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International Alliance of ALS/MND Associations

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      • Amylyx – AMX0035
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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
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  • ALS/MND Connect
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  • March of Faces
  • International Symposium

About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Cassio Fernando da Silva, Brazil

    Cassio Fernando da Silva, Brazil

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Wiebke Braach, Germany

    Wiebke Braach, Germany

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Bayley, Australia

    Bayley, Australia

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Denis Blais, Canada

    Denis Blais, Canada

  • Dick Dayton, USA

    Dick Dayton, USA

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Ann Nicol, USA

    Ann Nicol, USA

  • Sally Pauls, USA

    Sally Pauls, USA

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Brian Lovell, Australia

    Brian Lovell, Australia

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Chris McCauley, Canada

    Chris McCauley, Canada

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Animesh Kumar, India

    Animesh Kumar, India

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Mike Small, UK

    Mike Small, UK

  • Graham Johnson, Australia

    Graham Johnson, Australia

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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