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International Alliance of ALS/MND Associations

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Advocacy

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Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
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  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
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  • NP001
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  • SPG302
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  • Ulefnersen

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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
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  • Staff
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Upcoming Events

Oct 13
8:00 am - 9:00 am EDT

Member Forum: Technology Solutions for PALS

Oct 13
6:00 pm - 7:00 pm EDT

Member Forum: Technology Solutions for PALS

Oct 15
9:00 am - 10:00 am EDT

Webinar: The Use of AI in ALS/MND

Oct 17
2:00 pm - 3:00 pm EDT

ALS Association Webinar: So, What’s Next? Understanding the Decisions along an ALS Journey

Oct 21
7:00 am - 8:30 am EDT

Member Roundtable: Defining Rights in the Genetics Era of ALS/MND

View Calendar

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Sally Pauls, USA

    Sally Pauls, USA

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Alex, Argentina

    Alex, Argentina

  • Jean

    Jean
    jean

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Olga, Argentina

    Olga, Argentina

  • Dick Dayton, USA

    Dick Dayton, USA

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Lin Yong Yi, Taiwan

    Lin Yong Yi, Taiwan

  • David Solomon, UK

    David Solomon, UK

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Willi Klein, UK

    Willi Klein, UK

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Cath Muir, UK

    Cath Muir, UK
    Cath

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

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