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International Alliance of ALS/MND Associations

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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jay Epstein, USA

    Jay Epstein, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • John Sweeney, USA

    John Sweeney, USA

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Ali Var, Turkey

    Ali Var, Turkey

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Jon Newsome, USA

    Jon Newsome, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Anna Barrow, UK

    Anna Barrow, UK

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Lombana, Spain

    Lombana, Spain

  • Dick Dayton, USA

    Dick Dayton, USA

  • Art Eggert, USA

    Art Eggert, USA

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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