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International Alliance of ALS/MND Associations

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Advocacy

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Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
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  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
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Programs & Events

  • Calendar of Events/Programs
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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
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    • Finance Committee
  • Staff
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  • Newsletter Archive
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Upcoming Events

Nov 10
6:00 pm - 7:00 pm EST

Member Forum: AI Impacts

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

Dec 5
December 5 - December 6

Alliance Meeting

View Calendar

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Ian Gale, Australia

    Ian Gale, Australia

  • Glen Elison, USA

    Glen Elison, USA

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Denis Blais, Canada

    Denis Blais, Canada

  • Mike Small, UK

    Mike Small, UK

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Len Johnrose, England

    Len Johnrose, England

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • John Russo, USA

    John Russo, USA
    final3878

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Art Eggert, USA

    Art Eggert, USA

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Angela Jansen, Germany

    Angela Jansen, Germany

  • Jon Newsome, USA

    Jon Newsome, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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