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International Alliance of ALS/MND Associations

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International Alliance

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Advocacy

  • Advocacy Toolkit

Approved Drugs

  • Nuedexta
  • Radicava/Edaravone
  • Riluzole/Tiglutik
  • Rozebalamin/Methylcobalamin
  • Tofersen/Qalsody

Drugs in Development

  • AB Science – Masitinib
  • BrainStorm Cell Therapeutics – NurOwn
  • Clene Nanomedicine – CNM-Au8
  • ILB – Tikomed
  • Kadimastem – AstroRx
  • Methylcobalamin
  • Mitsubishi Tanabe Pharma America – Oral Edaravone
  • Neuronata-R/Lenzumestrocel
  • NeuroSense – PrimeC
  • Neuvivo – NP001
  • Prilenia Therapeutics – Pridopidine
  • SOD1 Therapies & Trials
  • SPG302
  • T Regulatory Cell Therapies
  • Ulefnersen – Ionis Pharmaceuticals

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

Support for members

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Events/Programs

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About

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Upcoming Events

Jul 14
7:00 am - 8:30 am EDT

Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics

Jul 23
1:00 pm - 2:00 pm EDT

Traveling with ALS: What to Know Before You Go

Aug 19
8:00 am - 9:00 am EDT

Member Forum: Equitable Access to Care

Aug 19
6:00 pm - 7:00 pm EDT

Member Forum: Equitable Access to Care

Sep 8
8:00 am - 9:00 am EDT

Member Forum: Health Literacy

View Calendar

  • John Russo, USA

    John Russo, USA
    final3878

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Purningam Jacob, India

    Purningam Jacob, India

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Lombana, Spain

    Lombana, Spain

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Liam Dwyer, England

    Liam Dwyer, England

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Patrick Shuma, Kenya

    Patrick Shuma, Kenya

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • David Solomon, UK

    David Solomon, UK

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Anthony Lynch, Australia

    Anthony Lynch, Australia

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

  • Zabun Nassar, England

    Zabun Nassar, England

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Aida Trzmiel de Guterman, Argentina

    Aida Trzmiel de Guterman, Argentina

  • Jean

    Jean
    jean

  • Kirsten Harley, Australia

    Kirsten Harley, Australia

  • Elkin Ramiro Gaviria Muñoz, Colombia

    Elkin Ramiro Gaviria Muñoz, Colombia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
    DannyReviers

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Steve

    Steve

  • Jon Newsome, USA

    Jon Newsome, USA

  • Greg Heydet, USA

    Greg Heydet, USA

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • John Sweeney, USA

    John Sweeney, USA

  • Animesh Kumar, India

    Animesh Kumar, India

  • David Watson, Scotland

    David Watson, Scotland

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Yolanda Armendariz, Mexico

    Yolanda Armendariz, Mexico

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Richard Clark, New Zealand

    Richard Clark, New Zealand

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Verónica Isabel Castro Molina, Argentina

    Verónica Isabel Castro Molina, Argentina

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Malcolm Buck, Australia

    Malcolm Buck, Australia

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

Learn more about the March of Faces

Coronavirus (COVID-19) Resources

Instructions

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Drugs No Longer in Development

  • Amylyx – AMX0035
  • Collaborative Medicinal Development – CuATSM
  • Cytokinetics – Reldesemtiv
  • Orphazyme – Arimoclomol
  • TUDCA Trial

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