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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

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About

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Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Purningam Jacob, India

    Purningam Jacob, India

  • John Russo, USA

    John Russo, USA
    final3878

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Jay Epstein, USA

    Jay Epstein, USA

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Jason Goodman, USA

    Jason Goodman, USA

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Ian Gale, Australia

    Ian Gale, Australia

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Rob Tison, USA

    Rob Tison, USA

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Art Eggert, USA

    Art Eggert, USA

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Christian Bär, Germany

    Christian Bär, Germany

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • JP

    JP

  • Olga, Argentina

    Olga, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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