• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Glen Elison, USA

    Glen Elison, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Zabun Nassar, England

    Zabun Nassar, England

  • Dick Dayton, USA

    Dick Dayton, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • Susan Anderson, USA

    Susan Anderson, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Frank Taylor, USA

    Frank Taylor, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Purningam Jacob, India

    Purningam Jacob, India

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login