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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

Nov 2
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 3
2:00 pm - 3:00 pm EST

ALS Association Webinar: Caregiving, Connection & Meaningful Moments Series

Nov 4
8:00 am - 9:00 am EST

Webinar: Annual Clinical Trials Update

View Calendar

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Jean

    Jean
    jean

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Willi Klein, UK

    Willi Klein, UK

  • Steve

    Steve

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Hollister

    Hollister
    hollister

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Anna Barrow, UK

    Anna Barrow, UK

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Jason Goodman, USA

    Jason Goodman, USA

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Inta Grubb, Australia

    Inta Grubb, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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