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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Ann Nicol, USA

    Ann Nicol, USA

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • JP

    JP

  • Christian Bär, Germany

    Christian Bär, Germany

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Susan Anderson, USA

    Susan Anderson, USA

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Greg Heydet, USA

    Greg Heydet, USA

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • John Russo, USA

    John Russo, USA
    final3878

  • Hollister

    Hollister
    hollister

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • John Dinon, Australia

    John Dinon, Australia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Art Eggert, USA

    Art Eggert, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Willi Klein, UK

    Willi Klein, UK

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Glen Elison, USA

    Glen Elison, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Jason Goodman, USA

    Jason Goodman, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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