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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
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Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

Nov 7
11:30 am - 12:00 pm CET

conSLAncio Session: Patients’ Associations: Shaping Research Together

Nov 10
8:00 am - 9:00 am EST

Member Forum: AI Impacts

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

View Calendar

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Phil Rossall, UK

    Phil Rossall, UK

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Susan Anderson, USA

    Susan Anderson, USA

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Hollister

    Hollister
    hollister

  • Daniel Hare, USA

    Daniel Hare, USA

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Greg Heydet, USA

    Greg Heydet, USA

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Lee Millard, England

    Lee Millard, England

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Len Johnrose, England

    Len Johnrose, England

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Bayley, Australia

    Bayley, Australia

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Willi Klein, UK

    Willi Klein, UK

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Alex, Argentina

    Alex, Argentina

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Denis Blais, Canada

    Denis Blais, Canada

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Mike Small, UK

    Mike Small, UK

  • Zabun Nassar, England

    Zabun Nassar, England

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Ian Gale, Australia

    Ian Gale, Australia

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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