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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

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Events/Programs

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About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Anna Barrow, UK

    Anna Barrow, UK

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Art Eggert, USA

    Art Eggert, USA

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Ian Gale, Australia

    Ian Gale, Australia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Rosie Riley, USA

    Rosie Riley, USA

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Willi Klein, UK

    Willi Klein, UK

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Greg Heydet, USA

    Greg Heydet, USA

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • John Russo, USA

    John Russo, USA
    final3878

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Steve

    Steve

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Olga, Argentina

    Olga, Argentina

  • Michael Lee, Australia

    Michael Lee, Australia

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Christian Bär, Germany

    Christian Bär, Germany

  • Daniel Hare, USA

    Daniel Hare, USA

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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