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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

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  • International Symposium

About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • David Hall, USA

    David Hall, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Mike Small, UK

    Mike Small, UK

  • Bayley, Australia

    Bayley, Australia

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Ali Var, Turkey

    Ali Var, Turkey

  • Animesh Kumar, India

    Animesh Kumar, India

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Olga, Argentina

    Olga, Argentina

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Glen Elison, USA

    Glen Elison, USA

  • Willi Klein, UK

    Willi Klein, UK

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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