• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Topics Engaged In

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

View Calendar

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Anna Barrow, UK

    Anna Barrow, UK

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Glen Elison, USA

    Glen Elison, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Rosie Riley, USA

    Rosie Riley, USA

  • Art Eggert, USA

    Art Eggert, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Ann Nicol, USA

    Ann Nicol, USA

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • John Dinon, Australia

    John Dinon, Australia

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • David Bishop, UK

    David Bishop, UK

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Alex, Argentina

    Alex, Argentina

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Susan Keldani, USA

    Susan Keldani, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login