International Alliance of ALS/MND Associations

R.A.C.E To Diagnose ALS/MND

A Call to Action to Refer Early Across Diverse Healthcare Settings

Learning Objectives

  • Recognize the early signs and symptoms of ALS/MND across diverse healthcare settings and specialties
  • Assess clinical features and initiate appropriate investigations (if warranted) without delaying referral
  • Communicate the need for an urgent onward specialist referral to those with suspected ALS/MND
  • Expedite referrals — even in the absence of complete diagnostic confirmation — and ensure referral letters clearly communicate key clinical findings to support triage

Resources

Videos

Person Living with ALS/MND Sharing His Diagnostic Journey

Craig Reyenga

Overcoming Therapeutic Nihilism in ALS/MND

Prof. Orla Hardiman, BSc, MB, MD, FRCPI, FTCD, MRIA

The Cost of Delayed Diagnosis: Personal Stories from the Faculty

Prof. Orla Hardiman, BSc, MB, MD, FRCPI, FTCD, MRIA

Marla Calder, BScOT

Prof. Christopher J. McDermott, PhD, MD, FRCP

Prof. Nortina Shahrizaila, DM, PhD, FRCP 

RECAP: When to Suspect ALS/MND and Refer

Prof. Nortina Shahrizaila, DM, PhD, FRCP 

Avoid Diagnostic Pitfalls: Prioritize Urgent Referrals

Prof. Orla Hardiman, BSc, MB, MD, FRCPI, FTCD, MRIA

Craig’s MRI Maze: A Journey Through Missed Opportunities and Delayed Referral

Craig Reyenga

Faculty Perspective: Frustration with Referral Delays

Prof. Christopher J. McDermott, PhD, MD, FRCP

From Diagnostic Uncertainty to Clarity: Insights from the Voices of People Living with ALS/MND

Leanne Sklavenitis

Bruce Virgo

What If the Patient Asks: “Could this be ALS/MND?”

Marla Calder, BScOT

 

For additional information or enquiries on booking the faculty, please email education@als-mnd.org.