• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Favorite Forum Topics

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition, Swallowing and Saliva
  • Activities of Daily Living and Occupational Therapy
  • Muscles, Mobility and Exercise
  • Respiratory Care
  • Speech and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Programs & Events

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Meetings
  • Awards

Upcoming Events

Nov 19
12:00 pm - 1:00 pm CST

Les Turner ALS Foundation Webinar: The Caregiver’s Journey

Nov 20
7:45 am - 5:15 pm MST

Canadian Society of Palliative Medicine: Palliative Horizons – Clinical Approaches to ALS and Parkinson’s

Nov 24
9:00 am - 10:30 am EST

Annual General Meeting

Dec 5
December 5 - December 6

Alliance Meeting

Dec 7
December 7 - December 8

Allied Professionals Forum

View Calendar

  • Phil Rossall, UK

    Phil Rossall, UK

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Rosie Riley, USA

    Rosie Riley, USA

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Greg Heydet, USA

    Greg Heydet, USA

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Mahmood Anwar, UK

    Mahmood Anwar, UK

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Sally Pauls, USA

    Sally Pauls, USA

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • John Russo, USA

    John Russo, USA
    final3878

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Lineke Veenstra, Netherlands

    Lineke Veenstra, Netherlands

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Zabun Nassar, England

    Zabun Nassar, England

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Hollister

    Hollister
    hollister

  • Glen Elison, USA

    Glen Elison, USA

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Lee Millard, England

    Lee Millard, England

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login