• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

View Calendar

  • Frank Taylor, USA

    Frank Taylor, USA

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Greg Heydet, USA

    Greg Heydet, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jason Goodman, USA

    Jason Goodman, USA

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Art Eggert, USA

    Art Eggert, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Sally Pauls, USA

    Sally Pauls, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Philip Brindle, England

    Philip Brindle, England

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Jay Epstein, USA

    Jay Epstein, USA

  • Susan Anderson, USA

    Susan Anderson, USA

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Ian Gale, Australia

    Ian Gale, Australia

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Hollister

    Hollister
    hollister

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Jean

    Jean
    jean

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login