• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in Voice and Communication

View Calendar

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Paul Launer, USA

    Paul Launer, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Liam Dwyer, England

    Liam Dwyer, England

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Ali Var, Turkey

    Ali Var, Turkey

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Lee Millard, England

    Lee Millard, England

  • David Hall, USA

    David Hall, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Greg Heydet, USA

    Greg Heydet, USA

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Olga, Argentina

    Olga, Argentina

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Bayley, Australia

    Bayley, Australia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Lombana, Spain

    Lombana, Spain

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • John Russo, USA

    John Russo, USA
    final3878

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login