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International Alliance of ALS/MND Associations

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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • March of Faces
  • International Symposium

About

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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Marcel R. Wernard, Netherlands

    Marcel R. Wernard, Netherlands

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Ali Var, Turkey

    Ali Var, Turkey

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Dick Dayton, USA

    Dick Dayton, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Mike Small, UK

    Mike Small, UK

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • David Bishop, UK

    David Bishop, UK

  • Michael Lee, Australia

    Michael Lee, Australia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Jean Waters, UK

    Jean Waters, UK

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
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  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Frank Taylor, USA

    Frank Taylor, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
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  • Glen Elison, USA

    Glen Elison, USA

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Ian Gale, Australia

    Ian Gale, Australia

  • Rosie Riley, USA

    Rosie Riley, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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