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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
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Programs & Events

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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
  • Newsletter Archive
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Olga, Argentina

    Olga, Argentina

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Anna Barrow, UK

    Anna Barrow, UK

  • Christian Bär, Germany

    Christian Bär, Germany

  • Greg Heydet, USA

    Greg Heydet, USA

  • Lee Millard, England

    Lee Millard, England

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Hollister

    Hollister
    hollister

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Mark Miller, UK

    Mark Miller, UK

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Ali Var, Turkey

    Ali Var, Turkey

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Rob Tison, USA

    Rob Tison, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Art Eggert, USA

    Art Eggert, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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