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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
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  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
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  • NP001
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  • SPG302
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  • Ulefnersen

Care services

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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • David Watson, Scotland

    David Watson, Scotland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Ian Gale, Australia

    Ian Gale, Australia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Olga, Argentina

    Olga, Argentina

  • Bob Simonds, USA

    Bob Simonds, USA

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Jean Waters, UK

    Jean Waters, UK

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Frank Taylor, USA

    Frank Taylor, USA

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Susan Anderson, USA

    Susan Anderson, USA

  • Jean

    Jean
    jean

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Jon Newsome, USA

    Jon Newsome, USA

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Michael Lee, Australia

    Michael Lee, Australia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Animesh Kumar, India

    Animesh Kumar, India

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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