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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

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About

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    • PALS and CALS Advisory Council
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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Mike Small, UK

    Mike Small, UK

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Animesh Kumar, India

    Animesh Kumar, India

  • David Watson, Scotland

    David Watson, Scotland

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Michel Perrozzo, France

    Michel Perrozzo, France

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Chirag Walia, India

    Chirag Walia, India
    ChiragWalia

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Mike Cels, Canada

    Mike Cels, Canada

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Zabun Nassar, England

    Zabun Nassar, England

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Orlando Ruiz, Colombia

    Orlando Ruiz, Colombia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Ian Gale, Australia

    Ian Gale, Australia

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Yannick Richard, Canada

    Yannick Richard, Canada
    yannickrichard

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

  • Anna Barrow, UK

    Anna Barrow, UK

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • John Russo, USA

    John Russo, USA
    final3878

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Art Eggert, USA

    Art Eggert, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Paul Launer, USA

    Paul Launer, USA

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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