• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Aug 20
11:00 am - 12:00 pm EDT

Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

View Calendar

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Zabun Nassar, England

    Zabun Nassar, England

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Jon Newsome, USA

    Jon Newsome, USA

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Phil Rossall, UK

    Phil Rossall, UK

  • Olga, Argentina

    Olga, Argentina

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Rob Tison, USA

    Rob Tison, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • David Hall, USA

    David Hall, USA

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Susan Keldani, USA

    Susan Keldani, USA

  • Mark Miller, UK

    Mark Miller, UK

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Liam Dwyer, England

    Liam Dwyer, England

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Lee Millard, England

    Lee Millard, England

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Michael Lee, Australia

    Michael Lee, Australia

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • David Bishop, UK

    David Bishop, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login