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International Alliance of ALS/MND Associations

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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • International Symposium

About

  • Who We Are
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    • PALS and CALS Advisory Council
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Jean

    Jean
    jean

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • John Russo, USA

    John Russo, USA
    final3878

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Ali Var, Turkey

    Ali Var, Turkey

  • David Solomon, UK

    David Solomon, UK

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Mike Cels, Canada

    Mike Cels, Canada

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Purningam Jacob, India

    Purningam Jacob, India

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Willi Klein, UK

    Willi Klein, UK

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Marco Antonio Alvarez Mercado, Mexico

    Marco Antonio Alvarez Mercado, Mexico

  • Jon Newsome, USA

    Jon Newsome, USA

  • David Bishop, UK

    David Bishop, UK

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Frank Taylor, USA

    Frank Taylor, USA

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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