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International Alliance of ALS/MND Associations

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Advocacy

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Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

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Events/Programs

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About

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Upcoming Events

Jun 25
1:00 pm - 2:00 pm ADT

The ALS Turbocharged Living Scale: A New Way to Measure What Matters

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Jean Waters, UK

    Jean Waters, UK

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Zabun Nassar, England

    Zabun Nassar, England

  • Frank Taylor, USA

    Frank Taylor, USA

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • JP

    JP

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Anna Barrow, UK

    Anna Barrow, UK

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Ian Gale, Australia

    Ian Gale, Australia

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jason Goodman, USA

    Jason Goodman, USA

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Art Eggert, USA

    Art Eggert, USA

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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