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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Liam Dwyer, England

    Liam Dwyer, England

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Lee Millard, England

    Lee Millard, England

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Denis Blais, Canada

    Denis Blais, Canada

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Susan Keldani, USA

    Susan Keldani, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Len Johnrose, England

    Len Johnrose, England

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Jean Waters, UK

    Jean Waters, UK

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Purningam Jacob, India

    Purningam Jacob, India

  • Ali Var, Turkey

    Ali Var, Turkey

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Bob Simonds, USA

    Bob Simonds, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Art Eggert, USA

    Art Eggert, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Rob Tison, USA

    Rob Tison, USA

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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