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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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  • Staff
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Rosie Riley, USA

    Rosie Riley, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Mark Miller, UK

    Mark Miller, UK

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Sally Pauls, USA

    Sally Pauls, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Michael Lee, Australia

    Michael Lee, Australia

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Purningam Jacob, India

    Purningam Jacob, India

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Philip Brindle, England

    Philip Brindle, England

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Willi Klein, UK

    Willi Klein, UK

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Bob Simonds, USA

    Bob Simonds, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Ali Var, Turkey

    Ali Var, Turkey

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Angela Jansen, Germany

    Angela Jansen, Germany

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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