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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Jason Goodman, USA

    Jason Goodman, USA

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Jon Newsome, USA

    Jon Newsome, USA

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Sally Pauls, USA

    Sally Pauls, USA

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Bayley, Australia

    Bayley, Australia

  • Dick Dayton, USA

    Dick Dayton, USA

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Denis Blais, Canada

    Denis Blais, Canada

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Ian Gale, Australia

    Ian Gale, Australia

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Paul Launer, USA

    Paul Launer, USA

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • John Russo, USA

    John Russo, USA
    final3878

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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