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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
  • History
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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Zabun Nassar, England

    Zabun Nassar, England

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Purningam Jacob, India

    Purningam Jacob, India

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Art Eggert, USA

    Art Eggert, USA

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Daniel Hare, USA

    Daniel Hare, USA

  • Rob Tison, USA

    Rob Tison, USA

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • David Watson, Scotland

    David Watson, Scotland

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Bob Simonds, USA

    Bob Simonds, USA

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • JP

    JP

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Dick Dayton, USA

    Dick Dayton, USA

  • Phil Rossall, UK

    Phil Rossall, UK

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Michael Lee, Australia

    Michael Lee, Australia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Charlie Dourney, USA

    Charlie Dourney, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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