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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
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Programs & Events

  • Calendar of Events/Programs
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  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
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  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Mike Cels, Canada

    Mike Cels, Canada

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Mike Small, UK

    Mike Small, UK

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Ian Gale, Australia

    Ian Gale, Australia

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • David Hall, USA

    David Hall, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Jay Epstein, USA

    Jay Epstein, USA

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • David Bishop, UK

    David Bishop, UK

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Lombana, Spain

    Lombana, Spain

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Hollister

    Hollister
    hollister

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Willi Klein, UK

    Willi Klein, UK

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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