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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

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  • Alliance Webinars
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  • International Symposium

About

  • Who We Are
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Liam Dwyer, England

    Liam Dwyer, England

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Art Eggert, USA

    Art Eggert, USA

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • David Watson, Scotland

    David Watson, Scotland

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Bob Simonds, USA

    Bob Simonds, USA

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • John Sweeney, USA

    John Sweeney, USA

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • David Bishop, UK

    David Bishop, UK

  • Mark Miller, UK

    Mark Miller, UK

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Jon Newsome, USA

    Jon Newsome, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Dorette Lüdi, Switzerland

    Dorette Lüdi, Switzerland

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Ali Var, Turkey

    Ali Var, Turkey

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Susan Keldani, USA

    Susan Keldani, USA

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Juvenal Bayona Romero, Colombia

    Juvenal Bayona Romero, Colombia

  • Mike Small, UK

    Mike Small, UK

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Lee Millard, England

    Lee Millard, England

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • JP

    JP

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Seckin McGuirk, England

    Seckin McGuirk, England

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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