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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
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Programs & Events

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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
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  • Staff
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  • Newsletter Archive
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Upcoming Events

Nov 6
November 6 @ 12:30 pm - November 7 @ 6:00 pm CET

Neuroscience Institute Cavalieri Ottolenghi, University of Turin: Motor Neuron Diseases 2026 – IV Edition

Nov 7
11:30 am - 12:00 pm CET

conSLAncio Session: Patients’ Associations: Shaping Research Together

Nov 10
8:00 am - 9:00 am EST

Member Forum: AI Impacts

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

View Calendar

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Len Johnrose, England

    Len Johnrose, England

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Susan Keldani, USA

    Susan Keldani, USA

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Purningam Jacob, India

    Purningam Jacob, India

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Dick Dayton, USA

    Dick Dayton, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Susan Anderson, USA

    Susan Anderson, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Michael Lee, Australia

    Michael Lee, Australia

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Lee Millard, England

    Lee Millard, England

  • Hollister

    Hollister
    hollister

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Alex, Argentina

    Alex, Argentina

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • David Watson, Scotland

    David Watson, Scotland

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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