• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Topics Engaged In

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

Dec 5
December 5 - December 6

Alliance Meeting

View Calendar

  • Jean

    Jean
    jean

  • Steve

    Steve

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Jon Newsome, USA

    Jon Newsome, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Jay Epstein, USA

    Jay Epstein, USA

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Glen Elison, USA

    Glen Elison, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • David Watson, Scotland

    David Watson, Scotland

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Susan Anderson, USA

    Susan Anderson, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Phil Rossall, UK

    Phil Rossall, UK

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Mike Small, UK

    Mike Small, UK

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Animesh Kumar, India

    Animesh Kumar, India

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login