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International Alliance of ALS/MND Associations

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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Greg Heydet, USA

    Greg Heydet, USA

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Susan Anderson, USA

    Susan Anderson, USA

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Hollister

    Hollister
    hollister

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Ali Var, Turkey

    Ali Var, Turkey

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Philip Brindle, England

    Philip Brindle, England

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Anna Barrow, UK

    Anna Barrow, UK

  • Jean

    Jean
    jean

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • Ian Gale, Australia

    Ian Gale, Australia

  • Jean Waters, UK

    Jean Waters, UK

  • David Watson, Scotland

    David Watson, Scotland

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Daniel Hare, USA

    Daniel Hare, USA

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Jason Goodman, USA

    Jason Goodman, USA

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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