• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Anna Barrow, UK

    Anna Barrow, UK

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Bob Simonds, USA

    Bob Simonds, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Frank Taylor, USA

    Frank Taylor, USA

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Zabun Nassar, England

    Zabun Nassar, England

  • Timmy, Belgium

    Timmy, Belgium

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Ali Var, Turkey

    Ali Var, Turkey

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Olga, Argentina

    Olga, Argentina

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Animesh Kumar, India

    Animesh Kumar, India

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login