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International Alliance of ALS/MND Associations

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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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    • Research Directors Forum
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  • Staff
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Philip Brindle, England

    Philip Brindle, England

  • Timmy, Belgium

    Timmy, Belgium

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Ali Var, Turkey

    Ali Var, Turkey

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Liam Dwyer, England

    Liam Dwyer, England

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Anna Barrow, UK

    Anna Barrow, UK

  • Hollister

    Hollister
    hollister

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Lee Millard, England

    Lee Millard, England

  • Ann Nicol, USA

    Ann Nicol, USA

  • Joanne Pratt, Australia

    Joanne Pratt, Australia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Michael Lee, Australia

    Michael Lee, Australia

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • JP

    JP

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Jon Newsome, USA

    Jon Newsome, USA

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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