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International Alliance of ALS/MND Associations

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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • John Russo, USA

    John Russo, USA
    final3878

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Bayley, Australia

    Bayley, Australia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Animesh Kumar, India

    Animesh Kumar, India

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Frank Taylor, USA

    Frank Taylor, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Ian Gale, Australia

    Ian Gale, Australia

  • Lombana, Spain

    Lombana, Spain

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Willi Klein, UK

    Willi Klein, UK

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Zabun Nassar, England

    Zabun Nassar, England

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Glen Elison, USA

    Glen Elison, USA

  • Michael Lee, Australia

    Michael Lee, Australia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • John Dinon, Australia

    John Dinon, Australia

  • Anita Forte, USA

    Anita Forte, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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