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International Alliance of ALS/MND Associations

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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Lee Millard, England

    Lee Millard, England

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Christian Bär, Germany

    Christian Bär, Germany

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Jean Waters, UK

    Jean Waters, UK

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Philip Brindle, England

    Philip Brindle, England

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Jon Newsome, USA

    Jon Newsome, USA

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Daniel Hare, USA

    Daniel Hare, USA

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Anna Barrow, UK

    Anna Barrow, UK

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Rob Tison, USA

    Rob Tison, USA

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Animesh Kumar, India

    Animesh Kumar, India

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Denis Blais, Canada

    Denis Blais, Canada

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • John Russo, USA

    John Russo, USA
    final3878

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Phil Rossall, UK

    Phil Rossall, UK

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Rosie Riley, USA

    Rosie Riley, USA

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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