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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
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Programs & Events

  • Calendar of Events/Programs
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  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

View Calendar

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • David Watson, Scotland

    David Watson, Scotland

  • John Russo, USA

    John Russo, USA
    final3878

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • JP

    JP

  • Rosie Riley, USA

    Rosie Riley, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Willi Klein, UK

    Willi Klein, UK

  • Ali Var, Turkey

    Ali Var, Turkey

  • Bob Simonds, USA

    Bob Simonds, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • David Hall, USA

    David Hall, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Steve

    Steve

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Alex, Argentina

    Alex, Argentina

  • John Dinon, Australia

    John Dinon, Australia

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Philip Brindle, England

    Philip Brindle, England

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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