• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Topics Engaged In

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Advisory Councils/Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Archives
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Susan Anderson, USA

    Susan Anderson, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Anna Barrow, UK

    Anna Barrow, UK

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Paul Launer, USA

    Paul Launer, USA

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Denis Blais, Canada

    Denis Blais, Canada

  • John Dinon, Australia

    John Dinon, Australia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Ann Nicol, USA

    Ann Nicol, USA

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Rob Tison, USA

    Rob Tison, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Jay Epstein, USA

    Jay Epstein, USA

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Willi Klein, UK

    Willi Klein, UK

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Olga, Argentina

    Olga, Argentina

  • Susan Keldani, USA

    Susan Keldani, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login