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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Denis Blais, Canada

    Denis Blais, Canada

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Bob Simonds, USA

    Bob Simonds, USA

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Michael Lee, Australia

    Michael Lee, Australia

  • Willi Klein, UK

    Willi Klein, UK

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • John Sweeney, USA

    John Sweeney, USA

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Purningam Jacob, India

    Purningam Jacob, India

  • Wendy Hendrickson, USA

    Wendy Hendrickson, USA

  • Len Johnrose, England

    Len Johnrose, England

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Mike Cels, Canada

    Mike Cels, Canada

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Jean

    Jean
    jean

  • Ian Gale, Australia

    Ian Gale, Australia

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • David Watson, Scotland

    David Watson, Scotland

  • JP

    JP

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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