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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
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    • Research Directors Forum
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Susan Keldani, USA

    Susan Keldani, USA

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Animesh Kumar, India

    Animesh Kumar, India

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Jon Newsome, USA

    Jon Newsome, USA

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • David Bishop, UK

    David Bishop, UK

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Zabun Nassar, England

    Zabun Nassar, England

  • Sally Pauls, USA

    Sally Pauls, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Lee Millard, England

    Lee Millard, England

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Lombana, Spain

    Lombana, Spain

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Susan Anderson, USA

    Susan Anderson, USA

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Daniel Hare, USA

    Daniel Hare, USA

  • Jean Waters, UK

    Jean Waters, UK

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Bayley, Australia

    Bayley, Australia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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