ALS Caregiver Training Course from conSLAncio (in-person)
Free ALS Caregiver Training Course, for at-home carers and health professionals, (in-person) in San Cataldo, Italy on Oct 7, 2024. Please see the graphic below for details.
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Webinar from NEALS – At the Crossroads: Advanced Respiratory Care in ALS
Zoom WebinarJoin us for the final installment in the "Advanced Respiratory Care in ALS" series as we delve into the complexities of respiratory failure in ALS. This session will focus on […]
Free
Event from conSLAncio: 2nd annual Italian Patient-Industry Networking Event
2nd annual Italian Patient-Industry Networking Event with our partners, Oct 9th, in Milano, Italy. Free registration. It will focus on the necessary psychological support for persons living with […]
Webinar from Les Turner ALS Foundation – Complementary & Alternative Therapies for People Living with ALS
OnlineAbout the Program Join us for our October ALS Learning Series where Dr. Tavee will discuss complementary and alternative therapies for people living with ALS. These therapies can play a […]
Free
Annual Clinical Trials Update
Zoom WebinarThis webinar will provide information on ALS/MND treatments currently in Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered and who to contact if […]
Free
Workshop from conSLAncio : Motor Neuron Diseases III Edition: Understanding the Pathogenetic Mechanisms to Develop Therapies
Palace of the Anatomical Institutes , ItalyThe workshop will focus on motor neuron diseases, in particular ALS and SMA. This hybrid meeting will elucidate biological mechanisms involved in muscular atrophy (at different ages and conditions) and […]
Webinar from Les Turner ALS Foundation – Stitching Strength: What I have learned about hope in ALS and how I am trying to weave that into my practice
OnlineAbout the Program Join us for our November ALS Learning Series about hope with Dr. Richard Bedlack. In this talk, Dr. Bedlack will review what he has learned about hope […]
Free
2024 Alliance Meeting
The 2024 Alliance Meeting will be attended by 100+ delegates in-person and 100+ delegates virtually from over 40 countries around the globe that represent the Alliance’s many member associations. The meeting […]
2024 Allied Professionals Forum
The Allied Professionals Forum (APF) includes clinical care presentations for ALS/MND health and social care professionals. During the APF, practitioners from around the globe come together to share their practical knowledge […]
35th International Symposium on ALS/MND
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic […]
Webinar from NEALS: Expanded Access Programs in ALS: What Have We Learned, Where Do We Go from Here?
OnlineIn this webinar, Drs. Andrews, Babu and Bedlack will explain what Expanded Access Programs (EAPs) are and how they differ from other pathways by which people living with ALS can […]
Webinar from Les Turner ALS Foundation: Family Caregivers: Angels in Agony
OnlineAbout the Program Every caregiver — and every caregiving journey — is unique, but there are some commonalities among caregivers of family members living with ALS. Most say caregiving is […]
Free
Webinar from NEALS: Understanding the Customer Experience Journey in ALS Clinical Trials Across North America
OnlineIn 2016, a "secret shopper" initiative was launched to assess the responsiveness of ALS clinical trial sites to patient inquiries. The findings revealed significant challenges in both the quality and […]
International Colloquium with WÄERTVOLLT LIEWEIN: Personal Assistance
Neumünster Abbey Centre Culturel de Rencontre Abbaye de Neumünster, 28 Rue Münster, 2160 Grund Luxembourg, LuxembourgWhen you slide more or less quickly from independence to total physical and social dependence, you really need to have confidence in your environment and in society in order not […]
Webinar from the International Alliance: ALS/MND Platform Trials Update
OnlineALS/MND PLATFORM TRIALS UPDATE 19 March 8 am ET Registration: https://us02web.zoom.us/webinar/register/WN_GEOgomftSVOcV0woGWug4g#/registration We will have captions available This webinar will provide information on ALS/MND platform trials. We will hear from […]
Webinar from Les Turner ALS Foundation: Observational Studies Help in the Quest for Effective ALS Therapies
OnlineAbout the Program In this talk Dr. Berry will discuss the aims, design considerations, and implementation of observational studies, highlighting the many ways observational studies hastened drug development and can […]
Free
Webinar from Les Turner ALS Foundation: The ALS Exposome: How Environmental Exposures Inform Disease Risk and Prevention
OnlineAbout the Program Join us for our April ALS Learning Series with Dr. Goutman, neurologist, from University of Michigan. Dr. Goutman will discuss research related to how environmental exposures influence […]
Free
Webinar from Les Turner ALS Foundation: Breaking Barriers: Building a Health Equity Approach to Make ALS Livable for All
Newcastle United Football ClubAbout the Program Understanding our gaps in knowledge about the social and structural determinants of health inequities in ALS is integral to making sure ALS becomes a livable disease. In […]
Free
Webinar from Les Turner ALS Foundation: Tackling the Delay to ALS Diagnosis: How Can We Do Better?
OnlineAbout the Program Join us for our May ALS Learning Series with Dr. Kelly Gwathmey from Virginia Commonwealth University. She will explore the causes and consequences of ALS diagnostic delay, […]
Free
ENCALS Meeting 2025
The upcoming ENCALS meeting will be hosted in Turin, Italy, from June 3-6, 2025. Satellite meetings will take place on Tuesday morning (June 3) and Friday (June 6). The program […]
ALS Town Hall from ALS TDI and Her ALS Story: What are Lesser-Known ALS Symptoms?
Join ALS TDI and Her ALS Story (HAS) for the second of a 3-part collaborative Town Hall series, "Your Story. Our Science." Our journey continues with What Are Lesser-Known ALS […]
Webinar from EUpALS: ‘Supporting your community’s mental wellbeing’
OnlineJune 12 at 5:00 PM CEST Registration This session will explore how to strengthen the mental and emotional support you offer to the ALS community, with practical guidance on understanding […]
Webinar Series from Les Turner ALS Foundation: Healey Center Community Webinars
OnlineDate: June 26, 2025 at 4pm ET (3 CT) Title: Healey Platform Trial Updates & The Les Turner ALS Foundation Registration link: https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw#/registration About the Program: Join us for our June ALS Learning […]
Webinar from EUpALS: ‘Looking after your own mental wellbeing as an ALS community leader’
OnlineJuly 1st at 5:00 PM CEST Registration This session focuses inward - on you and your team - offering space to reflect on the emotional demands of leadership and strategies […]
ALS Town Hall from ALS TDI and Her ALS Story: How Can We Improve ALS Diagnosis?
Join ALS TDI and Her ALS Story (HAS) for the third and final installment of our 3-part collaborative Town Hall series, "Your Story. Our Science." Our series concludes with How Can […]
Webinar from Les Turner ALS Foundation: Voice Preservation Beyond Recording: Creating and Using My Preserved Voice
Zoom WebinarAbout the Program Join us for a comprehensive review of current best practices and tools in Message Banking, Voice Banking, and Voice Cloning, including the role of Artificial Intelligence (AI) […]
End-of-Life Autonomy – A Conversation on ALS and Medical Aid in Dying
OnlineJoin us for a thoughtful and informative conversation with Dr. Robin Plumer and Jeremy Boal as we explore the topic of Medical Aid in Dying (MAID). Dr. Plumer will explain what MAID is, how individuals […]
Webinar from Les Turner ALS Foundation: Occupational Therapy Solutions for People Living with ALS
OnlineAbout the Program: Join us for an informative session about how occupational therapy can support your daily activities and quality of life while living with ALS. Becca Schroeder, MOT, OTR/L, will […]
PACTALS 2025 Conference
On behalf of the organising committee, it is with great pleasure that we invite you to join us at the PACTALS 2025 Conference, taking place from 7th to 9th September […]
Webinar from Les Turner ALS Foundation: Participation in the National ALS Registry
Zoom WebinarAbout the Program ALS research depends on people living with ALS to join the National ALS Registry. Every individual’s story can contribute to our understanding of the disease, its causes, […]
Free
INARC Roundtable Discussion During PACTALS
2025 PACTALS INARC Session Date: Sept. 8 2025 Time: 4:30 PM - 6:00 PM Location: Melbourne, Australia Format: Roundtable Discussion For whom? INARC is a network dedicated to ALS clinical […]
Webinar from Les Turner ALS Foundation: Better Bowel Days – Managing the Burden of Constipation in People living with ALS
Zoom WebinarAbout the Program Join us for an informative session focused on constipation management in people living with ALS. This webinar will explore the impact of constipation in this population, examine […]
Free
Webinar from EUpALS: Supporting Your Community’s Mental Wellbeing
Zoom WebinarWebinar 1: ‘Supporting your community’s mental wellbeing’ Date: October 2 Time: 5:00 PM CEST This session will explore how to strengthen the mental and emotional support you offer to the […]
Free
Webinar from EUpALS: Looking After Your Own Mental Wellbeing as an ALS Community Leader
Webinar 2: ‘Looking after your own mental wellbeing as an ALS community leader’ Date: October 9 Time: 5:00 PM CEST This session focuses inward - on you and your team […]
Free
Webinar: Bringing Voices for Life Across Borders
Zoom WebinarThis webinar will take participants through an end-to-end demonstration of creating and using AI voice tools, highlighting the process from start to finish. The session will feature walkthroughs that illustrate […]
Free
ALS TDI Summit
Boston Sheraton Hotel 39 Dalton St, Boston, MA, United StatesOn Friday, October 17, 2025, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free […]
Les Turner ALS Foundation Webinar: Functional Mobility Changes with ALS
OnlineAbout the program: Changes in functional mobility are common with ALS. This often may present as difficulty with transfers, need for a walking aide, possible wheelchair evaluation, and need for additional training with a […]
Free
Webinar: Annual Clinical Trials Update
Zoom WebinarIn this webinar, we will share the latest information on ALS/MND treatments currently in Phase 3 clinical trials. We will look at trial timelines, site locations, additional programs available, and key […]
Les Turner ALS Foundation Webinar: Mission Driven Care – How the VA is Transforming ALS Care
OnlineMilitary Veterans are at increased risk of developing ALS. In 2008, the VA extended benefits to all Veterans with ALS who served greater than 90 days of active duty. Dr. […]
Free
Les Turner ALS Foundation Webinar: Managing the Burden of Constipation in People Living with ALS
Online*This webinar was rescheduled from September. Join us for an informative session focused on constipation management in people living with ALS. This webinar will explore the impact of constipation in […]
Free
Alliance Meeting
The Alliance Meeting is the place where member associations can meet and share experiences in growing, running and building an ALS/MND association to support people living with ALS/MND. The meeting […]
Allied Professionals Forum
Are you ready to be part of something bigger? The Allied Professionals Forum (APF) brings together healthcare professionals from around the world, including physiotherapists, respiratory therapists, nutritionists, speech-language pathologists, social […]
Les Turner ALS Foundation Webinar: The Cost of ALS – Where Research Stands and How it Compares to Other Diseases
OnlineIn this presentation, Dr. Grouls will explore a concept people living with ALS know all too well: the financial burden of disease. She will trace the evolution of financial burden […]
Free
Nothing About Us, Without Us: Highlights from the 2025 Patient Fellows
OnlineThe 2025 Patient Fellows will share their key learnings and experiences from participating in the 36th International Symposium on ALS/MND. Guided by the theme “Nothing About Us, Without Us,” this […]
Les Turner ALS Foundation Webinar: Living Fully, Living Well – How Palliative Care Can Help
OnlineDr. Kara Bischoff will provide an introduction to palliative care and how it can be helpful to people with ALS and their loved ones. Aspects of advance care planning that […]
Free
Les Turner ALS Foundation Webinar: Hospice Care and ALS
OnlineHospice Care and ALS: What It Is, When to Consider It, and How It Supports You Join for our February ALS Learning series which will provide an overview of hospice […]
Free
Approved Treatments in ALS/MND
OnlineThis webinar will feature an open conversation and testimonials about access to approved treatments for ALS/MND around the world. We will explore which therapies are approved in different countries and […]
Headline Results from the 2025 ALS/MND Fundamental Rights Survey
OnlineJoin us for a presentation of the headline findings from the third iteration of the ALS/MND Fundamental Rights Survey. This session will share key data and emerging trends on how […]
ALS Association Webinar: Exploring ALS Clinical Trials
OnlineExploring ALS Clinical Trials: What They Are, How to Find Them, and What Happens Next For many in the ALS community, clinical trials represent both hope and uncertainty. This educational […]
Free
Les Turner ALS Foundation Webinar: Tissue Donation and the Future of ALS Research
OnlineThe Gift of Discovery: Tissue Donation and the Future of ALS Research Tissue donation is one of the most powerful contributions a person living with ALS can make to future […]
Free
conSLAncio Webinar: From Diagnosis to Treatment of Voice Disorders (In Italian)
San Martino Hospital Largo Rosanna Benzi, 10, Genova, ItalyEvent: Toward New Perspectives: From Diagnosis to Treatment of Voice Disorders (In Italian) Date: April 11, 2026 Time: 8:00 AM CEST Register here. Alcune patologie neurologiche e otorinolaringoiatriche possono causare […]
ALS Association Webinar: Becoming an Active Partner in ALS Decision-Making
Your Care, Your Voice: Becoming an Active Partner in ALS Decision-Making Living with ALS means facing important decisions about your care - and your voice matters in every conversation. We'll […]
Les Turner ALS Foundation Webinar: Informed Decision-Making in ALS
Informed Decision-Making in ALS: An Open Discussion on Tracheostomy and Invasive Mechanical Ventilation Join us for an open and honest conversation about one of the more challenging decisions people living […]
ALS Association Webinar: Understanding the FTD of an FTD/ALS Diagnosis
OnlineUnderstanding the FTD of an FTD/ALS Diagnosis Frontotemporal degeneration (FTD) and ALS are specific neurodegenerative disorders with different symptoms and underlying biology. As challenging as each can be on their […]
Free
ALS/MND Platform Trials Update
OnlinePlatform trials are reshaping how new therapies are tested in ALS/MND. Join us for updates from leaders of EXPERTS-ALS, HEALEY, and SMART, who will share the latest on trial design, […]
Member Forum: Fundraising
A member forum exploring fundraising strategies, opportunities, and shared learning to strengthen organizational capacity. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
Member Forum: Fundraising
A member forum exploring fundraising strategies, opportunities, and shared learning to strengthen organizational capacity. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.
ALS Association Webinar Series: Connected Through the ALS Journey
Connected Through the ALS Journey: Support, Resources, and Community May 12 @ 2:00 pm - 3:30 pm EDT May 13 @ 2:00 pm - 3:30 pm EDT May 14 @ […]
Member Forum: Advocacy and Campaigns, Government Engagement and Funding
A member forum focused on advocacy strategies, campaign development, government engagement, and approaches to securing funding. Registration note: Members only. To register or request more information, email alliance@als-mnd.org.