• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Topics Engaged In

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Jay Epstein, USA

    Jay Epstein, USA

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Mark Miller, UK

    Mark Miller, UK

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Jon Newsome, USA

    Jon Newsome, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Art Eggert, USA

    Art Eggert, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Mike Cels, Canada

    Mike Cels, Canada

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Olga, Argentina

    Olga, Argentina

  • John Russo, USA

    John Russo, USA
    final3878

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Liam Dwyer, England

    Liam Dwyer, England

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Jon Newsome, USA

    Jon Newsome, USA

  • David Bishop, UK

    David Bishop, UK

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Timmy, Belgium

    Timmy, Belgium

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Bayley, Australia

    Bayley, Australia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login