• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Topics Engaged In

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Frank Taylor, USA

    Frank Taylor, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Mark Miller, UK

    Mark Miller, UK

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Alex, Argentina

    Alex, Argentina

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • David Bishop, UK

    David Bishop, UK

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • John Russo, USA

    John Russo, USA
    final3878

  • Rob Tison, USA

    Rob Tison, USA

  • Art Eggert, USA

    Art Eggert, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • David Solomon, UK

    David Solomon, UK

  • Philip Brindle, England

    Philip Brindle, England

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login