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International Alliance of ALS/MND Associations

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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Denis Blais, Canada

    Denis Blais, Canada

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • John Sweeney, USA

    John Sweeney, USA

  • Ann Nicol, USA

    Ann Nicol, USA

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Jason Goodman, USA

    Jason Goodman, USA

  • Dick Dayton, USA

    Dick Dayton, USA

  • Alex, Argentina

    Alex, Argentina

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Zabun Nassar, England

    Zabun Nassar, England

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Sally Pauls, USA

    Sally Pauls, USA

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Susan Keldani, USA

    Susan Keldani, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Willi Klein, UK

    Willi Klein, UK

  • Olga, Argentina

    Olga, Argentina

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Michael Lee, Australia

    Michael Lee, Australia

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • David Bishop, UK

    David Bishop, UK

  • Purningam Jacob, India

    Purningam Jacob, India

  • Ian Roberts, Australia

    Ian Roberts, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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