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International Alliance of ALS/MND Associations

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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • David Solomon, UK

    David Solomon, UK

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Alex, Argentina

    Alex, Argentina

  • David Hall, USA

    David Hall, USA

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Anita Forte, USA

    Anita Forte, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Anna Barrow, UK

    Anna Barrow, UK

  • Art Eggert, USA

    Art Eggert, USA

  • Bayley, Australia

    Bayley, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Animesh Kumar, India

    Animesh Kumar, India

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Rosie Riley, USA

    Rosie Riley, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Mark Miller, UK

    Mark Miller, UK

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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