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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
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Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Jay Epstein, USA

    Jay Epstein, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Susan Keldani, USA

    Susan Keldani, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Mike Small, UK

    Mike Small, UK

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • David Hall, USA

    David Hall, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Jason Goodman, USA

    Jason Goodman, USA

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Anna Barrow, UK

    Anna Barrow, UK

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Phil Rossall, UK

    Phil Rossall, UK

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Rob Tison, USA

    Rob Tison, USA

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Susan Anderson, USA

    Susan Anderson, USA

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Bayley, Australia

    Bayley, Australia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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