• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

Oct 22
1:00 pm - 2:00 pm CDT

Les Turner ALS Foundation: The Access for ALL in ALS Consortium

Oct 27
2:00 pm - 3:00 pm EDT

ALS Association Webinar: An Honest Look at Hospice and ALS

View Calendar

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Paul Launer, USA

    Paul Launer, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Sally Pauls, USA

    Sally Pauls, USA

  • Bob Simonds, USA

    Bob Simonds, USA

  • David Hall, USA

    David Hall, USA

  • David Solomon, UK

    David Solomon, UK

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Ann Nicol, USA

    Ann Nicol, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Anna Barrow, UK

    Anna Barrow, UK

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Ali Var, Turkey

    Ali Var, Turkey

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • John Sweeney, USA

    John Sweeney, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • John Russo, USA

    John Russo, USA
    final3878

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Zabun Nassar, England

    Zabun Nassar, England

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Art Eggert, USA

    Art Eggert, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login