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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

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About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Mark Miller, UK

    Mark Miller, UK

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Jay Epstein, USA

    Jay Epstein, USA

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Animesh Kumar, India

    Animesh Kumar, India

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • David Hall, USA

    David Hall, USA

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Susan Anderson, USA

    Susan Anderson, USA

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Mike Small, UK

    Mike Small, UK

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Mike Cels, Canada

    Mike Cels, Canada

  • Olga, Argentina

    Olga, Argentina

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Seckin McGuirk, England

    Seckin McGuirk, England

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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