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International Alliance of ALS/MND Associations

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R.A.C.E. To Diagnose ALS/MND

A Call to Action to Refer Early Across Diverse Healthcare Settings

Learning Objectives

  • Recognize the early signs and symptoms of ALS/MND across diverse healthcare settings and specialties
  • Assess clinical features and initiate appropriate investigations (if warranted) without delaying referral
  • Communicate the need for an urgent onward specialist referral to those with suspected ALS/MND
  • Expedite referrals — even in the absence of complete diagnostic confirmation — and ensure referral letters clearly communicate key clinical findings to support triage

Resources

  • Content
  • Evaluation Form
  • Invitation Live Event
  • Invitation Virtual Event
  • Participant Handout
  • Speaker Guide
  • Certificate (with speaker)
  • Certificate

Videos

Person Living with ALS/MND Sharing His Diagnostic Journey

Mr. Craig Reyenga

https://www.als-mnd.org/wp-content/uploads/2026/02/craig_reyenga´s_als_mnd_diagnosis_story_v1-1080p.mp4

Overcoming Therapeutic Nihilism in ALS/MND

Prof. Orla Hardiman, BSc, MB, MD, FRCPI, FTCD, MRIA

https://www.als-mnd.org/wp-content/uploads/2026/02/orla_hardiman_-_overcoming_therapeutic_nihilism_v1-720p.mp4

The Cost of Delayed Diagnosis: Personal Stories from the Faculty

Prof. Orla Hardiman, BSc, MB, MD, FRCPI, FTCD, MRIA

https://www.als-mnd.org/wp-content/uploads/2026/02/video_orla_hardiman_-_the_cost_of_delayed_diagnosis__personal_stories_from_the_faculty_v1-720p.mp4

Ms. Marla Calder, BScOT

https://www.als-mnd.org/wp-content/uploads/2026/02/marla_calder_–_the_cost_of_delayed_diagnosis__personal_stories_from_the_faculty_v1-720p.mp4

Prof. Christopher J. McDermott, PhD, MD, FRCP

https://www.als-mnd.org/wp-content/uploads/2026/02/chris_mcdermott_–_the_cost_of_delayed_diagnosis__personal_stories_from_the_faculty_v1-720p.mp4

Prof. Nortina Shahrizaila, DM, PhD, FRCP 

https://www.als-mnd.org/wp-content/uploads/2026/02/nortina_shahrizaila_–_the_cost_of_delayed_diagnosis__personal_stories_from_the_faculty_v1-720p.mp4

RECAP: When to Suspect ALS/MND and Refer

Prof. Nortina Shahrizaila, DM, PhD, FRCP 

https://www.als-mnd.org/wp-content/uploads/2026/02/nortina_shahrizaila_-_recap__when_to_suspect_als_mnd_and_refer_v1-720p.mp4

Avoid Diagnostic Pitfalls: Prioritize Urgent Referrals

Prof. Orla Hardiman, BSc, MB, MD, FRCPI, FTCD, MRIA

https://www.als-mnd.org/wp-content/uploads/2026/02/orla_hardiman_-_avoid_diagnostic_pitfalls__prioritize_urgent_referrals_v1-720p.mp4

Craig’s MRI Maze: A Journey Through Missed Opportunities and Delayed Referral

Mr. Craig Reyenga

https://www.als-mnd.org/wp-content/uploads/2026/02/craig_reyenga_-_a_journey_through_missed_opportunities_and_delayed_referral_v1-720p.mp4

Faculty Perspective: Frustration with Referral Delays

Prof. Christopher J. McDermott, PhD, MD, FRCP

https://www.als-mnd.org/wp-content/uploads/2026/02/chris_mcdermott_–_frustration_with_referral_delays_v1-720p.mp4

From Diagnostic Uncertainty to Clarity: Insights from the Voices of People Living with ALS/MND

Ms. Leanne Sklavenitis

https://www.als-mnd.org/wp-content/uploads/2026/03/ALALS2501-video-de-Leanne-v3.mp4

Mr. Bruce Virgo

https://www.als-mnd.org/wp-content/uploads/2026/03/ALALS2501-Bruce-video-v5-1.mp4

What If the Patient Asks: “Could this be ALS/MND?”

Ms. Marla Calder, BScOT

https://www.als-mnd.org/wp-content/uploads/2026/02/marla_calder_–_what_if_the_patient_asks__could_this_be_als_mnd__v1-720p.mp4

 

For additional information or enquiries on booking the faculty, please email education@als-mnd.org.

Primary Sidebar

  • Claudia Gotti, Brazil

    Claudia Gotti, Brazil

  • Paul Launer, USA

    Paul Launer, USA

  • Bob Simonds and Drew O'Neill , Les Turner ALS Foundation, USA

    Bob Simonds and Drew O’Neill , Les Turner ALS Foundation, USA

  • Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

    Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

  • Hanne Stenmose, Muskelsvindfonden, Denmark

    Hanne Stenmose, Muskelsvindfonden, Denmark

  • Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

    Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

  • Kirsten Harley,  Diagnosed 2013,  Australia

    Kirsten Harley, Diagnosed 2013, Australia

  • Leon Ryba, Asociación ELA Argentina

    Leon Ryba, Asociación ELA Argentina

  • Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

    Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

    Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Mary Thomas, Diagnosed 2013 , MND Australia

    Mary Thomas, Diagnosed 2013 , MND Australia

  • Ailsa Malcolm-Hutton, Diagnosed 2013,  MND Association of England, Wales and N Ireland

    Ailsa Malcolm-Hutton, Diagnosed 2013, MND Association of England, Wales and N Ireland

  • Willi Klein

    Willi Klein

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

  • Mauril Bélanger, Diagnosed 2015 , ALS Canada

    Mauril Bélanger, Diagnosed 2015 , ALS Canada

  • Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

    Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • John Dinon, MND Australia

    John Dinon, MND Australia

  • Cath Muir

    Cath Muir
    Cath

  • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

    Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

  • Dr Shelly Hoover

    Dr Shelly Hoover

  • England-Lee-Millard, UK

    England-Lee-Millard, UK

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • 83

    83

  • Osiel Mendoza, Diagnosed 2016 ,  ALS Therapy Development Institute, USA

    Osiel Mendoza, Diagnosed 2016 , ALS Therapy Development Institute, USA

  • Alan Liz Ogg 29042016 000799 lo res

    Alan Liz Ogg 29042016 000799 lo res

  • Christian Bär, Germany

    Christian Bär, Germany

  • Joy Blakeley, Diagnosed 2017 , MND Australia

    Joy Blakeley, Diagnosed 2017 , MND Australia

  • Bjarne Hytjanstorp, ALS Norge, Norway

    Bjarne Hytjanstorp, ALS Norge, Norway

  • Jack Buzby, USA

    Jack Buzby, USA

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

    Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

  • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

    Rolf Mauch, Association ALS Switzerland, Diagnosed 2015

  • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

    Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

  • Wilfried Leusing

    Wilfried Leusing

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Norm MacIsaac,  ALS Society of Canada,  ALS Society of Quebec,  Diagnosed 2014

    Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014

  • Ada Garrido Benavidez, Diagnosed 2016,  FYADENMAC, Mexico

    Ada Garrido Benavidez, Diagnosed 2016, FYADENMAC, Mexico

  • Sébastien Batiot, Diagnosed 2012 , ARSLA, France

    Sébastien Batiot, Diagnosed 2012 , ARSLA, France

  • Glen Elison,  ALS Hope Foundation,  Diagnosed 2019,  USA

    Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

  • Joanne Pratt, Diagnosed 2011 , MND Australia

    Joanne Pratt, Diagnosed 2011 , MND Australia

  • Natalya Rybakova, Russian Charity ALS Foundation

    Natalya Rybakova, Russian Charity ALS Foundation

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Bayley, Australia

    Bayley, Australia

  • Susan Keldani, Les Turner ALS Foundation, USA

    Susan Keldani, Les Turner ALS Foundation, USA

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

    Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

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