• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Topics Engaged In

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Ali Var, Turkey

    Ali Var, Turkey

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Susan Keldani, USA

    Susan Keldani, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Lee Millard, England

    Lee Millard, England

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • David Hall, USA

    David Hall, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Sally Pauls, USA

    Sally Pauls, USA

  • Willi Klein, UK

    Willi Klein, UK

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Bob Simonds, USA

    Bob Simonds, USA

  • Michael Lee, Australia

    Michael Lee, Australia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • David Bishop, UK

    David Bishop, UK

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Hollister

    Hollister
    hollister

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login