• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Hollister

    Hollister
    hollister

  • Lee Millard, England

    Lee Millard, England

  • Mike Small, UK

    Mike Small, UK

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Susan Anderson, USA

    Susan Anderson, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Dick Dayton, USA

    Dick Dayton, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Jon Newsome, USA

    Jon Newsome, USA

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Art Eggert, USA

    Art Eggert, USA

  • David Solomon, UK

    David Solomon, UK

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Alex, Argentina

    Alex, Argentina

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Len Johnrose, England

    Len Johnrose, England

  • Purningam Jacob, India

    Purningam Jacob, India

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Animesh Kumar, India

    Animesh Kumar, India

  • Jason Goodman, USA

    Jason Goodman, USA

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login