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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Newsletters
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Ian Gale, Australia

    Ian Gale, Australia

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Lombana, Spain

    Lombana, Spain

  • Christian Bär, Germany

    Christian Bär, Germany

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Jason Goodman, USA

    Jason Goodman, USA

  • Bayley, Australia

    Bayley, Australia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Phil Rossall, UK

    Phil Rossall, UK

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Susan Keldani, USA

    Susan Keldani, USA

  • John Russo, USA

    John Russo, USA
    final3878

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Ali Var, Turkey

    Ali Var, Turkey

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • John Dinon, Australia

    John Dinon, Australia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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