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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
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Programs & Events

  • Calendar of Events/Programs
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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

Nov 4
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series Copy Copy

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

View Calendar

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Liam Dwyer, England

    Liam Dwyer, England

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Len Johnrose, England

    Len Johnrose, England

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Lombana, Spain

    Lombana, Spain

  • Willi Klein, UK

    Willi Klein, UK

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Greg Heydet, USA

    Greg Heydet, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • John Dinon, Australia

    John Dinon, Australia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Anna Barrow, UK

    Anna Barrow, UK

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Hollister

    Hollister
    hollister

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Ann Nicol, USA

    Ann Nicol, USA

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Liam Dwyer, England

    Liam Dwyer, England

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Sally Pauls, USA

    Sally Pauls, USA

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Rosie Riley, USA

    Rosie Riley, USA

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Purningam Jacob, India

    Purningam Jacob, India

  • JP

    JP

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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