Explore upcoming Alliance webinars and watch recordings from previous sessions covering ALS/MND research, care, advocacy, technology, and more.
Upcoming Webinars
The Use of AI in ALS/MND
October 15, 2026
9 am–10 am ET
This webinar will provide an overview of the rapidly evolving landscape of artificial intelligence. We will look at responsible and trustworthy AI, and the importance of governance as it relates to the ALS/MND community. Join the conversation about how this growing technology can help enrich quality of life.
Annual Clinical Trials Update
November 4, 2026
8 am–9 am ET
This webinar will provide an update on ALS/MND treatments currently in Phase 3 clinical trials. Participants will learn about trial timelines, study locations, available programs, and key contacts for further information. The session will offer an overview of the current Phase 3 clinical trial landscape and the latest developments in treatment research.
Webinar Recordings
Explore recordings from previous Alliance webinars covering ALS/MND research, care, advocacy, technology, and more.
2026
Scientific Advisory Council Mid-Year Update and Q&A
The Alliance’s Scientific Advisory Council (SAC) delivered a mid-year update on the current state of ALS/MND research, followed by a live Q&A with SAC members. The session covered key developments shaping the research landscape and gave participants an opportunity to engage with leading scientific advisors.
ALS/MND Platform Trials Update
Platform trials are reshaping how new therapies are tested in ALS/MND. Hear updates from leaders of EXPERTS-ALS, HEALEY, and SMART on trial design, recruitment progress, eligibility criteria, and emerging developments.
Headline Results from the 2025 ALS/MND Fundamental Rights Survey
Explore headline findings from the third ALS/MND Fundamental Rights Survey, including emerging trends in how fundamental rights are experienced by people living with ALS/MND worldwide and what the findings mean for advocacy, policy, and system-level change.
Approved Treatments in ALS/MND
Access to approved ALS/MND treatments varies widely across countries and regions. This global conversation explores which therapies have received regulatory approval, how access differs in practice, and what barriers remain for people living with ALS/MND.
Highlights from the 2025 Patient Fellows
The 2025 Patient Fellows share key learnings and experiences from participating in the International Symposium on ALS/MND, including how engaging in research discussions shaped their perspectives and deepened their understanding of ALS/MND science.
2025
Bringing Voice to Life Across Borders
This webinar provides an end-to-end demonstration of how to create and use AI voice tools, from concept to completion. Examples from different regions highlight both the universal potential and local adaptability of the approach.
Scientific Advisory Council Mid-Year Update
Hear a mid-year update from the Alliance’s Scientific Advisory Council (SAC), including an opportunity for participants to ask questions about developments in ALS/MND research.
ALS/MND Platform Trials Update
Learn about ALS/MND platform trials through updates from HEALEY, EXPERTS-ALS, and SMART, including their approaches, recruitment, trial eligibility, and latest developments.
Annual Clinical Trials Update
Learn about the latest developments in ALS/MND treatments currently in Phase 3 clinical trials, including trial timelines, site locations, available programs, and key contacts for further information.
2024
Annual Clinical Trials Update
Learn about ALS/MND treatments currently in Phase 3 clinical trials, including timelines, study locations, available programs, and where to go for further information.
Global ALS/MND Awareness Day
Explore the impact of the Ice Bucket Challenge and how it raised awareness of ALS/MND and contributed to advances in care, advocacy, and research. The webinar features Nancy Frates, mother of Pete Frates, along with Alliance member organizations sharing the impact in their communities.
Respiratory Support in ALS/MND
This webinar covers key aspects of respiratory support in ALS/MND, including how breathing can be affected, approaches to care and support, non-invasive equipment, and considerations related to tracheostomy.
Mental Health in ALS/MND
This webinar provides tools and recommendations for people living with ALS/MND, caregivers, and youth. Topics include mental health following diagnosis, managing emotions such as guilt and anxiety, and finding activities that support well-being and enjoyment.
ALS/MND Platform Trials Update
Hear from representatives of HEALEY, MAGNET, and SMART about their platform trial approaches, recruitment, eligibility, and latest developments.
Nutrition in ALS/MND
Learn about the importance of nutrition in ALS/MND, including nutritional changes following diagnosis, considerations for bulbar-onset ALS/MND, and common questions about feeding tubes.
Annual Global Clinical Trials Update
Learn about ALS/MND treatments in clinical trials, including timelines, study locations, available programs, and where to go for further information.
2023
Mental Health Support for People Living with ALS/MND and Caregivers
Explore the emotional impact of ALS/MND on people living with the disease, caregivers, young adults, and children. The panel discusses coping with progressive changes, processing loss, and other considerations for supporting mental health.
Global Fundamental Rights Survey Results
Explore findings from the Alliance’s Fundamental Rights Survey, including global strengths and gaps, questions raised by the data, areas requiring further attention, and comparisons with the 2021 survey.
Scientific Advisory Council Update and Q&A
Hear a mid-year update from members of the Alliance’s Scientific Advisory Council, including Dr. Nicholas Cole, Dr. Kuldip Dave, Dr. Nadia Sethi, and Dr. David Taylor. Moderated by Dr. Gethin Thomas.
Maintaining My Independence
Occupational therapist Sarah Solomon and Gudjon Sigurdsson, a person living with ALS/MND, share practical recommendations for maintaining independence while living with ALS/MND. Moderated by Sara Feldman.
Genetic Counseling and Testing
Explore the importance of genetic counselling and testing through a scenario-based discussion covering situations ranging from an asymptomatic carrier to someone whose parent had ALS/MND but did not undergo genetic testing.
Sharing Success: A Fireside Chat with the 2022 Award Winners
Hear an informal conversation with 2022 Alliance Award recipients Sally Light, Dr. Richard Bedlack, and Richard Cave about their careers and contributions to the ALS/MND community. English and Spanish captions are available.
What Do I Need to Know About Clinical Trials?
Learn about the importance of clinical trials, how to find a suitable trial, what to consider before participating, and potential next steps. Moderated by Rachael Marsden, with Allison Bulat, Nadia Sethi, and Paula Trefiak. English and Spanish captions are available.
2022
First Annual Global Clinical Trials Update
Learn about ALS/MND treatments in Phase 3 clinical trials, including timelines, study locations, available programs, and where to go for more information. The session includes presentations from companies with therapies in development at the time of the webinar.
Genetic Counselling
Genetic counsellor Ashley Crook provides an overview of genetic counselling, different types of genetic testing, and important considerations before testing.
Voice Banking
Learn about voice banking and assistive communication technology, including basic concepts, how voice banking is done, timing, considerations, and limitations.
Innovation in Clinical Trial Design
Explore how ALS/MND clinical trial design is evolving, including emerging models, how they are changing the research landscape, and their practical implications for the ALS/MND community.
App Demonstration
See demonstrations of applications designed to support communication for people living with ALS/MND, with perspectives from Alper Kaya and speech and language therapist Richard Cave.
Scientific Advisory Council Update and Q&A
Hear a mid-year update from the Alliance’s Scientific Advisory Council.
Care Part 3: End of Life
This webinar provides guidance on end-of-life considerations for people living with ALS/MND and caregivers, including support and planning resources that may help at this stage of the disease journey.
Care Part 2: What Are My Ongoing Needs with ALS/MND?
Explore the evolving needs of people living with ALS/MND and caregivers as the disease progresses, and approaches to meeting those needs. Moderated by Nick Goldup, Director of Care Improvement at the MND Association.
Care Part 1: What Do I Need to Know at Diagnosis?
Explore steps and actions people living with ALS/MND and caregivers may want to consider following diagnosis as they begin navigating the ALS/MND journey.
2021 Global Survey Results
Explore findings from the Alliance’s survey on the Fundamental Rights of People Living with ALS/MND and Caregivers, including global strengths and gaps, questions raised by the data, and topics requiring further attention.
Sharing Success: A Fireside Chat with the 2021 Award Winners
Hear an informal conversation with the 2021 Alliance Award winners about their careers and contributions to the ALS/MND community.
2021
Ethical Considerations for Genetics
Explore the potential risks and benefits of genetic testing for people who are symptomatic, have a family history of ALS/MND, or are asymptomatic and considering genetic testing.
Genetics – Counselling and Testing
Learn about genetic counselling and the role of a genetic counsellor, what genetic testing involves, availability, ethical considerations, and the potential psychological effects of testing.
Introduction to ALS/MND Genetics
This webinar provides an introduction to genetics and the ALS/MND landscape, helping people affected by ALS/MND and their families build a basic understanding of what genetics may mean for them and their options.
Optimizing Clinical Trial Design
Explore lessons from past ALS/MND clinical trials and how those learnings have informed approaches to trial design, including outcome measures and entry criteria.
Youth and ALS/MND
This webinar explores the experience of children whose parent has ALS/MND and approaches to communicating with children about their concerns and questions.
Innovation and Technology in ALS/MND
Explore student projects from University College London’s Accessibility and Assistive Technologies module. Each project focused on designing technology to help bridge the gap between a person’s abilities and the requirements of everyday tasks.
Biomarkers in ALS/MND
Learn about emerging biomarkers in ALS/MND research and why a combination of different biomarkers may ultimately be needed.
Telemedicine Best Practices in Care and Research
This webinar explores best practices in telemedicine for both ALS/MND care and research.
Q&A with the Alliance’s Scientific Advisory Council
Hear a mid-year update from the Alliance’s Scientific Advisory Council, presented in recognition of Global ALS/MND Awareness Day.