• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Rob Tison, USA

    Rob Tison, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Susan Keldani, USA

    Susan Keldani, USA

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Liam Dwyer, England

    Liam Dwyer, England

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Timmy, Belgium

    Timmy, Belgium

  • Dick Dayton, USA

    Dick Dayton, USA

  • Jay Epstein, USA

    Jay Epstein, USA

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Ian Gale, Australia

    Ian Gale, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Frank Taylor, USA

    Frank Taylor, USA

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Art Eggert, USA

    Art Eggert, USA

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Alex, Argentina

    Alex, Argentina

  • Sally Pauls, USA

    Sally Pauls, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Ann Nicol, USA

    Ann Nicol, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • JP

    JP

  • Daniel Hare, USA

    Daniel Hare, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login