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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
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  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
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  • NP001
  • Prilenia Therapeutics – Pridopidine
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  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
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  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
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Programs & Events

  • Calendar of Events/Programs
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  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Jay Epstein, USA

    Jay Epstein, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Timmy, Belgium

    Timmy, Belgium

  • John Dinon, Australia

    John Dinon, Australia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Frank Taylor, USA

    Frank Taylor, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • David Hall, USA

    David Hall, USA

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Jean

    Jean
    jean

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Denis Blais, Canada

    Denis Blais, Canada

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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