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International Alliance of ALS/MND Associations

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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Timmy, Belgium

    Timmy, Belgium

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Hollister

    Hollister
    hollister

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Lee Millard, England

    Lee Millard, England

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Liam Dwyer, England

    Liam Dwyer, England

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Purningam Jacob, India

    Purningam Jacob, India

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Alex, Argentina

    Alex, Argentina

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Jack Buzby, USA

    Jack Buzby, USA

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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