• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

International Alliance

  • Profile
  • Topics Started
  • Replies Created
  • Engagements
  • Favorites

Forum Topics Started

  • Oh, bother! No topics were found here.

Primary Sidebar

Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin / Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB
  • Kadimastem – AstroRx
  • Neuronata-R / Lenzumestrocel
  • NeuroSense – PrimeC
  • NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • Regulatory T Cell Enhancing Therapies
  • Ulefnersen

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

  • Alliance Support Grant
  • About the meetings

Events/Programs

  • Calendar of Events/Programs
  • Alliance Webinars
  • Alliance Meeting
  • Allied Professionals Forum
  • ALS/MND Connect
  • Global Day Calendar
  • March of Faces
  • International Symposium

About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
    • Meetings
  • Awards

Upcoming Events

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 8
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Your Roadmap to Eating, Swallowing, and Nutrition with ALS

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy & Understanding ALS/MND

Sep 22
2:00 pm - 3:00 pm EDT

ALS Association Webinar: Affordable Tools for Everyday Independence

Sep 24
1:00 pm - 2:00 pm EDT

Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD

View Calendar

  • Dick Dayton, USA

    Dick Dayton, USA

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Mike Small, UK

    Mike Small, UK

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Frank Bos, Netherlands

    Frank Bos, Netherlands

  • Chen Yin Xue, Taiwan

    Chen Yin Xue, Taiwan

  • Daniel Hare, USA

    Daniel Hare, USA

  • Brigitte Wernli, Switzerland

    Brigitte Wernli, Switzerland

  • Bob Simonds, USA

    Bob Simonds, USA

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Sally Pauls, USA

    Sally Pauls, USA

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Seckin McGuirk, England

    Seckin McGuirk, England

  • Anna Barrow, UK

    Anna Barrow, UK

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Art Eggert, USA

    Art Eggert, USA

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Dan Doctoroff, USA

    Dan Doctoroff, USA

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Eric Von Schaumburg, USA

    Eric Von Schaumburg, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Olga, Argentina

    Olga, Argentina

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Mike Cels, Canada

    Mike Cels, Canada

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Marcelo Farinelli, Brazil

    Marcelo Farinelli, Brazil

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • AMX0035
  • Reldesemtiv
  • Arimoclomol
  • TUDCA

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login