waters, UK

    Jean Waters, UK

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Jack Buzby, USA

    Jack Buzby, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Anna Barrow, UK

    Anna Barrow, UK

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Mark Miller, UK

    Mark Miller, UK

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Glen Elison, USA

    Glen Elison, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login