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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • March of Faces
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About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Gudjon Sigurdsson, Iceland

    Gudjon Sigurdsson, Iceland

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • David Solomon, UK

    David Solomon, UK

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Christian Bär, Germany

    Christian Bär, Germany

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Olga Cosentino, Argentina

    Olga Cosentino, Argentina

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Bob Spurrier, USA

    Bob Spurrier, USA

  • Steve

    Steve

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Mark Miller, UK

    Mark Miller, UK

  • Michael Lee, Australia

    Michael Lee, Australia

  • Antonio Ventriglia, Belgium

    Antonio Ventriglia, Belgium

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Zelina Brito, Brazil

    Zelina Brito, Brazil

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Ali Var, Turkey

    Ali Var, Turkey

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Jan Zuring, Netherlands

    Jan Zuring, Netherlands

  • Ann Nicol, USA

    Ann Nicol, USA

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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