• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

View Calendar

  • Zabun Nassar, England

    Zabun Nassar, England

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Lee Millard, England

    Lee Millard, England

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Bayley, Australia

    Bayley, Australia

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Jason Goodman, USA

    Jason Goodman, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Sally Pauls, USA

    Sally Pauls, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Michael Lee, Australia

    Michael Lee, Australia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Frank Taylor, USA

    Frank Taylor, USA

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • David Hall, USA

    David Hall, USA

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Phil Rossall, UK

    Phil Rossall, UK

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Alex, Argentina

    Alex, Argentina

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login