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International Alliance of ALS/MND Associations

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

  • Calendar of Events/Programs
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About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

Sep 8
6:00 pm - 7:00 pm EDT

Member Forum: Health Literacy

View Calendar

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Teddy Hanono Annie, Mexico

    Teddy Hanono Annie, Mexico

  • Joyce Rusinak, USA

    Joyce Rusinak, USA

  • Christian Bär, Germany

    Christian Bär, Germany

  • Ching-Liang Chu, Taiwan

    Ching-Liang Chu, Taiwan

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Greg Heydet, USA

    Greg Heydet, USA

  • PALS and CALS, Singapore

    PALS and CALS, Singapore

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Mike Small, UK

    Mike Small, UK

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • John Russo, USA

    John Russo, USA
    final3878

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Rob Tison, USA

    Rob Tison, USA

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Inta Grubb, Australia

    Inta Grubb, Australia

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • JP

    JP

  • Olga, Argentina

    Olga, Argentina

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Alex, Argentina

    Alex, Argentina

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Jon Newsome, USA

    Jon Newsome, USA

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Ian Roberts, Australia

    Ian Roberts, Australia

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Margarita Pizarro, Argentina

    Margarita Pizarro, Argentina

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

First-time users, please register by clicking the register button below this log in form. You will then be able to create a user name and password. Only Alliance members are eligible to register.

If you have already registered, please use the details provided to log in using this form.

Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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